R.A. NO. 9288 - NEWBORN SCREENING ACT OF 2004

RA NO. 9288 - Newborn Screening Act of 2004

An act promulgating a comprehensive policy and a national system for ensuring newborn screening

National Institute of Health (NIH)

Is the technical arm in the implementation of newborn screening and other concerned partners

National Institute of Health (NIH)

Reference Center for Newborn Screening

Copy of Refusal documentation

When the parent or legal guardian refuses for newborn screening on the grounds of religious beliefs, what kind of documents shall be made out of the newborn’s medical record?

Religious beliefs

Parent or legal guardians can refuse to newborn screening in what grounds?

24 hours of life but not later than 3 days

Collection time for Newborn Screening

NICU newborn

Exempted from the 3-days requirement but must be tested by 7 days of age

7 days of age

NICU newborns may be exempted to the 3-day requirement, but they must be tested by:

Lateral plantar surface of heel

SPECIFIC PLACE to puncture when using heel prick method

Heel prick method

A method used for newborn screening wherein few drops of blood are taken from the baby’s heel

Special absorbent filter card

Small drop of blood is collected for newborn screening and is blotted on:

4 hours

Blood must be dried for _____ before sent to Newborn screening center

Dried blood spots

Sample for Newborn Screening Test (must be exact answer!!)

Whole blood

Where is the dried blood spots derived from?

immediately within 4 hours

If (+) result for Newborn Screening, result must be released:

7 working days

If (-) result for Newborn Screening, result must be released ____ after receipt in NBS Lab

Lifetime Management

All of the congenital metabolic disorders require

2 NSC in Luzon

2 in Visayas

1 in Mindanao

Establishment of NSCs, depends on the overall demand in the country:

Comprehensive

Integrative

Sustainable

According to R.A. 9288 - Section 2: Declaration of Policy, the state shall institutionalize a national newborn screening system:

(characteristics of newborn screening)

8 members

According to R.A. 9288 - Section 11: Advisory Committee on Newborn Screening, how many members is needed for the committee?

National testing database

Case registries, training, technical assistance

Continuing education for laboratory staff

According to R.A. 9288 - Section 13: Establishment of a Newborn Screening Reference Center, NIH shall establish a NBS Reference Center with: (exact answers only…)

Screening

Management

Follow-up

Diagnosis

Quality Assurance

Components of the Philippine Newborn Screening System

April 07, 2004

Date of Approval of R.A 9288

Gloria Macapagal-Arroyo

President who approved the R.A 9288

Department of Health (DOH)

Lead agency in implementing this Act.

Department of Interior and Local Government (DILG)

• coordinate with the NIH Newborn Screening Reference Center for:

  • Accreditation of Newborn Screening Centers