Sensory Processing Guest Speaker: TRUST

What is TRUST?

Transforming Research: Understanding Sensory Experiences in ASD, Stakeholders Working Together

What were the TRUST Project Objectives?

Develop a sustainable capactiy building alliance of stakeholders with expertise in sensory processing

Determine research priorities related to sensory processing

Produce Resources and distribute recommendations

Develop a plan for sustainability and examine long term impact

What different groups made up the TRUST project?

Project Management Team

Steering Committee

Stakeholder Groups

Community Partners

What people part of the Project managment team?

Co-leads, project coordinator, graduate students and budget and financial support

What people are a prt of the steering committee?

Co-leads, project coordinator, other representatives from stakeholder groups and community partners

Who is part of the stakeholder groups?

Autisitic individulas, family members and caregivers, researchers and clinicians and providers

Who are part of the community partners?

5-Eleven Hoops

SPAN

Autism Speaks

What were the themes of the barriers and faciliators in the TRUST projecet?

Perceived Value of the Topic of Study

Logistics of Study

Communication During Recruitment and Enrollment

The Study Environment

Communication and Participation During the Study

Representation

Compensation and Recognition

What were the barriers of TRUST study?

Study designs which include interacting with the child in a space where the parent is unable to visibly observe

Not providing enough time for clinicians to engage in collecting data and navigating across systems

Requiring participants to dedicate a large amount of time to the study

Location of the study site in relation to the home

When parents are not permitted to

What are the facilitators of the TRUST study?

Providing opportunities to participate virtually

Offering the ability to complete study-related tasks on the participant’s own time

Opportunities for anonymity

Allowing parents to bring their other children and offer babysitting

Providing support to individuals when they are completing registration, paperwork and collecting documents needed to participate

What were the commonalities of the stakeholder groups when developing their own set of priorities related to sensory processing?

Sensory processing issues across the lifespan

Services, interventions and strategies

Sociocultural infuences

Environmental Adaptations and modifications