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Intersectionality theory
Person’s social positive w/in the interface of micro-level personal identities and macro level sociocultural patterns
Personal Identity: Age, race, sexual orientation, physical ability, education
Sociocultural variables: sexism, racism, power, resources, public policies.
Socioeconomic status
Social standing or class of a group or individual
Combination of education, income, or occupation
What is the link between socio-economic status and health
Implicit biases, gaps in communication, structural inequities, limited access to healthcare.
Race and ethnicity in Healthcare
People of different races respond to medical care differently.
Distrust of medical establishment
High risk, low knowledge
Limited access to medical facilities
Underrepresentation
Concordance: Perception of similarities between self and other based on culture and ethnicity.
Patient-caregiver communication: Stereotypes affect physician’s judgement
Moral theories
Systemic accounts of moral life. These strive to:
Provide framework on right and wrong
Develop general principles for action, behavior, and character based on our values
Provide account of right & good
Action
Right & Wrong
Character
Good & bad
Language gap:
Growing
These gaps increase a patient’s risk factor
Need for interpreters
Gender & Sex
Sex: set of biological attributes primarily associated with physical and physiological features
Gender: Socially connected identities, roles, expresssions, & behaviors of women, men, or gender diverse people.
Assumptions of gender
Institutional notions of gender are largely heteronormative
Risks of silence
Fear of judgement
Less info/counsel
Denial of visiting priveledges/info during health crises
Suggestions for health professionals to build trust
Proactive, feel comfortable with topics
Use preferred pronouns and names
Paperwork changes
Don’t ignore sexual identity issues
Disabilities
Largely treated as central or tragic
Regarded as heroic or tragic
People with invisible disabilites may encounter unique difficulties
Ways that individuals with disabilities are marginalized
Words
The word disability is accepted and preferred
Intrusive questions
Avoidance of sensitive topics
Treated as childlike, overhelping
Ableist language
Terms and expressions that present disabilities in a negative way
Phases of illness conceptualization for children
Prelogical conceptualization
Concrete logical
Formal logical
Prelogical conceptualization
Define illness as caused by tangible external agent
Concrete logical
Differentiate between external causes and internal manifestation
Formal Logical
Envision complete influence of agents not readily seen
Ageism
Discrimination based on a person’s age
Seen in older adults
Social beliefs about growing older have implications for identity
Notion that feminity is beautiful
Idea that getting older is a process of decline
Ethnocentrism
Attitude that ones culture is better than others
Culturally sensitive approach
Create health messages responsible to values and beliefs of culture
Health as organic, germ theory
Disease is caused by microscopic organisms
Organic model of health: Assumes that health can be understood in terms of presence or absence of physical indicators
Limitations:
Inability to account for conditions that can’t be physically verified
Excludes social factors
Health as a harmonic balance
Health is a sense of overall well-being equilibrium
Many cultures regard mind and body as linked
Therapeutic value of living in harmony with nature
Biophilia hypothesis
Thermal metaphors of hot and cold
Conception of health in terms of energy
Karma: Energy from deeds in past
Yin and Yang: Connected get opposite elements
Qi: Central life energy
Making sense of health experiences
Health conditions as a social asset
Health conditions as a social liability
Belief that illness is a curse
Stigma: social rejection in which a person is treated as dishonorable is ignored
Social roles & Health
Sex, gender, and health: Gendered cultural expectations can be restrictive
Female identity and health
Assumed to be emotional
Assumed that are less powerful
Domestic and sexual violence
Male identity and health
Expected to be stoic and strong
Pressure to be a provider
Homicides
Illness and coping mechanisms
Metaphors on responding to illness
Battle metaphor of ill health
Scientific perspective
Death represents defeat
Making peace with the body
Evidence to support both
Roles
Set of expectations that applies to people performing functions in the culture.
Caregivers as mechanics, patients as machines
Focus on finding physical abnormalities and fixing them
Does not encourage emotional communication
Patients as children and caregivers as parents
Doctors issue directives that patients are expected to obey
High power distance (defer to those of greater status)
Caregiver as spiritualists and patients as believers
A religious like faith in caregivers
Placebo effects
Providers and consumers
Patients/shoppers pay caregivers to provide info and carry out wishes (consumerism)
Holistic care
Emphasizes overall well-being (Physical and emotional) w/ an emphasis on maintaining health
Ex. acupuncture, meditation, chiropractic
Based on simple principles
More personal, focused on health and maintenance
Disadvantages of Holistic medicine
Many supplements not thoroughly researched
Scams
Environmental threats
Lack of communication
Coping
Process of maintaining stressful situations
Involves 2 efforts
Problem solving
Emotional adjustment (adapting to what cannot change)
Sense of control
Health self-efficacy: A person’s belief that they can manage their labels
Internal locus of control: Belief that people control their own desires
External locus of control: More fatalistic
Crisis
Occurrence that exceeds a person’s normal coping ability
Normalcy
Sense that things are comfortable, familiar, and predictable
Social support:
Behaviors that communicate that a person is valued and cared for
Direct-effect model
Social support is helps buffer people from negative effects of stressful experiences.
Link between social ties and good health: Learn from others, physical benefits, support decision making.
Types of social support
Instrumental
informational
Esteem
Emotional
Support
Instrumental Support
Performing tasks and favors
Informational support
Providing information
Esteem support
Make a person feel valid/competent
Emotional Support
Acknowledge/understand what a person is feeling
Social network theory
We experience strong ties with people whose social networks overlap w/ ours & weak ties w/ people whose social networks don’t overlap as much
Oversupport
Excessive/unnecessary help
Overhelping: Too much instrumental assistance
Overinforming: Forcing info
Family caregiver profile
Avg. Age: 40s
2/3rds are women
Stress and burnout
Stress, exhaustion, emotional strain, feeling unprepared, jeopardize own health
End of life experiences
Life at all costs
Death as the enemy of life. Life = victory. Death = defeat. Medicine as savior.
Death with dignity.
Maintain dignity, comforting surroundings w/ loved ones. A good death.
Hospice
Org. that provides support/care for dying individuals and their families
Provide palliative care (keep person comfortable and fulfilled at end of life
How do deliver bad news
Foreshadow, appropriate setting, acknowledge emotions, follow up
Advanced Care Directives
Describe in advance the medical care someone wants to receive if they become too ill to communicate
E-Health
Involves use of tech to transcend geographical distance in promoting good health
M-Health
Involves the use of devices such as mobile phones, tablet computers, and personal digital assistants.
Health apps, health monitoring, mental health.
SMS: Mobile health like texts and tweets.
Telehealth:
Uses tech to facilitate long distance healthcare, education, admin teamwork, disaster responses.
Telemedicine
Subset of telehealth that offers clinical services to patients at a distance
Advantages of telehealth
In-Depth info, practical/timely/meets goals, social support
Disadvantages of telehealth
Unreliable information, conflicting information, information overload
Digital divide in healthcare
Low education and low income groups have more restricted access to communication technologies
Telemedicine
Two-way, real time, interactive communication between the patient and physician or practicioner at the distant site. Is a place for conventional hospitals and virtual care.
Patient portals
password protected websites
Telehealth Advantages
Accepts to care and communication
Efficiency and accessible information
Disadvantages of telehealth
Restricted communication
Liability and privacy concerns.