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Disability
Socially Constructed phenomenon that results from barriers present in the environment. Barriers can be physical, social, political, and attitudinal.
WHO’s ICF Model of Disability
disability results from interaction between an person and their environment. Disability is possible in all experiences and is the responsibility of all.
Prevalence of Disability in the US
27% of adults
Prevalence of Disability Globally
16% of adults
Prevalence of all types of disability in the US
12.8% cognition
12.1% mobility
7.2% independent living
6.1% hearing
4.8% vision
3.6% self-care
How can poverty increase risk of disability?
malnutrition, inadequate access to education and healthcare, unsafe working conditions, pollution, sanitation, access to safe water
Assistive Technology
Any item, piece of equipment, or product system whether acquired commercially of the shelf, modified, or customized that is used to increase, maintain, or improve functional capability of individuals with disabilities.
Any service that directly assists an individual with a disability in the selection, acquisition, or use of an assistive technology device.
Strategy to reduce disabling influence of environments. Includes devices and services.
5 activities for AT
communication
cognition
mobility
manipulation
vision
5 principles of AT
client-centered
outcome
evidence-informed
ethical
sustainable
Client-centered AT
Using the process of meeting the needs of the user when engaging in relevant activities across necessary contexts
NOT about fitting the person to the technology
We want high rates of adoption
Desired outcome of AT
enablement of participation in desired activities
Device becomes an extension of the person
To achieve the desired outcome, we must understand what the person wants, needs, and is expected to do
3 Facets of Evidence-Informed AT…
Identifies technology that’s most appropriate for the user
Provides necessary training and support
Evaluates the outcome of the technology
Ethical principles in AT
beneficence
non-maleficence
social justice
distributive justice
beneficence
being responsive to the needs of others
non-maleficence
avoid causing harm, educate clients on devices
social justice
fair division of resources, opportunities, and privileges in society
Distributive Justice
fair allocation of resources, benefits, and burdens among members of a society
Sustainable AT
Provide services in a timely manner and in a way that they can be used continuously - depends on economy and resources
Human-Activity-Assistive Technology (HAAT) Model
describes someone doing something in a context using AT; evolved parallel to the ICF model
Dynamic nature of the model reminds us that these elements interact and influence each other, and the degree of influence changes.
4 aims of ICF Model
Framework for describing and organizing information on disability to:
1. To provide a scientific basis for understanding and studying health and health-related states, outcomes, determinants, and changes in health status and functioning
2. To establish a common language for describing health and health-related states to improve communication between different users – healthcare workers, researchers, policy-makers, and the public, including people with disabilities
3. To permit comparison of data across countries, healthcare disciplines, services, and time
4. To provide a systematic coding scheme for health information systems
Main 3 elements of CMOP-E
Person - includes spiritual
Environment
Occupation
Main 3 elements of PEO-P
person - includes spiritual
environment
occupation
Main 4 elements of HAAT model
human - includes novice/expert
context
activity - cognition, communication, manipulation, mobility
assistive technology - the enabler for humans doing activities in context
4 components of assistive technology
human technology interface (HTI)
processor
environmental sensory
activity output = result
Is abandonment of devices a greater problem for publicly or privately funded devices?
publicly
4 primary applications of the HAAT model
product research and development - preparatory studies and lived experiences
product utility vs usability
client assessments
outcome evaluations - short and long term
utility
how well the device meets the intended function
usability and its 6 components
how well the user can access the device’s functionality. Includes 6 components:
learnability
efficiency
memorability
errors - incorrect actions the user makes or actions that are omitted that limit or prevent a device from functioning as intended
satisfaction
ease of use
learnability
Part of usability. All functions of the device are easily learned. also, effectiveness of soft technologies to support learning.
efficiency
Part of usability. The user meets the intended goals of device use in a reasonable amount of time with minimal frustration and effort
Memorability
Part of usability. How the device is used can be easily remembered, particularly when a function has not been used over a long period of time. EX: programming a particular function on a smart phone. When the programming process is easily retained or retrieved from memory, this aspect of usability is satisfied.
