nurs 381: chapter 17- chronic disease

what characterizes chronic disease

lasts more than a year

affects multiple systems

requires specialty care

normalization

attention to normalizing life. what is the new normal for that child

transition

helping kids with chronic diseases (downs) transition to adult care

home care

taking a child home on a vent

return to a system of priorities in which the family is the center

mainstreaming

integrating children w disabilities into the classroom

bridge program

early intervention

birth to 21 years old

early steps

birth to 3 years old

mother and father differences to chronic disease

mom might have to quit job to take care of baby

dad might feel like he shouldve protected them from this and try to overcome financial burdens by working more

what is the first step of coping

shock

true or false

denial is NOT a normal emotion

false

avoidance behaviors

abnormal behaviors the parents might go through after getting dx

distraction, alcohol, drugs, unrealistic future goals, complete faith in religion

what are some examples of avoidance behaviors

distraction, alcohol, unreleastic goals, complete religious faith, drugs

denial

a normal mechanism parents go through after getting diagnosis. helps them to maintain hope and represents positive coping

only becomes a problem when it interferes w survival of child

possible parental reactions that affect the childs response to chronic disease

overprotection, rejection, denial, gradual acceptance

child can pick up on parental stress- keep parents as un-stressed as possible

chronic sorrow

when the child is diagnosed with disease and their milestones arent met, happens when the family's expectations for the children aren't met

general things to assess in a child with chronic disease

injury prevention, immunizations, dental health and regular physicals