RA 9288

Republic Act no. 9288

An Act promulgating a comprehensive policy and a nationalbsystemnfor ensuring NEWBORN SCREENING

Newborn

early identificationbof congenital metabolic disoreder that will cause mental retardation

Newborn Screening paper

contain blood where place in

Lateral Plajtar

srface of the heel , area of collection

Common Disorders (enumeration)

Congenital Adrenal Hyperplasia
Congenital Hypothyroidism
Galactosemia
Phenylketonuria
Glucose-6-phosphate Dyhydrogenase Defficiency
Maple Syrup Urine disease

Congenital Adrenal Hyperplasia

deficiency in the ezyme that are involve in the synthesis of the cortisol and aldosterone

21-Hydroxylase

Deficient enzyme in CAH

Congenital Hypothyroidism

Thyroid gland decrease

T3-triiodothyronine
T4-tetraiodothyronine

insufficient enzyme in Congenital Hypothyroidism

Galactosemia

Excess of galactose to simple sugar

Galactose-1-phosphate uridyl transferase

missing enzyme in galactosemia

Phenylketonuria

converts phenyl alanine to deficient enzyme tyrosine phenyl alanine

Phenyl Alanine Hydroxylase

missing enzyme in Phenylketonutia

Maple Syrup Urine Disease

accumulation of branched chain in blood

3 amino acid

leucin,isoleucin,valine

Glucose-6-phospahate Dehydrogenase Deficiency

ior favism

Drugs for G6PD

favabeans
sulfonamides
aspirin
premaquine

National New born screening Week

1st week of october

Comprehensive New born screening System

coolection ang biochemical screening of blood samples taken from new born

Follow up

monitoring of new born w/ heritable condition for the purpose of ensuring that new born patient complies fully w/ the medicine of dictory conditions

Health Institutions

means hospitals or health centers

Healthcare Practitioner

means physician, nurse or midwives

Heritable condition

condition result from mental retardation, physical deformity or death if left undetecteda and untreated

NIH

National Institute of Health

Newborn

means child from the time complete delivery to 30 days old

Newborn Screening

process of collecting few drops of bood from the newborn onto an appropriate collection card

Newborn Screening Center

facility equipped w/ a newborn screening laboratory

Newborn Screening Reference Center

cetral facility at the NIH that defines testing and follow up protocols

Parent Education

various means of providing parents or legal guardians information about newborn screening

Recall

procedute for locating a newborn w/ a possible heritable condition for purposes providing the new born

Treatment

the provision prompt, appropriate and adequate medicine, medical and surgical management of dietary prescription to a newborn for purposes of traeting

Article 3

Newborn Screening

Article 2

Definition of Terms

Article 1

General Provisions

Performance of newborn screening

24hrs. of life, 3day requirement but must be tested by 7 days age

Sec. 8 Licensing and Acreditation

Department of Health and Philippine Health Insurance Association

Department of Health and Philippine Health Insurance Association

require institutions to provide newborn screening services for licensure or accreditation

Article 4

Implementation

Sec 10 Lead agency

Department Of Health

Committee Composed

8 members
-Secretary of Health as Chairman
-Executive Director of the National Institute of Health as Vice Chairperson
Members
-Undersecretary of Department of the Interior and Local Government
-Executive Director of the Council for the Welfare of Children
-Director of Newborn Screening Reference Center
- 3 representatives (pedia,obste,endo)

Vice Chairperson

Executive Director of the National Institute of Health

Chairman

Secretary of Health

Sec 16 Newborn Screening Fees

4% Department of Health center for Health Development
4% Newborn Screening Centers
4% National Institute of Health Newborn Screening Reference Center

Fee for Newborn Screening

550

Article 5

Final Provisions

President of the Senate

Franklin Drilon

Speaker of the House Representatives

Jose De Venecia Jr.

Secretary of Senate

Oscar G. Yabes

Secretary General House of Representatives

Roberto P. Nazareno

President of the Philippines

Gloria Macapagal-Arroyo

Approval Date

April 7, 2004