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Stats
More than 5.8 million Americans have Alzheimer’s
1 in 3 people over the age of 85 currently have Alzheimer’s
Every 65 seconds someone in America will develop dementia
Over 4500 people in Smith County have some kind of dementia
Of those, 70-80% will develop the tendency to wander
1 out of 7 Americans is currently caring for someone with dementia
Alzheimer’s disease cost the Texas economy $18 billion in unpaid caregiving hours
Alzheimer’s disease makes up 70-80% of all dementia cases
Cognition
“process of knowing (awareness, reasoning, judgment, intuition, and memory)”
Executive functions
these are higher cognitive functions
(capacity to plan, manipulate info, initiate and end activities, recognize errors, problem solve, judgement and abstract thinking)
Perception
Taking sensory input -> interpreting it -> understanding what is happening
Cognitive and Perceptual Impairments include:
Attention deficits
Memory impairments
Impairments of executive function
Body scheme and image impairments
Spatial impairments
Agnosia
Apraxia
Attention deficits
“the ability to attend to a specific stimulus while simultaneously suppressing extraneous stimuli”
Memory impairments
“mental process that allows someone to store experiences and perceptions for later recall”
Three levels:
Immediate
Short term
long term
Executive function impairments
“capacities that enable a person to engage successfully in independent purposeful, self-serving behavior”
Consists of four components:
Volition
Planning
Purposeful action
Effective performance
Body scheme and image impairments
Together, it is body awareness=sensory and person’s feelings about the body
Specific problems are:
Unilateral neglect
Anosognosia- neurological condition in which the patient is unaware of their neurological deficit or psychiatric condition
Somatoagnosia-characterized as loss of recognition or awareness of part of the body.
Right-left discrimination
Spatial impairments
“difficulty perceiving the relationship between the self and two or more objects”
Difficulties with:
Figure-ground, form discrimination, spatial relations, position in space
Agnosia
“Inability to recognize incoming info despite intact sensations”
Different kinds:
Visual
Auditory
Tactile (astereognosis)
Apraxia
“inability to do purposeful movements that is not due to weakness, impaired sensation, abnormal tone, etc”
Different kinds:
Ideomotor – doing an activity over and over again when no longer needed
Ideational – can not do a task because can not figure out the motor planning of how to do it
Buccofacial (oral apraxia) – difficulty doing purposeful movements with the lips, tongue, cheeks, larynx, and pharynx on command
Theoretical Approaches to Cognitive and Perceptual Deficits
Retraining approach
Sensory integrative approach
Organization of sensation for use to do a task
Rehabilitative/compensatory approach
Two components: Compensation and adaptation
Types of dementia
VASCULAR DEMENTIA (Vascular COGNITIVE IMPAIRMENT )
Due to multiple TIAs or Cvas caused from atherosclerosis or hemorrhage
Progression will Plateau depending on future Tia/cva
Lewy body
Protein deposits, called Lewy bodies, develop in nerve cells in the brain regions involved in thinking, memory and movemeNT
VISUAL hallucinations
Alzheimer’s
Some evidence of Deposits of amyloid plaques and tangles in the brain which block neural connections
True dx is with autopsy
Frontotemporal dementia
Onset is usually between 40-60 yo (younger age than Alzheimer’s)
Occurs in 10-20% of dementia pts
Due to deterioration and shrinkage of frontal and temporal lobes
dramatic changes in Personality and behavioral changes (often misdiagnosed as psych problems)
Impulsive, angry outbursts, lack of judgement
socially inappropriate or emotionally indifferent, lack of inhibition
Repetitive compulsive behavior, such as tapping, clapping or smacking lips
A decline in personal hygiene
Changes in eating habits, usually overeating or developing a preference for sweets and carbohydrates or Eating inedible objects
Compulsively wanting to put things in the mouth
May lose the ability to use language properly
Dementia
Not a part of normal aging
Dementia is a symptom that there is something wrong with the brain; it is NOT a disease
May be reversible depending on the cause
Dementia includes a group of symptoms:
impaired memory
impaired cognitive functioning (language, attention, problem solving, spatial skills, judgment, planning, or organization)
Causes of dementia could be:
Alzheimer’s , Vascular dementia, Frontotemporal dementia, Lewy body disease, and Chronic traumatic encephalopathy
Alzheimer’s Disease
Not a part of normal aging
Could have a genetic predisposition
Alzheimer’s is a very specific form of dementia
Symptoms of Alzheimer’s include impaired thought, impaired speech, and confusion
Irreversible and incurable
Degenerative
National Institute on Aging (NIA)
Dementia is a brain disorder that affects communication and performance of daily activities
Alzheimer’s disease is a form of dementia that specifically affects parts of the brain that control thought, memory and language
