AHIC Review Course 3: Integration of Specialized and Emerging Data – Flashcards

Flashcards covering key concepts from the lecture notes on integrating specialized and emerging data, including standards, data governance, genomic data management, SDOH, and PGHD strategies.

What are the two key principles for integrating emerging data into health IT systems?

1) Emerging data must be standards-compliant and structured (e.g., HL7 FHIR, APIs, terminologies). 2) Consider the impact on clinician workload and organizational resources.

Beyond technical integration, what other areas must organizations address when adopting emerging data?

Changes in processes, workflows, roles, and resource implications.

What type of care processes are traditional clinical data typically structured to support?

Illness-focused care processes and documenting encounters.

How are traditional clinical data typically analyzed for clinical decisions?

Analyzed or interpreted once for use in clinical decisions.

Provide one example of emerging data that involves a large volume of data to analyze or store.

Genomic data (and Health IoT data).

What is a major challenge of genomic data that affects EHR usability?

Volume/complexity and the need to reinterpret results over time as knowledge evolves.

What storage/architecture model is proposed to manage genomic data similarly to imaging data?

A Genomics Archive and Communication System (GACS) where sequences are stored; metadata/reports are sent to the EHR, while raw data may reside in external archives (analogy to PACS).

What does 'AGS' stand for, and what is its role in genomic data management?

Genomic Ancillary System – a prototype institutional system to support the return of pharmacogenomic results.

Why are CDS systems important for precision medicine?

To support decision-making by linking genomic data with clinical information and enabling precision medicine; CDS is needed to operationalize genomic insights in care.

What analogy is used to illustrate managing genomic data in clinical use?

Imaging workflow: imaging data go to PACS; metadata/reports go to the EHR; a similar genomic workflow could use a GACS with ancillary systems.

What is one design consideration for using patient-reported SDOH data per IOM 2014?

Specify the goals for data collection (screening, diagnostic, outcome assessment).

Name a rollout strategy for SDOH tools in EHRs.

Use a staged rollout for each unit.

What is a recommended data entry approach for SDOH data in EHRs?

Direct data entry by staff or through the patient portal.

List three PGHD capture/use/sharing strategies mentioned.

Develop a common understanding of PGHD opportunities; run pilot demonstrations; use a staging data repository to clean, normalize, and interpret PGHD.

What is ONC's 2024 goal regarding PGHD?

Achieve maturity in PGHD technology and practices to support care delivery and research.

Which issue did the knowledge check identify as missing and most important for success?

Impact on workflow.