Errors
Part of usability. Incorrect actions the user makes or actions that are omitted that limit or prevent a device from functioning as intended. Important that errors can be recognized, that the effect of an error is minimal, that feedback is given to signal an error is made, and that the user can repair an error made.
Satisfaction
Part of usability user has a positive experience when using the device
Ease of Use
Part of usability. A device must be simple to use. Minimizing the
number of steps required to generate the desired output.
Name 3 models for AT assessment and service delivery
HAAT
Matching Person and Technology (MPT)
Comprehensive Assistive Technology (CAT)
accessibility
capability of a device to allow use by individuals with disabilitiesa
assistive technology
broad range of devices, services, strategies, and practices that are conceived and applied to ameliorate the problems faced by people with disabilities
Body structures and functions
the components of the ICF that identify physiological functions of body systems, including mental and cognitive functions
Context
portion of the HAAT model that describes the influence of physical, social, cultural, and institutional environments or contexts on the access to, service delivery, and use of AT
Distributive justice
principles designed to guide the allocation of the benefits and burdens of economic activity
Ethics
a formal code of conduct that guides behavior in different situations; includes a professional code of ethics
Everyday technology
pervasive technology that facilitates everyday tasks and activities – remote controls, microwave ovens, smartphone apps
Evidence-informed
practice and service delivery that’s informed by clinical and research evidence
Free and appropriate public education
right to an education of every child with a disability; established under the US individuals with disabilities education act (IDEA
High technology devices
devices that are expensive, often complex, difficult to obtain, and difficult to make
Impairment
any loss or abnormality of psychological, physical, or anatomical structure of function
Low technology devices
devices that are simple to use, easy to produce, and easy to obtain
Technology Options
Any item, piece of equipment, or product system whether acquired commercially off the shelf, modified, or customized that is used to increase, maintain, or improve functional capabilities of individuals with disabilities
Telephones were originally used for what population?
Hard of Hearing
Mainstream AT
Closed captioning
Voice recognition
On-screen keyboards
Speech synthesis
Digitized speech
Word prediction
Screen enlargement
Wearables
Universal Design
design of products and environments to be usable by all people to the greatest extent possible, without the need for adaptation or specialized design
7 Components of Universal Design
Cost
Flexibility
Simple
Tolerance for error
Low effort
Size and space
Information
Examples of Mainstream public building accomodations
Sidewalk curb cuts
Automatic Doors
Lower buttons on elevators
Enlarged bathroom stalls
Commercially available devices
devices that don’t increase the cost of the product, they are already manufactured with specialized features
EX:
computers, smart phones with apps, smart watches, cars with blind spot monitoring or push-to-start, vegetable peelers, suction items
higher tech: wheelchairs, scooters, seating systems, speech generating devices, switch controls.
modified adapted commercial technology: low vision, cognition, and functional limitations
Hard technology
refers to the actual, tangible device, such as computer hardware, an AAC device, a Braille reader, or a mobility device
soft technology
less tangible aspects that support the use of a device
including other people, written or auditory materials, and computer software
involve decision making, strategies, training, concept formation, and service delivery that are used in R&D, when making a product recommendation, and activities involved when learning to use the device
4 aspects of Assistive Technology (according to HAAT model)
human technology interface
processor
environmental sensor
activity output
human technology interface
forms the boundary between the human and the AT. 2-way interaction.
Processor
links the HTI and the activity output. Translates information and forces received from the human into signals that are used to control the activity output. Interprets and formats external data from the environmental sensor so they can reach the user via HTI.
environmental sensor
detects external environmental data
activity output
cognition, communication, manipulation, or mobility
activity analysis questions
why?
how? - independent or dependent
temporal aspects? - frequency? time required for independent completion? time required for assisted completion?
where?
what other activities does this support?
What 5 body functions should an OT assess when doing an activity analysis for AT?
hearing
vision
cognition
neuromuscular
voice
What are the differences between how novices and experts interact with technology?
Experts take more risks.
Experts stretch the way a device is used.
Experts use less-conscious effort to control AT.
occupational performance
physical, sensory, cognitive, communication, and affective. Habitual tasks can be done without much conscious attention.
