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Privacy
broad umbrella term
four ways privacy is related to healthcare:
physical seclusion (zone of personal space)
protection of personal information
protection of one’s personal identity
ability to make choices about interference
Confidentiality
falls under privacy (narrower in scope)
synonymous with informational privacy
we have a duty to not disclose information that a patient has conveyed to us
related to autonomy:
the ability to act on your decisions freely and independently
synonymous with decisional privacy
Ethical Principles Supporting Privacy and Confidentiality
Beneficence: prevent harm
remove harm
bring upon positive good
nonmaleficence: do no harm
fidelity: be faithful to the patient’s reasonable expectations
autonomy: have the ability to act on decisions freely and independently
veracity: obligated to tell the truth
HIPAA
covered entities: health plans
clearinghouses
healthcare providers who transmit health information electronically
privacy rule: protects pt. PHI while allowing providers to share information to coordinate care
security rule
PHI: individually dientifiable information that is held/transmitted/requested by provider
ex: oral/paper/electronic information
common identifiers (name/address/birthdate/SSN/etc)
health conditions
pt. record
de-identified: not PHI→can be used without authorization (research for quality improvement projects)
minimum necessary principle: use only minimum amount of PHI to share
without authorization:
personal representative: pt. requests it or on behalf of dead person
TPO: treatment/payment/operations
abuse/neglect victims
public health activities
law/court order
with authorization: not for treatment/payment/healthcare operations/without authorization
Privacy Rule Requirements: privacy officer
security officer
notice of privacy protection
access to one’s own record
amend one’s own record
disclosure of limited data sets for research/public health purposes
restriction request
confidential communications request
Security/HITECH rule: requires providers to maintain administrative/technical/physical safeguards for protecting e-PHI (electronic PHI)
administrative safeguards: security official+security plan+workforce training
technical safeguards: user access controsl
audits
encryption/decryption
detect unauthorized access
good password protection
physical safeguards: workstation/device security
transfer/removal/disposal of electronic media
Breach Notification Rule: requires providers to notify HHS if there is a breach of unsecured PHI
breach: impermissible use/disclosure under the privacy rule that compromises the security and privacy of PHI
HIPAA vs. State Law: state laws that are contrary are not effective against HIPAA (federal over state)
Special Privacy Considerations:
mental health:
psychotherapy note requires written authorization to be disclosed
substance use:
2020 CARES act: governs how healthcare providers use and disclose records pertaining to substance use (42 CFR part 2)
substance use consideration under 42 CFR part 2 (not under HIPAA)
SUD records require pt written authorization to disclose
mental health+substance use:
Pts can agree/object to disclosure (doesn’t have to be written) for discussing care information with family members/others (not required by HIPAA)
Provider can make determination if information being shared is in the best interest with family/others
Minors:
An ethical duty to protect the confidentiality of minors within certain limits
Issue is closely tied within consent (vary from state to state)
Fear of disclosure vs. belief in confidentiality is major factor in seeking care
Consent rules:
General medical care:
NJ: married of pregnant→yes
PA: married/pregnant/emancipated/graduated high school→yes
Immunizations:
NJ: No
PA: 11+ y/o COVID 19→yes
Graduated HS/married/pregnant→yes
Sexual assault evaluation:
NJ: 13+ y/o→yes
PA: yes
STI testing/txt:
NJ: yes
PA: yes
HIV testing/txt:
NJ: yes
PA: yes
contraceptive care:
NJ: pregnant/married/ever pregnant→yes
PA: 14+ y/o→yes
Prenatal care:
NJ: yes
PA: yes (parent may be informed)
Mental health care:
NJ: 16+ y/o output (excluding meds)
PA: no explicit policy