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Cultural humility
lifelong commitment to self evaluation and learning
emphasizes relational accountability, equity, and mutual respect
cultural competence
ability to work effectively across cultures (considered milestone)
person/family centered care (PFCC)
focuses on collaboration with individuals and families
core concepts of patient/family centered care
respect and dignity
information sharing
participation
collaboration
required implementation of PFCC
investment of time by clinician
training and education
learning about cultures
self reflection and cultural awareness
consideration of social determinants of health (SDOH) impacting patient
modifying treatment approaches, building relationships, teaching strategies to patient and care partners
medical models
emphasizes deficits, symptoms, etc.
social models
emphasizes context and participation
ethical principles
autonomy, beneficence, nonmaleficence, justice, fidelity, integrity
beneficence and nonmaleficence
do good and avoid harm
fidelity and integrity
requires honest, respectful, and trustworthy relationships with client and families
dynamic assessment
test-teach-retest format, focuses on learning potential
static assessment
traditional testing format (e.g. standardized tests)
disproportionality
over/underrepresentation of certain groups in special education
linguistic bias
when tests do not account for language variation
use of interpreters
best practices for working with multilingual families
code switching
alternating between two languages/dialects
health disparities
differences in health outcomes due to systemic inequalities
structural racism
system-level processes creating unequal access
social determinants of health (SDOH)
conditions in environment where people are born, live, learn, work, etc. that affect health, functioning and quality of life outcomes and risks
external factors influencing health: income, housing, education
5 domains of SDOH
economic stability
health care access and quality
education access and quality
neighborhood and built environment
social and community context
bias
implicit or explicit prejudice in decision making
interdisciplinary collaboration
working with professionals across fields
inclusive education
ensuring students with disabilities are educated with peers
culturally responsive practice
incorporates students/clients cultural backgrounds into care
family engagement
involving families in decision making
intervention planning
goal setting with the individual/family; strengths based approach
cultural competence continuum model
cultural destructiveness
cultural incapacity
cultural blindness
cultural pre-competence
cultural competence
cultural proficiency
cultural destructiveness
denying services due to clients cultural or linguistic background
cultural incapacity
licking capacity to help clients from all racial, ethnic, and linguistic backgrounds
cultural blindness
providing the same assessment material to all clients regardless of cultural background
cultural pre-competence
attempting to make some changes and to improve aspects of service delivery
cultural competence
accepting and respecting cultural and linguistic backgrounds and values by adapting services to meet the individuals needs
cultural proficiency
actively seeking to increase others’ cultural competence (e.g. engaging in research, developing new techniques, etc.)
cultural competemility model
awareness
skills
knowledge
encounters
desire
awareness
self-awareness, sensitivity to biases/prejudices
skills
access to culturally responsive ways of interacting, culturally appropriate assessment tools
knowledge
cultural world views, conceptual and theoretical frameworks concerning various cultures
encounters
cross-cultural interactions, cultural exposure, practice
desire
willingness to self examine
reflective bias
examining ones clinical decisions, recognizing personal bias and limitations, not optional, not just thinking about your feelings, using standards, evaluating outcomes
reflecting in action
reflecting as something happens
reflecting on action
reflecting after something happens
types of barriers in clinical practice
structural
cultural-linguistic
institutional/systemic
structural barrier examples
transportation, scheduling, insurance, lack of interpreters
cultural-linguistic barrier examples
different norms, values, communication styles
institutional/systemic barrier examples
racism, ableism, linguistic bias in assessments
equality
giving everyone the exact same resources and opportunities
equity
giving people specific resources based on their circumstances to provide a fair outcome
what are common breakdowns in communication?
eye contact norms
use of silence or indirectness
family roles and expectations
biomedical notions of success
reaching norm-referenced benchmarks
adhere to prescription interventions
eliminate/reduce symptoms
cultural notions of success
honor and respect religious customs, ancestors and elders
maintain harmony in spirit or emotion
emphasis on PFCC
tolerance/acceptance of difference
why didn’t Lias family have a traditional New Year’s ceremony?
Lias illness required constant care and hospitalization, led to limited money and resources especially as refugees.
Family believes her spiritual condition made certain celebrations difficult
struggled to adapt to a new country AND preserve traditions of Hmong culture
why was assimilation difficult for Hmong refugees?
came from rural mountain villages w/ little education, unable to read or write (American health, school and government were confusing)
English was unfamiliar
Hmong beliefs conflicted with western medicine, leading to misunderstandings
Arthur Kleinman’s 8 cross-cultural questions
what do you call your problem?
what do you think caused your problem?
why do you think it started when it did?
what does your illness do to you? How does it work?
how severe is it? Will it be short or long-lasting?
what kind of treatment do you think you should receive?
what are the most important results you hope to receive from treatment?
what are the chief problems your illness has caused?
why would Kleinman’s 8 questions helped Lia’s family if the doctors asked?
learned Lia’s parents believed her epilepsy was a medical and spiritual condition
understood why family wanted a shaman involved w/ treatment
could have explained medicine in a way that respected Hmong beliefs
developed trust and better communication with family
explain this quote: “if you can’t see that your own culture has its own set of interests, emotions, and biases, how can you expect to deal successfully with someone elses culture?”
doctors and Lia’s family have their own set of beliefs. neither truly realized their own beliefs were culturally shaped. since both believed their approach was correct, they were unable to understand one another. this led to many complications in how Lia should receive care
explain this quote: “Lia’s life was ruined not by septic shock or noncompliant parents but by cross-cultural misunderstanding”
Lia’s condition was caused less by her disease but more by failures in communication and cultural understanding (doctors viewed parents as “noncompliant”, different ideas of healing, language barriers leading to misunderstandings)
chapter 14: the melting pot
Hmong resettlement in America and challenges of assimilation
Hmong did not assimilate because they wanted to preserve their culture
title is ironic because Hmong culture remained distinct instead of “melting” into American society
chapter 15: gold and dross
reflection of Lia’s condition
separating what was valuable (gold) and harmful (dross) in her medical care
chapter 16: why did they pick Merced?
why Hmong refugees settled here and how the community developed
once their community formed, others came because they want to live with people who share their culture (birds of a feather, flock together)
chapter 17: the eight questions
refers to Arthur Kleinman’s 8 questions and how they can improve communication and understanding of culture between healthcare and patients
these could have improved communication between Lia’s family and doctors
chapter 18:the life or the soul
debate on whether Lia’s outcome resulted from medical complications or cultural misunderstandings
doctors focused on saving Lia’s physical life but her parents believe saving her soul was equally important.
questions whether preserving the body is enough if cultural and spiritual needs are ignored?
chapter 19: the sacrifice
Hmong healing traditions and the importance of spiritual sacrifice to restore health and balance
restored Lia’s soul
symbolizes the many sacrifices made by her parents, doctors and ultimately Lia as a result of the cultural conflict between the family and the doctors
key concepts from the book
cultural misunderstanding
language barriers
lack of cultural competency in healthcare
disparities in access to healthcare
ethical dilemmas
stereotyping and prejudic
systemic issues
lack of empathy and empowerment