Self-efficacy
personal sense of how well one can perform an activity in an anticipated situation
Motivation
from internal and external sources can promote higher occupational performance
Self determination
affects whether someone can perceive themselves as capable of engaging in an activity and completing it with a degree of competence.
the opportunity to make a choice on how and when daily functions are carried out.
Occupational satisfaction
perceived level of performance. The ability to choose the occupation and control the context results in greater satisfaction. Changes in skill level can affect satisfaction! Social and cultural contexts impact satisfaction
Occupational engagement
the degree to which a person is engaged with or involved in a particular occupation. Interest is linked with engagement.
Co-occupation
an occupation in which 2 or more people are involved and cannot be done by one person alone
Operational competence
ability to use AT for its intended purpose
Strategic competence
more subtle elements of using an AT device – soft technology
Social competence
for certain technology, knowing when things are appropriate or not appropriate. EX: with speech AT, knowing when certain words are appropriate and when they are not
Linguistic competence
AT devices sometimes require an increase in vocabulary to explain how they work and what they do
Context in the HAAT model
where the human carries out activities; can determine factors in whether the person successfully uses an AT system.
Microenvironment
closest, most intimate environments in which a person functions – home, school, or work. The person and their abilities are known, rules are defined, and rules/expectations are understood.
Meso environment
environments where a person functions less frequently. Includes community centers, shopping malls, and churches.
Macroenvironment
broader social and cultural contexts that impose a legislative and moral behavioral framework on the person
Physical context
physical attributes of the environment that enable, hinder, or affect performance of daily activities, either with or without AT. Limits individuals with disabilities from occupational engagement because they can’t access places, materials, or people to do so.
wayfinding, physical safety, temperature, light and sound
Potential modifications to the physical environment
declutter
signs with braille
signs with high contrast
signs that are simple to understand
Light’s 4 competencies in his model of human activity
occupational competence
strategic competence
social competence
linguistic competence
institutional context
larger organizations within a society that are responsible for policies, decision-making, and procedures. Funding at a state or provincial level. Policies at more local levels, such as municipalities, school boards, healthcare institutions, or other community agencies.
Rehabilitation Act of 1973
Established reasonable accommodation
Amendments make provisions for AT! require that each state include provisions for AT within its vocational rehabilitation. Requires provisions AT in IEP as needed.
Section 504: nondiscrimination based on disability for federally funded programs
Section 508: ensure access to electronic office equipment for for federal employees.
ADA - 1990
Prohibits discrimination based on disability in employment, state and local government, public accommodations, commercial facilities, transportation, and telecommunications.
Title I: employment = reasonable accommodations for employees, including AT.
Title II: state and local government agencies + transportation = equal opportunity to benefit from all services and programs
Title III: public accommodations ** does not mention AT
Title IV: telecommunications = phone and TV access for people with hearing and speech disabilities
· *Requires common carriers to have interstate and intrastate telecommunications relay services 24/7 which allows callers to communicate if they have disabilities
IDEA
§ FAPE = Free and Appropriate Public Education
§ IEP = individualized education plan
§ 1997 amendment is what included AT!
· Now, devices from sensory aids to AAC devices to specialized computers have been used to provide access to kids
· Lack of local services or lack of funds is NOT a sufficient reason to deny services or devices justified in the IEP.
· If the IEP goals are not met, or if there are differences over what should be include, a fair hearing process may be pursued.
Assistive Technology Act of 1998
§ Supports states’ capacity to address AT
§ Supports investment in technology
§ Supports microloans for AT
§ Title 1: state grant programs
§ Title 2: national activities
§ Title 3: alternative financing mechanisms
§ **primary change: repeal of the provision that allows the law to expire annually.
**applies to all 50 states!
Medicaid
Established in 1965
Primary goal: provide medical assistance to people in need and to furnish them with rehabilitation and other services to help them “attain or retain capability for self care"
Largest funding source for AT.
Income-based eligibility.
Person must be eligible for medicaid, request device, and demonstrate need.
United Nations Conventions on the Rights of Persons with Disabilities
2006
Identifies ethe rights of people with disabilities and the obligations of states parties to the convention to promote, protect, and ensure those rights.
