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Health Related Quality of Life
An individual's or group's perceived physical and mental health over time
Important aspects of quality of life (5)
economic, political, cultural, aesthetic, and spiritual
Instrument
single or multiple questions/items
Items
an individual question
Domains/dimensions/subscales
related items that are grouped and assess the same variable
Test battery
several questionnaires, questions, rating or items and responses that are not summed or weighted
Scale
series of self-report questsions, rating, or items that are used to measure a concept (all in same format so they can be summed)
Trends of unhealthy days from 1996-2008 (BRFSS)
Increase in the the mean number of unhealthy days
Vision Impairment and Physically Unhealthy Days
Non-VI- 3-5
VI- 8-13
VI and mentally unhealthy days
Non-VI-3-5
VI- 5-11
SF-36 Health survey
most commonly used HR-QOL measure; contains questions that assess both physical and mental health and it does a reasonably good job of differentiating change in each
Vision module
2005-2011 in BRFSS; employed nine questions regarding vision impairment, access and utilization of eye care, and self-reported eye diseases
VI and life dissatisfcation, disability, and poor health
VI have higher prevalence of all of these;
NEI VFQ-25
survey about vision and general health and quality of life; assesses patient perception of visual function and the influence of visual disability on multiple dimension of health-related quality of life
Is NEI VFQ-25 best for acute or chronic diseases
chronic eye diseases
CLEK study findings
Patients with keratoconus are on a similar health-related quality of life scale as ARMD. Better for overall health but worse for ocular pain
Clinicians and prediction of Quality of Life
clinicians have limited understanding of the extent to which vision impairment impacts the quality of life of individuals