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define family
a psychological group in which there is a commitment for members to nurture one another
what does the definition of family not include
blood and lineage
how should we, as therapists, discuss tx procedures and questions and explanations around the pts family
we should “read the room'“ and let the patient be heard
what questions should we ask ourselves when we are following pts cues on how much the family needs to hear
does the pt want family to be included/excluded
what concerns are voiced by pt and family members
what are their important issues
what things should we be explaining to the pt about their day 1 tx
positioning and immobilization
length of the tx
audio/visual interactions
room noises
machine movements
day 1 vs all other days
what do we need to tell the patient about the audio/visual intercommunication system
make sure they know that we are not inside the room but we can hear and see them
what do we need to tell the patient about machine movements
the machine will move around them but will not touch them
what are some common, but significant concerns of patients and families?
treatment experiences be like
concerns about tx schedule
financial concerns
concerns about transportation
what are some common psychosocial issues faces by patient and family members
unresolved family issues
unfinished business
unique coping mechanisms
reminded of our mortality
what are some common misconceptions of patients and family members when they are diagnosed with cancer and given therapy tx?
expectations
stigma of cancer
lobby education
disagreement of tx plan
misconceptions
who is often the primary support system for a pt undergoing cancer tx
family
what kind of sensitivity must we, as therapists, have towards patient's and their condition
professional
what can we, as therapists, do to help patients undergoing tx cope?
refer to support groups
give them information
professional counseling
with a professional attitude, what are we to the patient and why
we are an advocate, we have more contact with them than anyone else on their care team and we serve as a voice for them
what are two ways for us to be a good health role model
avoid burnout and healthy living
do we use verbal or nonverbal cues more as therapists
nonverbal
what are some communication challenges that we might come across in healthcare?
hearing, vision, and speech difficulties
how must we communicate with patients given their situation?
being calm, hearing them, listening to them
what are some pointers to remember while listening to patients?
concentrate, eye contact, hear, reflect, non verbal response
what are some pointers to remember when responding to patients?
minimal verbal response, paraphrasing, open ended questions, interpreting
what kind of relationship should we have with our patients?
therapeutic
what does it mean to have a therapeutic relationship
close but not too close
what are the two ways someone explains the "survivorship" of their disease?
in terms of control and time
what are some examples of defining disease status in terms on control
NED, local control, survival
what are some examples of defining disease status in terms of time
5 year windows
how is survivorship defined
the experience of living through or beyond an illness
what are some psychosocial themes anticipated in adults surviving cancer
fear of relapse or death
survivor guilt
social adaptations
contagion effect
what percentage of cancer patients return to work after being diagnosed?
80%
what percent of cancer survivors experience some form of insurance discrimination?
30%
what does COBRA federal law offer
offers continuance of group medical coverage in some situations
body image involves both _ and _
self perception and social feedback