5. THEORY OF ILLNESS TRAJECTORY (Carolyn L. Weiner & Marilyn J. Dodd)

CAROLYN L. WEINER AND MARILYN J. DODD

THEORY OF ILLNESS TRAJECTORY (PROPONENTS)

San Francisco in the year 1930

Weiner was born in

1972 - University of California, San Francisco

Earned her Bachelor's Degree in interdisciplinary social science

1978

remained in UCSF to pursue doctorate in sociology

1999

accepted the position of assistant research sociologist in UCSF

2000

the year she led to a book "The Elusive Quest"

Vancouver, Canada in the year 1946

Dodd was born in

1971 - 1973

qualified as a registered nurse after studying at Vancouver General Hospital in British Columbia, Canada.

1971 - 1973

studied and graduated her bachelor and masters degree in nursing from University of Washington.

1977

doctorate in nursing in Wayne State University

accepted the position of Assistant Professor in UCSF

the patient

in the illness trajectory, _________ is the central worker

UBEI

Uncertainty Abatement work

Biographical work

Everyday-life work

Illness-related work

TYPES OF WORK PERFORMED BY PATIENTS AND FAMILIES

Uncertainty Abatement work

Diagnostics, symptom management, care regimen, and crisis prevention.

Everyday-life work

Activities of daily living, keeping a household, maintaining an occupation, sustaining relationships, and recreation

Biographical work

exchange of information, emotional expressions, and the division of tasks through interactions within the total organization

Illness-related work

Activities enacted to lessen the impact of temporal, body, and identity uncertainty.

UNCERTAIN TEMPORALITY

Taken-for-granted expectations regarding the flow of life events are disrupted. A temporal disjunction in the biography

UNCERTAIN BODY

Changes related to illness and treatment are centered in one's ability to perform usual activities involving appearance, physiological functions, and response to treatment.

UNCERTAIN IDENTITY

Interpretation of self is distorted as the body fails to perform in usual ways, and expectations related to the flow of events (temporality) are altered by disease and treatment.

PACING

resting or changing usual activities

BECOMING "PROFESSIONAL" PATIENTS

Using terminology related to illness and treatment; directing care; balancing expertise with supermedicalization

SEEKING REINFORCING COMPARISONS

Comparing self with persons who are in worse condition to reassure self that it is not as bad as it could be

ENGAGING IN REVIEWS

Looking back to reinterpret emergent symptoms and interactions with others in the organization

SETTING GOALS

Looking toward the future to achieve desired activities

COVERING UP

Masking signs of illness or related emotions; Bucking up to avoid stigma or to protect others

FINDING A SAFE PLACE TO LET DOWN

Establishing a place where, or people with whom, true emotions and feelings could be expressed in a supportive atmosphere

CHOOSING A SUPPORTIVE NETWORK

Selective sharing with individuals deemed to be positive supporters

TAKING CHARGE

Asserting the right to determine the course of treatment