HIMT 102- Sayles, Chapter 7

Which organization has a certification program for state population-based registries?

North American Association of Central Cancer Registries

Which of the following is an external user of data?

Insurance company

What type of information is typically included in the annual report generated by a cancer registry?

Aggregate data on cases by cancer site, type, gender age, and ethnic group

Which of the following is the information identifying the patient (such as name, health record number, address, and telephone number)?

Demographic data

Cancer registries receive approval as part of the facility cancer program from which of the following?

American College of Surgeons

What is the national database that includes data on all discharged patients regardless of payer?

Healthcare Cost and Utilization Project

A physician is looking for the number of patients diagnosed with a chronic condition related to blood sugar regulation. Which type of registry should be queried?

Diabetes

Which agency is responsible for developing the clinical trials database?

National Library of Medicine

Which type of database collects data on births, deaths, marriages, and divorces, serving as a foundation for analyzing population trends and health outcomes?

Vital statistics database

Which database from the National Health Care Survey uses the patient health record as a data source?

National Ambulatory Medical Care Survey

Primary Data Source

is an original data source where the data are documented or collected by the provider of care.

Secondary data source

Data derived from the primary health record, such as an index or a database

Patient-identifiable data

patient is identified in the data by name, address, date of birth, or social security number.

Aggregate data

include data on groups of people or patients without identifying any patient individually. Examples of aggregate data are statistics on the average length of stay (ALOS) for patients discharged in a particular diagnosis-related group (DRG).

Disease Index

organized by diagnosis code, is a listing of patients discharged from the healthcare organization during a specific period.

Operation Index

is similar to the disease index except that it is arranged in numerical order by the patient’s procedure code(s) using International Classification of Diseases, Tenth Revision, Procedure Coding System (ICD-10-PCS) or Current Procedural Terminology (CPT) codes.

Physician Index

is a listing of cases organized by physician name or physician identification number.

Disease registries

are collections of secondary data related to patients with a specific diagnosis, condition, or procedure

Case definition

Each registry must define the cases that are to be included

Case finding

is a method used to identify the patients who have been seen or treated in the healthcare organization for the specific disease or condition of interest to the registry.

Accession number

A number assigned to each case as it is entered in a registry

Accession registry

A list of cases in a registry in the order in which they were entered

Demographic information

Information used to identify an individual, such as name, address, gender, age, and other information linked to a specific person

Facility-based registry

A registry that includes only cases from a particular type of healthcare facility, such as a hospital or clinic

Incident

An occurrence in a medical facility that is inconsistent with accepted standards of care

Population-based registry

A type of registry that includes information from more than one facility in a specific geopolitical area, such as a state or region

Facility based registries

include cases from a particular type of healthcare organization, such as a hospital or clinic.

Collaborative Stage Data Set

This staging system uses computer algorithms to describe how far a cancer has spread

American College of Surgeons (ACS) Commission on Cancer

has an approval process for cancer programs. One of the requirements of this process is the existence of a cancer registry as part of the program. The ACS standards are published in the Cancer Program Standards (ACS n.d.b). When the ACS surveys the cancer program, part of the survey process is a review of cancer registry activities.

North American Association of Central Cancer Registries (NAACCR)

has a certification program for state population-based registries. Certification is based on the quality of data collected and reported by the state registry. NAACCR has developed standards for data quality and format and works with other cancer organizations to align their various standards sets.

Centers for Disease Control and Prevention (CDC)

also has national standards regarding the completeness, timeliness, and quality of cancer registry data from state registries through the NPCR. The NPCR was developed as a result of the Cancer Registries Amendment Act of 1992. The CDC collects data from the NPCR state registries.

National Cancer Registrars Association

has worked with colleges to develop formal educational programs for cancer registrars. A cancer registrar may become credentialed as an oncology data specialist (ODS) by passing an examination provided by the NCRA’s Council on Certification. Eligibility requirements for the certification examination include a combination of experience and education

Traumatic injury

is a wound or other injury caused by an external physical force, such as a motor vehicle crash, a gunshot wound, a stabbing, or a fall.

Abbreviated Injury Scale

reflects the nature of the injury and its threat to life by each body system. It may be assigned manually by the registrar or generated as part of the database from data entered by the registrar. The Injury Severity Score is an overall severity measurement calculated from the AIS scores for patients with multiple injuries

Medicare Provider Analysis and Review (MEDPAR) File

is made up of acute-care hospital and skilled nursing facility (SNF) claims data for all Medicare claims.

National Practitioner Data Bank (NPDB)

was mandated under the Health Care Quality Improvement Act of 1986 to provide a database of medical malpractice payments, adverse licensure actions, and certain professional review actions (such as denial of medical staff privileges) taken by healthcare organizations such as hospitals against physicians, dentists, suppliers, and other healthcare providers

Incident

is an occurrence in a healthcare organization that is inconsistent with acceptable standards of care. It may also include issues related to professional competence and malpractice payments.

Public Health

is the area of healthcare dealing with the health of populations in geographic areas such as states or counties

National Center for Health Statistics (NCHS)

provides statistical, accurate, relevant, and timely data that help guide actions and policies to improve the health of the American people. The information or data obtained may be gathered through surveys.

Vital Statistics

include data on births, pregnancies, deaths, marriages, and divorces

Clinical trial

is a research project in which new treatments and tests are investigated to determine whether they are safe and effective

Protocol

the list of rules and procedures to be followed

National Library of Medicine (NLM)

The NLM is a bio-medical library that maintains and makes available a vast amount of print collections and produces electronic information resources on a wide range of topics

Health services research

is research concerning healthcare delivery systems, including organization and delivery and care effectiveness and efficiency

Agency for Healthcare Research and Quality (AHRQ

AHRQ looks at issues related to the efficiency and effectiveness of the healthcare delivery system, disease protocols, and guidelines for improved disease outcomes.

Healthcare Cost and Utilization Project (HCUP)

uses data collected at the state level from either claims data or discharge-abstracted data, including the Uniform Hospital Discharge Data Set (UHDDS) items reported by individual hospitals and, in some cases, by freestanding ambulatory care centers.

Medical Literature, Analysis, and Retrieval System Online (MEDLINE)

It includes bibliographic listings for publications in the areas of medicine, dentistry, nursing, pharmacy, allied health, and veterinary medicine

Unified Medical Language System

provides a way to integrate biomedical concepts from a variety of sources to show their relationships