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What is public health informatics
The application of information, science, technology, and data analysis to public health practice, research, and poliymaking
Objectives for public health
-Enhnace surveillance and monitoring
-Support evidence based decision making
-Improve public health planning and resource allocation
-Faciliate communiation and collaboration
Key Milestones
60s: Intro to computer based surveillance systems
70s: Development of electronic reporting systems
80s: Implementation of immunization & birth/defect registries
90s: Expansion of syndromic surveilance and outbreak detection
2000s: Adoption of electronic lab reporting and bio-surveillance
Challenges in public health
-Data quality and standardization issues
-Privacy and security concerns for health data
-integration and interoperability of diverse data sources
-limited funding and resources for tech implementation
-training and capcity building for PH professionals
PH Professionals
PH Informaticians: Experts in health data management
Epidemiologists: Utilize informatic tools for disease surveillance and outbreak investigation
Health and IT specialists: Design and implement PH information systesm
Data scientists: analyze and interpret population health data
Current trends
-Big data analytics for population health
-use of geospatial data for disease mapping/surveillance
-integration of social media for PH monitoring
-mobile health application for monitoring
-application of AI for decision-making
Future directions
-predictive modeling for early disease prediction/prevention
-blockchain tech for secure and decentralized health data exchange
-Interoperability and integration of health information systems
-integration of genomic data for research and surveillance
-Ethical considerations for PH informatics
Definition: Blockchain
A blockchain database stores data in blocks that are linked together in a chain
Collaboration & Partnership in informatics
-collaboration between public health agencies, researchers, and providers
-public-private partnerships for tech implementation
-interagency collaborations for data sharing and interoperability
-international collaborations for global health surveillance and response
Definition: Health Information Systems (HIS)
refere to interconnected technoogies, processes, and resources that enable the capture, storage, management, and exchange of health-related information
Key HIS functions
data collection and storage, clinical documentation, decision supporting, reporting and analysis
Benefits for HIS
improved patient care, enhanced communication, efficient work-flow, evidence-based decision making
Types of sample health information systesm
-electronic health records (EHRs)
-laboratory information systesm (LIS)
-picture arching and communication systems (PACs)
-National notifiable diseases surveillance system (NNDSS)
-Cancer registry systems
-birth and death registration systems (Vital records)
-syndromic surveillance systems
-health information exchange (HIEs)
Definition: Interoperability
refers to the sharing of data and information between different health information systems, enabling them to work together effectively
Importance of interoperability
-facilitates efficient data flow
-comprehensive patient records
-enhanced collaboration
-informed decision-making
Definition: Electronic Health Records (EHRs)
digitial versions of patient's medical records that include comprehensive health information. Provide a longitudinal view of a patient's health across different healthcare sharing for improved care coordination and decision making
EHRs cost and benefits
-significant initial investment to transition from paper to digital records
-staff resistance and workflow disruption
-can yield a positive financial return and improved patient outcomes
initial cost: software & hardware, implementation services, training
ongoing cost: maintenance and support, staff time and morale, data security
Cost savings: reduced administrative costs, increased efficiency, improved charge cpature, lower drug and test costs
EHRs Operational and Clinical Improvements
enhanced data accessibility, improved patient safety, streamlined communication, enhanced data security, support for quality initiatives
EHRs benefits for providers
decision support, efficient communication, data analytics
EHRs benefits for patients
improved care quality, access to information, empowerment and engagement, convenience, and continuity of care
Integration of EHRs
-Play a pictoral role in bridging the gap between clinical care and PH efforts
-agencies with collaborate with healthcare providers
EHRs for surveiallance outbreak response
-Can aggregate and analyze to monitor disease trends
