CHILDREN WITH SPECIAL HEALTH CARE NEEDS

Any child that has an illness or condition for which they need extra health care and support services?

Child with special health care needs

Children with special health care needs may have a serious or long lasting? (3)

1. Physical condition

2. Intellecutal or developmental disability

3. Behavioral or emotional condition

What 6 diseases/conditions have a higher prevalence in Wisconsin than the national average?

Severe headaches

Anxiety

Depression

Speech/language disorder

ADD/ADHD

Fetal Alcohol

As many as ____ -_ _____% of school-aged childrenexhibit depressive symptoms within ___ months after the diagnosis of a medical illness

4-14

3

Medical conditions that limit physical activity orthat require frequent absences have also been associated with ______ problems including being what two things??

social

ignored or teased by peers

What is white coat syndrome?

What happens because of it?

Chlidren learn to associate pain/difficlty testing when they see a person with a white coat on

They attempt avoidance behaviors to try and prevent medical interventions

Behavior changes are ______ rated, and can be correlated with _____ development at the time of eval

Age

Cognitive

Older children tend to have better ____ skills but prefer to not what

Coping

Talk about their illness

______ are the bases from which children learnto interact with others; therefore, children's first experiences with ______ and ____ are vital to their social-skill development

Families

friends and family

T or F: Only one parent may need to limit work hours to provide care for child with SCHN

F - one or both may need to

________ limitations impact the entire family with children with SHCN

Economonic

T or F: Many parents report feeling exhausted and overwhelmed many times during the life of the child with SHCN

T

T or F: Because more time and energy is spent in dailycare activities, less time is available for otherservices such as recreation and socialization

T

Lack of social interactions cause increased feelings of _________

isolation

_________ enviornments may not be conductive for social gatherings

Home

Concrns about exposures to other illnesses may limit ______ outside of the home

Increased siginficantly with what disease

mobility

COVID-19

The major identifying characteristic to the parents may become what?

The exceptionality within the family

Siblings of children with SHCN may feel_______ or ______ , resulting in behaviors many label _______ .

ignored or un-important

"crying out for attention

Children _____ than the child with a SHCN appearto have more difficulties coping with the change in family dynamics than children who are born _____

older

before

Cancer History and Stats:

___ children in the US are diagnosed with cancer each day

One in every _____ children will develop cancer prior to the age of __

Cancer remains the #__ disease killer of children.(___% will die)

46

330 - 20

1 - 35

Because of advances in treatment, approximately 8 of every 10 children treated forcancer survive at least ___ years

5

T or F: many of the cancer treatments result in long-term health problems

T

The late effects of cancer depend on what 5 things?

Type

Location

Age of child at dx and tx

Childs health before cancer

Genetics

Causes of late effects in cancer are the damage to healthy cells from the _______

treatment

Radiation therapy is used to do what?

Shrink tumors and kill cancer cells

The late effect of radiation therapy depends on: (4)???

1. The dose of radiation

2. The area of body treated

3. The childs age

4. The childs genetic makeup

Complication in surgical treatments for cancer may lead to what?

Physical impairments in gait or other motor functions

T or F: older patients may be more at risk for cancer then younger

F - younger patients are more at risk

Normal brain cells grow quickly when?

First several years of life

What type of chemo can cause learning disabilities

Intrathecal (directly into spinal fluid)

Cancer Treatment Effects on the Brain:

Lower ______ and ______

Problems with ______ and ______

Poor __________ _______ ______

Slowed _______ over time

_______ problems

IQ scores & academic achievement.

memory and attention

eye-hand coordination

development

Behavior

Cancer Treatment Effects on the Eyes:

_____ or ___

eye _______

Discolored _____

Poor _____

______ eyelid

Tumors of the _______

Poor _______ vision

_____ sensitivity

Dry or water

Irritation

Sclera

vision

drooping

eyelid

night

light

Cancer Treatment Effects on Hearing:

_______ in the ears - what is this called?

Trouble hearing words when _______ noise is high

________

_____, _____ earwax

Ringing (tinnitus)

background

Dizziness.

Hard, crusty

Cancer Treatment Effects on Growth and Development:

Overall _______/_______ reduction

Localized growth ________

_______- changes resulting in growth abnormalities

height/weight

attenuation

Hormonal

Cancer Treatment Effects on the Thyroid?? (2)

Hypothyroidism

Hyperthyroidism

Extreme tiredness, dry skin, unexplained weight gain,constipation, slowed bone growth, thinning hair?

Hypothyroidism

Nervousness, weight loss, trouble sleeping, diarrhea,enlarged thyroid gland (goiter)?

Hyperthyroidism

Cancer Treatment Effects on Muscle and Bone:

_______ growth of body parts

Bone ____

Joint _____

______- changes.

_____ bones that can break _____ - what is this callled? .

Decreased _____ in the bones

Unequal

Pain

stiffness

Gait

weak - easily -> osteoporosis

calcium

Cancer Treatment Effects on Sexual Development of Males:

sperm production is _____ likely to be affected than hormone (testosterone) production

More

If testosterone levels affected, then failure to _______ puberty, _______ or ______ puberty, decreased _______ , and ________ can be the result

complete

delayed or accelerated

sexual desire

impotence

Cancer Treatment Effects on Sexual Development of Females:

Damage to ovaries may result in reduced _______/________, delayed ______ and start of ______ , ______ menstrual periods, early ______

fertility/sterility

puberty

menstruation

irregular

menopause

Damage to female hormone production from cancer tx can cause alterations in the health of what?

bones, heart andother body parts

Damage to the uterus from cancer tx can ______ its size and its ability to _____. This increases risk of _______, ______ birth weight babies and ___ birth

reduce

stretch

miscarriage

Low

premature

Cancer Treatment Effects on Heart/CV System:

__________ - cause direct heart muscle injuries at all doses

Also affects _____

Radiation may affect both the _____ and ______ .

Most heart related damage is not ______

Anthracyclines (doxorubicin)

rhythm

muscle and rhythm

significant

Cancer Treatment Effects on Lungs:

Decreased lung ________

______ of breath, which may be worse with ______ .

Chronic ____ cough.

_______ _______ (scarred and thickened lung tissue)

_______ (inflamed lung tissue).

_______ lung infections.

Increased risk for _______ ______ later in life

volume

Shortness, exercise

dry

Pulmonary fibrosis

Pneumonitis

Increased

lung cancer

Cancer Treatment Effects on Teeth (5)??

Microdontia (small teeth)

Missing teeth or delayed tooth development

Abnormal tooth enamel

Increased caries risk.

Short roots of teeth

Cancer survivors are at an increased risk for _____ -related cancers

Examples?

Age

prostate, breast, colon