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What are the humanities?
Literature — study of written works
History — research and interpretation of past events, societies and cultures
Philosophy — inquiry into fundamental questions about existence
Languages — study of modern and classical language and linguistics
Art — includes visual arts (paintings, drawings, sculpture
religion — comparative religion, religious studies
Medical humanities
Focused on education of medical professionals
Focused on physician- patient relationship
Focused on educating and training doctors
Health humanities
broader approach to social determinants of health
humanities is for everyone / wider audience
Health humanities aka public health
concerned with well-being, and promotes all sectors and communities
— challenges privileging of professional expertise over lived experience and lay perspectives
Epistemology
branch of philosophy concerned with the nature of knowledge
Ontology
Way of knowing, values interpretive methods and social experience
Activism
Health humanities as a vibrant site of public learning and activism, activism as a “free form and viral moment” that can inform and transform ways of seeing
Disciplinary knowledges
Epistemology: principles and theories of knowledge
Biomedical perspective
Focused on biological factors to to understand medical illness
Public health perspective
Studies patterns causes and effects of health and disease conditions defined populations, often by identifying risk factors for disease and targets for preventative health care
Art therapy
Art used in service of health care, uses the creative process of making art to improve a persons physical, mental and emotional well being
Preamble
Health care practices are changing
Ex. economic pressure, corporatization, advances in AI
Trust
Critical element in medicine
Asymmetry of information
the recipient of care can not judge the effectiveness of care
Imagination
Details of a patient's world are told through the stories they tell, the act of telling and listening to stories depend on imagination
William Osler:
It is much more important to know what sort of patient has a disease then to know which disease as patient has” (p. 113)
For patients storytelling is a matter of life or death
Sociological imagination
Capacity to see how a person's personal life is shaped by society
Fractured Self
Patients struggle for language to articulate their lives
Imagination is practice
Origin of any hypothesis that lead to discovery
Disembodied medicine
Primary articulations (accounts) of the body are lab values, images, and reports
Fractures
Can be reintegrated (made whole) even if physical condition does not leave
Embodiment
Requires integration of all dimensions in the human being
—-> excludes poetic materiality: how imagination shapes our experiences across personal and historic dimensions
Enactivism
Interchanging relationship between observer and observed
observers shape the world as they perceive
Care as an embodied process
Medical education must incorporate practices from arts and humanities -> what is illness, the body and what a person is
Art Frank coined 4 key distinctions
Disease vs illness, Patient vs ill person, Medical history vs ill persons story, Treatment vs care
Disease vs illness:
Disease - reducible to biochemistry
Illness - involves reflective consciousness
Patient vs ill person
Patient - identity imposed upon a person by medical institutions
Ill person - patient some of the time
Medical history vs ill persons story
Medical history - understanding patient in term of nature of the disease they have
Ill persons story - medical patient become delimited by his or her story
Treatment vs care
Treatment - serv ice with monetary value
Care - gift
Medical images
Imaginative leap
Representation in health and medicine
Mimetic - fixed meaning
Diegetic - interpreted
Pain
No way to objectively measure pain, measurable yet to some extent visible
Representations of pain and culturally shaped
What is the mc gill pain index?
Clinical tool developer and mc gil uni
Provides list of gerunds to articulate pain
Photographing pain
Charles Darwin argued that emotions and mimetic (unmedicated) physical expressions of experience
Subjective knowledge and suffering
When patients suffer it is suffering and not pain
Suffering occurs because the integrity of a person is threatened
Event
Single occurrence where something happens
Story
Two or more meaningful events happening in a series
Narrative
Rendering/ telling of a story
Story vs the narrative
Used interchangeable but very different:
story = Factual sequence of events
narrative = how story is communicated
Plot
Gives a sense of causality
Character
Human identity
Pov
Way story is narrated
Affects how story is told
Enchantement
Humanistic terms do something to the illness experience - they enchant them
What is disenchantment?
Term coined by max weber (1864-1920)
As we subject world to rationalization we lose the sense of mystical
Stories or narratives help rehabilitate enchanted life and care
Franks illness narrative
Restitution, chaos and care
restitution (cure) narrative ?
Illness is temporary and body can heal
Chaos narrative
Illness is a permanent state of disaster, anxiety provoking
Quest narrative
Departure, initiation, and return
Therapeutic “im not alone”
Literal and figurative language
literal: primary, what is actually written
- figurative: figures of speech (metaphor, simile)
Defining poetics
Alliteration - repetition of consonant “ride rocket rockets”
Apostrophe - “be still, my heart” “O, canada”
Assonance - repeating vowel sounds “hot shot” “barren peaks and squeaks”
Simile and metaphor
Simile - association between two unlike things using like or as
Metaphor - comparison between two unlike things “shes a night owl” “hes got cold feet”
Tenor and vehicle
Metaphors have two parts tenors and vehicles
“life is a journey”
Tenors = life
Vehicles = journey
Metaphors and illness
Disease and illness described using metaphor
What is a military metaphor?
prevalent in health care, provides strong countermeasures for feelings of powerlessness
Ex. influenza attacks the body
Summarize poetics of health and illness
language we use provide powerful frame to understanding to disease and illness
Ex. patient-professional relationship as a form of combat or military engagement
Time line
ancient -> medieval times -> renaissance
Ancient
Greece, Rome 5th c. BCE - 5th C. CE
Medieval
Middle Ages” in Europe 5th to 15th CE