Data Privacy and Security
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6 Terms
What is an Institutional Review Board?
-Composed of scientists, non-scientists, and community members
-Conduct ethical reviews of research projects to protect welfare of participants
What requires IRB review?
All research investigating biospecimens or PHI of human subjects
What does the Belmont Report state?
Research must…
-Minimize risk
-Utilize already-existing procedures
-Obtain (and document) informed consent
-Recruit equitably
-Protect confidentiality
Who oversees data protection?
HIPAA
FERPA
GDPR
Local jurisdiction’s laws
What are some policies for information security?
-Encryption on email, flashdrive, etc.
-Protection from malicious software
-Use work devices
-Passwords
What are some policies for info storage and disposal?
-Shredit
-Log out fully
-Ensure cloud storage is encrypted
-Physical safety (Locks)
-Ensure there is a contract with a storage company (Google) for HIPAA compliance
Note 
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