-early identification of disease clusters for PH interventions
EHRs challenges
-Financial investiment: high initial cost for software, hardware, training and maintenance, potential budgest contraints
-Interoperability: integration challenges, ensuring data exchange between platforms
-User training and adoption
-Data Security & Privacy: ensuring security measures to protect patient data breaches, complications with HIPAA
-technical challenges
-Customization and onfiguration
-vendor support and reliability
Definition: Laboratory Information Systems (LIS)
specialized software for managing laboratory operations and data
Role of LOS in data management
-sample tracking
-test ordering and scheduling
-test result management
-quality control
-data integration
Clinical laboratories
Focus: patient care and diagnosis
Purpose: perform tests to aid in individual patient diagnosis
Testing scope: Broad of medical testss
Clients: serve healthcare providers and patients
Timeliness: emphasis on quick turnaround
Regulatory oversight: regulated by healthcare accredication
Public Health labs
Focus: Population health and disease control
Purpose: conduct test to monitor and respons to PH threats
Testing scope: specialized tests for infectious disease, environmental health, and bioterrorism agents
Clients: serve public health agencies, epidemiologists, researchers
Timeliness: emphasis on rapid detection and response to outbreaks
Regulatory oversight: regulated by public health and evironmental agencies
Challenges in implementing health information systems
privacy and security, data migration and system integration, staff training and change management, balancing cost and benefits
Health data collection
is the foundation for evidence-based decision-making, disease surveillance, resource allocation, and healthcare quality and improvement
Significance of accurate and reliable health data
-accurate data is the cornerstone of public health and clinical practice
-informs decision-making at all levels of healthcare
Methods of Health Data Collection
-Surveys and questionnaires
-medical examinations and tests
-electronic health records
-public health registries
Challenges in Data Collection
-data quality issues and sources of error (data entry errors, incomplete records, and outdated information)
-ensuring privacy and informed consent
-addressing cultural and linguistic consent
Definition: Health Data Standards
a set of agreed-upon rules, guidelines, and specifications that ensure consistency, accuracy, and interoperability in the collection, storage, exchange, and use of health-related information
Standardized data elements
uniform ways of capturing and representing data
-ex: SNOMED (for diagnoses), LOINC for lab testes, Health level seven (HL7) for message exchanges
International Classification of Diseases (ICD)
the first 3 characters represent the type of disease or health condition. there is a period or decimal point after the first 3 characters. The next 3 characters after the period give more details like the cause of the disease
-ICD-9 (9th version introduced in 1979)
-ICD-10 (10th version, US transitioned in 2024)
i.e diabetes ICD-9 = 250.0, ICD-10 = E11.9
Benefits of Health Data Standards
Improved data accuracy
enahnced data exchange
efficient data analysis
Definition: Splitters
Teast concepts out into their more atomic elements. Ex: SNOMED (Systematized Nomenclature of Medicine) permits use of separate codes for selected terms
Definition: Lumpers
Gather concepts into a single. Ex: The Logical Observation Identifiers, Names, and Codes (LOINC) permits use of a singel code for categorizing and routing information
Storage and Message: File Formats
a file structure, fixed format
A. flat files-constiting of a table of rows and columns
B. database files- a table, or set of tables, with columns, rows and descriptions
Storage and Message: Some de facto standard file format
A. comma-delimited: a flat file format with file extension (.CSV) where commas are used to delimit i.e. separate, the columns of a table, each row of the file represent a new records
B. Tab-delimited: a flat file format often with file extension (.TXT) similar to comma-delimited, but tabs are used instead of commas
Definition: Electronic messaging
A feature by which a computer system can "talk" with another system also called electronic data interchange (EDI)
Two major standards for messaging health information
1. HL7 (health level 7)
2. X12
Definition: HL7
health level 7: standardizes the format and protocol for the electronic exchange of data among health care computer application systems.
Definition: X12
has a focus on messages in business-to-business operations
Definition: Flat file
a table for storing data. Columns are assigned for different data elements, while rows represent individual records.
