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theory of illness trajectory
The uncertainty surrounding a chronic illness like cancer is the uncertainty of life writ large. By listening to those who are tolerating this exaggerated uncertainty, we can learn much about the trajectory of living."
Identity
The conception of self
Temporality
Biographical time
Body:
Activities of life, based on the body
Illness
particularly cancer, disrupts the usual or everyday conception of self
elements of biography:
identity, temporality, and body.
sphere of work
with whom he or she interacts
total organization:
network of players
. Illness-related work:
Everyday-life work:
Biographical work:
Uncertainty abatement work:
Types of work : four lines of trajectory
Illness-related work:
Diagnostics, symptom management, care regimen, and crisis prevention
Everyday-life work
Activities of daily living, keeping a household, maintaining an occupation, sustaining relationships, and recreation
Biographical work:
The exchange of information, emotional expressions, and the division of tasks through interactions within the total organization
Uncertainty abatement work:
Activities enacted to lessen the impact of temporal, body, and identity uncertainty
UNCERTAIN TEMPORALITY:
flow of life events are disrupted . A temporal disjunction in the biography.
UNCERTAIN BODY
Changes related to illness and treatment are centered in one's ability to perform
UNCERTAIN IDENTITY
Interpretation of self is distorted as the body fails to perfor
Pacing
Resting or changing usual activities
Becoming "professional" patients:
Using terminology , supermedicalization
Seeking reinforcing comparisons :
Comparing , it is not as bad as it could be
Engaging in reviews
reinterpret emergent symptoms
Setting goals:
Looking toward the future to achieve desired activities
Covering up
Masking signs of illness , Bucking up to avoid stigma
Finding a safe place to let down
place, supportive atmosphere
Choosing a supportive network
Selective sharing , positive supporters
Taking charge
Asserting the right odetermine the course of treatment
