Caring for Children with Chronic Illnesses

Emergency Communication

Methods for families to contact emergency personnel.

CPR Guidelines

Instructions for performing cardiopulmonary resuscitation.

Caregiver Stress

Negative effects of caregiving on family members.

Caregiver Strain Index (CSI)

13-item tool to assess caregiver stress.

Palliative Care

Comprehensive care focusing on quality of life.

End-of-life Care

Care provided in final stages of life.

Cheyne-Stokes Respirations

Labored breathing pattern seen before death.

Death Rattle

Noisy respirations occurring near death.

Family-Centered Care

Care approach prioritizing family involvement.

Stages of Reaction

Shock, denial, adjustment, reintegration, acknowledgment.

Home Care Coordination

Ensures continuity and prevents service duplication.

Self-Expression Support

Encouraging children to express their feelings.

Chronic Condition

Condition lasting over 6 months requiring management.

Interprofessional Approach

Collaboration among various health care professionals.

Open Communication

Transparent dialogue among parents, children, and providers.

Support System

Network providing emotional and practical assistance.

Coping Mechanisms

Strategies used to manage stress and challenges.

Technical Expertise

High skill level required for home care nurses.

House Rules

Agreed guidelines for family and healthcare interactions.

Gradual Information Disclosure

Providing information about illness over time.

Quality of Life

Overall well-being of patients and families.

Financial Burdens

Economic strain from caregiving responsibilities.

Emotional Support

Providing comfort during grief and loss.

Child Involvement

Including children in decisions about their care.

Community Resources

Local services available for family support.

Palliative Care Principles

Focus on alleviating distress and improving life quality.

Nursing Assessment

Evaluation of child's health and needs.

Developmental Age Consideration

Tailoring care based on child's maturity level.