De facto standard flat files
1. UB10 and HCFA1500: both used for medicare insurance claims
2. National Electronic Telecommunication System for Surveillance (NETSS): used in communicable diseases untis to report to CDC
Advantages of flat files
data stored and messaged may be easier to analyze and manipulate than when the data are in other formats
Disadvantages of flat files
they do not easily represent the complex relationships and recurrent of data that are common in health care
Definition: Health Information Exchange System (HIE)
is the secure sharing of electronic health information among different healthcare organizations and systems. it enalbes the exchange of patient data across disparate healthcare provides, improving care coordination and patient outcomes
Advantages of Data interoperability and HIEs
-improved continuity of care
-faster decision-making: real-time
-enhanced patient engagement
-reduce duplicative testing
-improved public health surveillance
-cost savings
-data privacy and security
-stakeholder engagement
Definition: Public health data analysis
The systematic process of examining and interpreting data related to the health of populations. It involves collecting, organizing, cleaning, and analyzing data to identify patterns, trends, and insights that inform public health decision-making and interventions
Sources of Public Health Data
-Government health agencies
-Healthcare facilities
-Health surveys
-Vital statistics
-Disease surveillance system
-Laboratory data
-Environmental data
-Health registries
-Pharmacy and prescription data
-Social determinants of health data
-behavioral data
-global health organizations
-academic research
-digitial health technologies
-community health assessment
Challenges in Public Health Data Analysis
-Data quality and completeness
-Data privacy and security
-Data integration
-Resource constraints
-data acces, volume and velocity
-data bias
-Complexity of health issues
-data governance
-Data interpretation
-Emerging data sources
-Health disparities
-rapid response
-technological advancements
Data visualization for communicating public health data
-Clarity and comprehension
-Effective and communication
-Storytelling
-Comparisons
-identifying outliers
-Enhancing memory and retention
-Engagement and advocacy
-Real-time monitoring
-Transparency
-Policy support
-Accessibility and public engagement
Definition: Tableau
Widely used for data visualization and exploration. Allows users to create interacive dashboards, charts, and maps.
Definition: R and RStudio
Publication-quality graphics. R is a programming language and environment specifically designed for data analysis and visualization.
Definition: PowerBI
is a business analytics toold that is also useful for public health visualization. Offers features for data exploration, report creation, and interactive dashboard building
Definition: Python and Matplotlib
Python, along with libraries like Matplotli, provides robust data visualization capabilities. Popular for creating a wide range of static and interactive visualizations
Definition: Qlikeview/Qlike Sense
data visualization and bussiness intelligence tools. Used for creating interactive, user-driven dashboards and reports
Definition: ArcGIS
known for its mapping and spatial analysis capabilities, useful for geographic data and spatial epidemiology
Definition: D3.js
a Javascript library for crreating dynamic and interactive data visualizations
Definition: Descriptive statistics
provide the baseline understanding of health trends
Definition: Inferential statistics
enable public health professionals to make evidence-based decisions and recommendations for broader populations
Definition: Public health surveillance
is the systematic collection, analysis, and interpretation, and dissemination of health-related data to monitor and improve the health of populations. It involves continuous data tracking to detect patterns, trends and health threats.
Definition: Chronic diseases
is a long-term medical condition that persists over an extended period and typically progresses slowly. i.e diabetes, heart disease, cancer, etc.
Definition: Infectious disease
also known communicable disease, are illnesses caused by microorganisms such as bacteria, viruses, fungi or parasites.
Data Collection methods
Healthcare facilities, labs, health surveys, vital statistics, environmental monitoring, notifiable disease reporting, syndromic surveillance, pharmacies
Definition: Incidence rate
New cases diagnosed druing a specific period of time and by demographics
Definitio: Prevalence
the total number of cases existing in a population
Definition SEER (Surveillance, Epidemiology, & End Results Program)
collects data on cancer incidence, survival, and moratlity. operated by the National Cancer Insititute and collects and publiches cancer incidence and surival data from population-based cancer registries covering ~48% of the population