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Neurodevelopmental disorders (NDDs)
autism, learning disabilities, intellectual disability, ADHD
Autism Spectrum Disorder
heritable disorder, more common in boys, more common with older parents
environmental causes of ASD
in utero: exposure to medication. Prenatal: multiple gestation, infection. perinatal: low birth weight, neonatal encephalopathy.
Attention deficit/hyperactivity disorder (ADHD)
inattention, hyperactivity, impulsivity
qualifiers for ADHD
must be present before age 12, present in at least 2 contexts, must interfere with quality of life
parenting stress
the perceived discrepancy between the demands of parenting and the resources available to meet those demands
6 main areas of parental experience
pre diagnosis, diagnosis, family life adjustment, navigating the system, parental empowerment, moving forward
phases of waiting
watchful, informed, contemplative
watchful waiting
noticing suspected behaviors, searching for assessment and Dx
informed waiting
recieiving the diagnosis, facing the challenges in accessing treatment services, realizing the impact of an ASD diagnosis
contemplative waiting
pondering the future, reflecting on the past, making recommendations