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What are the three pathways to death?
occurs quickly
occurs after steady decline
long and erratic process
How do deaths typically occur in affluent countries today?
slowly bc of medicine
How did death typically occur in the nineteenth century?
quickly, horrid, wild
When and how did doctors’ talking about death totally change?
1960s revolution: schools discuss death, Dr.s blunt about diagnoses, planning death
How do different cultures treat death?
West: honesty, need for planning
Hmong: ignore that the person is dying until death is imminent, then shower with affection
What did Kübler-Ross find during the 1960s when she interviewed dying patients about their feelings?
they were relieved to talk about their diagnosis, they know they’re dying but Drs won’t say it
What characterizes each of the five stages in Kübler-Ross’s stage theory of dying?
denial, anger, bargaining, depression, acceptance
Identify and explain three reasons why we can’t take this famous theory as the final word about death.
dying people dont want to discuss their full situation
they don’t want to know the full truth
not everyone passes through stages
T or F: Kübler-Ross’s theory inadvertently encourages its own kind of insensitivity to terminally ill people.
true
What is the more realistic view of facing death?
a ‘complicated cluster of emotions’ rather than stages
people experience death differently
What is middle knowledge and why is it important?
terminally ill person knows they’re dying, but hasn’t fully grasped it
What overall qualities are involved in having “a good death”?
no physical or mental distress, no pain, close to loved ones, sense of spirituality
What is persistent complex bereavement-related disorder and why is it considered controversial?
chronic grief, mourning past 6 months to a year
reclassifies mourning as a pathological state & some deaths are traumatic
How might the COVID-19 pandemic be related to chronic grief?
unexpected death in hospital, isolated
Describe the various feelings that caregivers may have about losing a child.
guilt (couldn’t protect), anger (robbed of life), chronic grief
Describe some research findings on how parents can cope with their lives after a child’s death.
discuss what’s happening to the child with them during final weeks (if old enough to understand death)
turning childs death into a redemption sequence
What is wrong with the traditional hospital approach to dying?
What role does the dying trajectory play?
estimate of a patient’s pathway of death
hospitals can misestimate a dying trajectory and neglect patients accidentally
Deaths don’t occur according to a .
programmed timetable
What is one agonizing ethical choice health-care workers often face?
when do you stop fighting/putting off death
What is a palliative care service?
hospital or home based end-of-life care service, focus on comfort & pain control
What does a palliative care service offer?
can still get cure-oriented treatments, but as illness becomes more terminal, focus shifts to symptom managment
What is the underlying philosophy of the home hospice movement?
death is a natural process and should happen in a natural painfree way
Who are death doulas?
use calming techniques and coach people through death
How do hospice workers feel about their job? What do they see as their role?
the most meaningful job in the world
Who qualifies for hospice care? In the United States, who pays for hospice care?
physician must certify person is within 6 months of death
T or F: The U.S. hospice movement is dwindling.
false
What is the home hospice experience like for caregivers?
fear of addiction to painkillers, overdose
What are some barriers to hospice care?
people don‘t want to accept reality of death
doctors avoid end-of life-discussions
lack of family involvement & support
What unique concerns may ethnic minority individuals have about hospice?
a disregard or cultural death-traditions or religious beliefs
What are advance directives and why are they important?
document with life prolonging treatment instructions for if patient becomes too ill to communicate
What does a living will address?
mentally competent people leave instructions for life-prolonging procedures if they’re incapacitated
How does a living will compare to a durable power of attorney for health care and a DNR order or DNH order?
Durable Power of Attorney: designate specific person to make end of life desicions
DNR: sick person mentally impaired, usually initiated by Dr
DNH: specific to nursing homes, mentally impaired resident is NOT hospitalized
Why might there be resistance to filling out an advance directive?
people don’t want to face death
How can culture affect a person’s desire fill out an advanced directive?
Blacks and Hispanics trust futures to families and rely on their faith
What are some issues with these documents?
subject to misinterpretation, jealously over who is chosen to carry out wishes
What is the most useful advance directive?
durable power of attorney
What is the difference between passive euthanasia and active euthanasia?
passive: eliminating anything external keeping patient alive or comatose
active: actively helping a person die
In what countries is active euthanasia legal?
Netherlands, Belgium, Luxembourg, Columbia, Canada, Spain
Where within and outside of the United States is physician-assisted death legal?
Switzerland, Germany, Australia, California, Colorado, the District of Columbia, Hawaii, Montana, Maine, New Jersey, Oregon, Vermont, and Washington State
What is physician-assisted death?
active euthanasia, Dr. persribes fatal medication to terminally ill patient
Why is there considerable resistance to making active euthanasia and physician-assisted death legal?
killing is ‘playing God’
could cause inappropriate killing
What is age-based rationing of care?
expensive life-sustaining technology should NOT be used on old-old people
What are the arguments for age-based rationing of care? Do you agree?
death is near and inevitable, care is expensive
Across the lifespan, what outweighs everything else?
attatchment