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Developmental Disability
A severe, chronic disability attributable to a mental or physical impairment, manifested before age 22, likely to continue indefinitely, resulting in substantial functional limitations in 3 or more areas of life
3 or more functional limitation areas for DD
1) Self-care
2) Receptive/Expressive language
3) Learning
4) Mobility
5) Self-direction
6) Capacity for independent living
7) Economic self-sufficiency
Congenital Disability
A condition acquired during fetal development or birth as a result of hereditary or atypical circumstances
Acquired Disability
An illness or state of health that is not inherited but interferes with an individual's ability to be functionally independent
Examples of Congenital Developmental Disabilities
1) Down Syndrome (Trisomy 21)
2) Autism Spectrum Disorder (ASD)
3) Cerebral Palsy (CP)
4) Neuromuscular disorders
5) Intellectual Disability
Examples of Acquired Developmental Disabilities
1) TBI (Traumatic Brain Injury)
2) Fetal Alcohol Syndrome
3) Neglect/Abuse
4) Infections
Primary vs. Secondary Disabilities in DD
DDs affect many areas of life (onset = primary); DDs are chronic and lifelong — function can IMPROVE but there is no CURE
DD Assistance and Bill of Rights Act of 2000
Also known as the DD Act or PL 106-402; initially written in 1975; provided a broad definition of DD; intentionally avoided labeling; focused on the EFFECTS of disability, not the CAUSE
How DD Impacts ADLs/IADLs
Individuals may struggle with dressing, bathing, eating, and managing tasks at school, work, home, or community
How DD Impacts Motor Skills
Fine and gross motor challenges affecting handwriting, walking, or playing sports
How DD Impacts Cognition & Learning
Delayed or limited ability to understand, process, or apply information
How DD Impacts Social Skills
Difficulty developing and maintaining relationships with peers and family members
OT Practice Settings for Individuals with DD
1) NICU/PICU
2) Early Intervention
3) School System
4) Vocational Programs
5) Sheltered Workshops
6) Community-Based Living Facilities
7) Institutional Care
8) Medically-Based Programs
9) Intermediate Care
10) Work-Related Programs
PL 94-142 / Education for All Handicapped Children Act (EHA)
Passed in 1975; landmark legislation that mandated public education for children with disabilities; later revised and renamed IDEA in 1990
IDEA (Individuals with Disabilities Education Act)
1990 revision of PL 94-142; governs how states and public agencies provide early intervention, special education, and related services to students with disabilities
Primary Concern of OT in the School System
Supporting the EDUCATION of the child; helping students engage in learning, classroom activities, and school-related tasks
Medical Model (School-Based OT)
Identifies and intervenes to address disease or dysfunction using medical terminology/"jargon"
Psychoeducational Model (School-Based OT)
Addresses normal growth and development; works toward mastery of skills to function in the school setting and prepares students for functioning in society
Screening (School Service Delivery)
First step in service delivery; brief review to determine if a child may need further evaluation (e.g., kindergarten "round-up")
Evaluation (School Service Delivery)
In-depth assessment performed by a multidisciplinary team (teacher, special ed teacher, nurse, psychologist, OT, PT, ST, social worker, parents, etc.)
IEP (Individual Educational Program)
A written document committing resources and outlining special education and related services to meet a child's unique needs
Required IEP Components
1) Child's current level of functioning
2) Annual goals (LTGs)
3) Short-term objectives (STGs)
4) Criteria for measuring goals/objectives
IEP Update Requirements
1) Must be updated at least annually
2) Change in child's performance requires an IEP review meeting
3) Comprehensive re-evaluation occurs every 3 years
Required IEP Attendees
Parent(s), at least 1 general education teacher, at least 1 special education teacher, a school representative, and an individual who interprets evaluation results
Areas Assessed During School-Based OT Evaluation
1) Sensory/motor
2) Visual motor
3) Visual perceptual skills
4) Self-care
5) Assistive technology needs
6) Prevocational skills
7) Psychosocial functioning
8) Cognition
Key Intervention Area: Academic Skills
1) Handwriting
2) Reading (visual motor integration)
3) Math (hand-eye coordination, use of manipulatives, organization of work)
Key Intervention Area: Fine Motor Skills
1) Pencil grip
2) Cutting with scissors
3) Using a computer
Key Intervention Area: Gross Motor Skills
1) Balance
2) Coordination
3) Participating in physical education
Key Intervention Area: Sensory Processing
Addressing sensitivity to light, noise, touch, or movement that impacts a child's ability to focus and participate
Key Intervention Area: Social Skills
1) Developing appropriate communication
2) Understanding social cues
3) Forming peer relationships
4) Participating in group work
5) Following social rules
Direct Service Delivery
Hands-on, weekly OT sessions with the client for a set number of minutes established in the IEP
Indirect Service Delivery: Monitor
OT directly supervises a non-OT personnel who is carrying out the intervention plan
Indirect Service Delivery: Consultation
OT gives input to teachers, families, and others concerning the student's needs and strategies
Common Diagnoses Treated in School-Based OT
1) Learning Disability
2) Autism Spectrum Disorder (ASD)
3) ADHD
4) Sensory Processing Disorder
5) Physical Disabilities
Challenges in School-Based OT: Limited Time & Resources
OTPs often have limited time and must prioritize students based on severity of needs
Challenges in School-Based OT: Collaboration
Coordination with teachers, staff, and parents can be difficult due to differing perspectives and goals
Challenges in School-Based OT: Changing Environments
Adapting to evolving school structures, standardized testing pressures, and inclusion practices
Practice Competencies for Pediatric OT
1) Skilled evaluation
2) Communication with teams and families
3) Consultation skills
4) Knowledge of development
5) Understanding of service delivery systems
6) Advocacy skills