13: Clinical Data Repository

Clinical data repositories

It usually houses immoral altitude of laboratory results, diagnostic reports, and various clinical documentation from different departments

CDR (Bergeron 2013)

a structured or systematically gathered storehouse of patients specific data

STUDY

A database that collects observations for a specific clinical research study

Electronic Health Record

A database of observations made as a result of direct healthcare

Registry

Observations collected and organized for the purpose of studying or guiding particular outcomes of defined population. Associated studies are either multiple or long-term and evolving overtime.

Warehouse

A repository that adds levels or integration and quality the primary (research or clinical) data of a single constitution to support flexible queries for multiple users

Collection

Library of heterogeneous data sets from more organizations than a warehouse or more sources than a registry. Organized to help users find a particular data set, but not to worry for data combined status sets

Federation

A repository distributed across multiple locations where each location retains control over access to own data and is responsible for making data comparable with the data of other locations