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Failure of embryonic facial structures to fuse during development
Cleft lip/palate
Opening/split in the upper lip only
Cleft lip
Opining in the roof of the mouth (hard/soft palate)
Cleft palate
Cleft lip and cleft palate can occur
Alone or together
This birth defect occurs at in which trimester of pregnancy at how many weeks gestation?
1st trimester, 6-8 weeks
Risk factors for Cleft lip/palate
Genetics, family Hx, maternal smoking, alcohol, anticonvulsants, maternal age, poor maternal nutrition
Signs and symptoms of cleft lip is observed
On an ultrasound or at birth
Signs and symptoms of a cleft palate is observed
On an ultrasound or poor feeding, nasal regurgitation, frequent ear infections, poor weight gain
Cleft palate can cause issues with ________ for the child later on in life if left unrepaired
Speech
Complications of having cleft lip (alone) include
Cosmetic concern
________ may still develop normal if palate is intact
Speech
When is cleft lip repaired?
2-3 months
What are the feeding challenges for a baby with cleft lip?
Difficulty latching and poor nipple seal
What are the feeding interventions for a baby with cleft lip?
Sit upright, special nipple/bottle, syringe feed if needed
You should position a baby when not holding them post op cleft lip ________ or _________ to protect the suture line, never prone
Supine, side lying
When is cleft palate repaired?
6-12 months
What are the feeding challenges for a baby with cleft palate?
Nasal regurgitation of milk, aspiration risk, difficulty sucking
What are the feeding interventions for a baby with cleft palate?
Upright feeds, special long nipple/syringe feeder, frequent burping
How should you position a baby post op cleft palate repair? (When not holding them)
Prone or side lying
Why should you position a baby post op cleft palate repair prone or side lying?
Aids in drainage
Complications of cleft palate include
Speech delays, recurring ear infections, hearing loss
Airway considerations for a baby with cleft palate
Aspiration risk, nasal regurgitation
The surgical goal of cleft palate repair is
Restore palate to support speech and feeding
Long term concerns for a child with cleft palate repair
Speech therapy, ENT and dental follow up
If both cleft lip/palate occur together its considered the
Most severe case
When do they repair cleft lip/palate?
Lip first, palate later
What are the feeding challenges for a baby with both cleft lip/palate
Severe feeding difficulty, aspiration, poor weight gain
Complications from having both cleft palate/lip
Highest risk of feeding and nutritional issues, speech and dental problems
Babies with both cleft lip/palate are at risk for both
Aspiration and nutritional risks
Surgical goal for a baby with both cleft lip/palate are
Staged with lip first, palate later
Surgical repair may require __________ surgeries as the child grows
Multiple
Pre-op nursing care for a baby with cleft lip/palate
Small, frequent feeds, never feed supine
Post-op nursing care after surgery is to
Protect suture line, no paci, straw, spoons, elbow restraints
Priority before cleft repair pre-op:
Feeding safely to prevent aspiration
Priority after cleft repair post-op:
Airway first, then protect repair site
What special nipple is used for cleft babies?
Haberman feeder
Long, soft nipple with one way valve that allows milk flow with compression rather than suction (good for cleft palate where suction is weak)
Haberman feeder
Frequent _________ its important with cleft babies to get rid of excess air swallowed
Burping
You should be prepared as the nurse to emotionally support:
The parents