8 Principles:
Respect for dignity
Non-discrimination
Full participation
Respect for difference
Equality of opportunity
Accessibility
Equality between men and women
Respect for evolving capacities
WHO Global Disability Action Plan
2014-2021
Aims to contribute to achieving optimal health, funcitoning, well-being, and human rights for all people with disabilities
Moving barriers and improving access
Strengthen and extend rehabilitation, habilitation, AT, and support services
Strengthening relevant and internationally comparable data to support research
Convention on the Rights of the Child
** Most widely and rapidly ratified human rights treaty in history, but the US is the only country that has NOT ratified this human rights treaty
Article 2 = nondiscrimination
Article 3 = best interests of the child
Article 6 = right to life, survival, and development
Article 12 = right to be heard
Madrid International Plan of Action on Aging
o Signed by 159 governments but is not legally binding, implementation is voluntary
o Adopts a human rights approach, older adults are active agents – NOT PASSIVE beneficiaries of humanitarian and development action
o Lists actions aimed at the maintenance of maximum functional capacity throughout life
Sustainable Development Goal Ideas
o Initially, did not specifically mention disability, however, it was realized it isn’t possible to achieve these goals without considering disability issues.
o In 2008, UN urged states to consider the rights and well-being of people with disabilities
o Ongoing process with technological improvements and the average life expectancy increasingO
Original 8 Sustainable Development Goals in 2000
eradicate extreme poverty and hunger
achieve universal primary education
promote gender equality and empower women
reduce child mortality
improve maternal health
combat HIV/AIDS, malaria, and other diseases
ensure environmental sustainability
global partnership for development
Updated 17 Sustainable Development Goals in 2015
end poverty in all forms everywhere
end hunger, achieve food security, and improved nutrition and promote sustainable agriculture
ensure healthy lives and promote well-being for all at all ages
ensure inclusive and equitable quality education and promote lifelong learning for all
achieve gender equality and empower all women and girls
ensure availability and sustainable management of water and sanitation for all
ensure access to affordable, reliable, sustainable, and modern energy for all
promote sustained, inclusive, and sustainable economic growth, full and productive employment, and decent work for all
build resilient infrastructure, promote inclusive and sustainable industrialization, and foster innovation
reduce inequality within and among countries
make cities and human settlements inclusive, safe, resilient, and sustainable
ensure sustainable consumption and production patterns
take urgent action to combat climate change and its impacts
conserve and sustainably use the oceans, seas, and marine resources for sustainable development
protect, restore, and promote sustainable use of terrestrial ecosystems, sustainably manage forests, combat desertification, and halt and reverse land degradation and halt biodiversity loss
promote peaceful and inclusive societies for sustainable development, provide access to justice for all and build effective, accountable, and inclusive institutions at all levels
strengthen the means of implementation and revitalize the global partnership for sustainable development
Community-Based Rehabilitation
Bottom-up approach to development involving communities.
Believe “a community-based approach helps to ensure that development reaches the poor and marginalized, and facilitates more inclusive, realistic, and sustainable initiative”.
best for low/middle-income countries
main objective: reduce poverty by improving access to health, education, and livelihood opportunities for people with disabilities
poverty is a _______ AND _______ of disability
cause AND consequence
Early Childhood Intervention
ECI is so important!
ECI concerns: efficacy, effectiveness, and cost-justification of intervention.
ECI Challenges:
1) reaching all populations that can benefit
2) ensuring quality in equal standards of provision
3) respecting the rights and needs of children and families - family-focused care.
Employment
Employment rates are significantly lower and unemployment rates are significantly higher among individuals with disabilities
Factors that contribute:
Physical barriers to moving from home to work
Accessing education
Cultural barriers
Attitudinal barriers
Misconceptions
Education
Children with disabilities are less-likely to start school and have lower retention and promotion rates
Convention on the Rights of Persons with Disabilities: urges all parties to remove barriers and provide reasonable accommodation and support services, ensuring that children with disabilities are included in the general education system and not separated in special schools
Several barriers to education of children with disabilities still exist. System-wide problems and school problems!