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Why study quality of life?
guides interventions, helps identify the problems likely to emerge for patients, assesses the impact of treatments, used to compare therapies, and can inform decision makers about care
Emotional responses to chronic health disorders
denial, anxiety, and depression
Denial in chronic health disorders
defense mechanism by which people avoid the implications of a disorder; interferes with absorption of treatment information and compromises health
Anxiety in chronic health disorders
patients become overwhelmed by potential changes in their lives and the prospect of dying; interferes with treatment
Depression in chronic health disorders
complicates treatment adherence and medical decision making
People who get depressed experience what?
pain and disability, negative life events, and lack of social support
Personal issues in chronic health disorders
self-concept, body image, achievement, social resources, and private self
Self-concept
stable set of beliefs about one’s personal qualities; evaluated by self-esteem
Body image
perception and evaluation of one’s physical functioning and appearance
Poor body image
increases risk of depression and anxiety, and influences a person’s adherence to treatment and willingness to adopt a comanagement role
Achievement
important source of self-esteem and self-concept
Social resources
provide information, help, and emotional support
Private self
patient’s identity can be affected by chronic health disorders
Strategies for coping with chronic health disorders
social support or direct problem solving, distancing, positive focus, cognitive escape or avoidance, and behavioral escape or avoidance
Strategies that work for coping with chronic health disorders
active coping and coping by using positive responses
Nature of the health disorder
patients adopt an inappropriate model for their disorder
What do patient’s blame for their health disorder?
stress, physical injury, disease causing bacteria, and God’s will
Self-blame can lead to
guilt, self-recrimination, or depression
Co management of chronic health disorders
Physical rehabilitation, developing a comprehensive rehab program, focusing on adherence, addressing vocational issues, tackling social interaction problems, and making positive changes
Physical rehabilitation
learning how to use one’s body as much as possible
Vocational issues in chronic health
discrimination against the chronically ill, and financial problems
Social interaction problems in chronic health
negative responses from others, impact on the family, and caregiving role is overbearing
Gender and the impact of chronic health disorders
women have more deficits in social support, married women are more likely to be institutionalized than husbands
Improving coping for a child with chronic health disorder
parents can soothe children emotionally and provide an informed basis for care by encouraging them to take care of themselves and create a good routine; family therapy and training the family in the treatment regimen will help
Pharmacological interventions and chronic health
prescription of antidepressants
Individual therapy and chronic health
can be episodic, collaboration with patient’s physician and family is critical, and requires respect for a patient’s defenses
Cognitive behavioral therapy guides
a comprehensive understanding of the health disorders and their modes of treatment that are required
Psychological interventions and chronic health
pharmacological, individual therapy, cognitive behavioral therapy, coping skills, relaxation, stress management, exercise, and social support
How do coping skills improve functioning for chronic health disorders?
increases knowledge about their disorder, reduces anxiety, and increases patients’ feelings of purpose and meaning in life
Types of relaxation therapies used
relaxation training and acceptance and commitment therapy (ACT)
Stress management techniques used
mindfulness-based stress reduction (MBSR)
How does exercise help?
improves quality of life
Family support
enhances patient’s physical and emotional functioning, promotes adherence to treatment, and improves course of health disorders
Support groups
discuss issues of mutual concern that arise as a consequence of health disorders