Diagnosing dementia
At least two of the following must be impaired:
Memory
Communication and speech
Focus and concentration
Reasoning and judgment
Visual perception (can’t see the difference in colors or detect movement, or sees things that aren’t there)
Alzheimer’s Alliance of Smith County
Founded in 1982 as a nonprofit organization
Provides services and programs for caregivers, respite assistance, memory screenings, education, and community events
Every year:
Annual Butterfly luncheon and butterfly release
Mah Jong for memory
Annual caregiver conference
Memory maker leadership circle reception
Educational workshops
Project Lifesaver
Alzheimer’s Alliance
Personalized wristband that emits a tracking signal
Battery operated, waterproof wrist transmitter emits an automatic tracking signal every second of every day
Can be tracked on the ground for up to one mile or in the air for several miles
When person is missing, law enforcement officials are notified and start searching with the mobile locator tracking system
Starts at $300 for the bracelet and a monthly fee of $10
Gems Levels*
Teepa Snow, OTR
Positive Approach techniques for caregiving, Alzheimer’s and other forms of dementia
It’s a system that helps identify what level a patient with dementia is in at that moment and ways to assist the patient in doing a task that maintains respect and helps the patient be successful
Helps to see what remains in the person instead of what the person has lost
Learn how to use skills to better care for the person with dementia and support the caregivers
6 Gems Levels
Sapphire
Diamond
Emerald
Amber
Ruby
Pearl
Sapphire
True Blue
Normal aging (not dementia)
Moments of depression about aging/changes
Can learn new things but takes effort (more time and practice)
May need reminders to help with forgetfulness
Tips to help Sapphires
Allow them time to process the information you are giving them
May resent someone “taking over a task” so ask if they want help
Use prompts to help memory
Make sure only one person talks at a time and ask the person to
repeat what was said to make sure that everything was understood
Diamond
Clear and sharp
Likes routines and familiar things
Becoming rigid or inflexible in that they resist change and want things done a certain way
Can do well at times and at other times can be hurtful without being aware that they’ve said something mean
Needs repetition and time to process information
May ask the same question or say the same thing over and over but they perceive it as new each time
Struggle with finding the right words
Family notices a change but not sure if it’s dementia or just forgetfulness and stubborn
Tips to help Diamonds
Modify your approach to the person
Don’t argue
Say “I’m sorry…”
Don’t say, “remember …”
Limit info you give them
Try to keep them in their routine but have a balance of activities
Emerald
Go, go, go
Unable to be independent but they think they are
Moments of clarity then moments of illogic
Doesn’t notice mistakes at times; not aware of their loss of abilities
Noticeable changes to others
Problems with language and comprehension
Repeating words or phrases; misspeaking
Orientation changes
May need assistance to go places and do ADLs
May forget to eat or eating frequently, not changing clothes or bathing
Pays more attention to what is seen than heard
Vision is binocular (limited to peripheral awareness)
Strong emotional reactions due to fear or unmet needs
Tips to help Emeralds
Decide if something the person does is really important to correct
Greet before you treat
Do activities with the person and NOT for the person
Stay calm and listen to the person to figure out what the person needs
Use visual cues first when you want someone to do something
Think before you speak
Establish a daily routine and schedule
If activity isn’t working, stop and do something else
Learn how to respond and not react to what the person does or says
Use humor
Simplify tasks
Ask if the person wants help
Amber
No safety awareness
Living in a moment of time
Focused on sensations (what does it look, sound, taste, or feel like)
Seeks to satisfy themselves
Avoid what is disliked
Visual abilities are limited
Focus on pieces and not the whole picture
Crosses boundaries (wants gratification immediately)
May be very curious or repetitive with objects or actions
Becomes difficult to connect or spend time with the person
Tips to help Ambers
Use behavior to guide your responses
Short visits
Try to figure out what the person needs or is avoiding
Time-out then re-approach person
Slow down or speed up which ever matches the person then gradually change the rhythm and pattern
Share with the team things the person likes, dislikes, music, food, smells, touch
Simplify the person’s world
Exaggerate visual responses, use automatic greetings and movements, limit instructions and verbal info, assist the person instead of doing it for them
Ruby
Slowing down
Difficulty switching from one transitional movement to another
If not moving, can’t go; if moving, can’t stop
Can do big movements but losing fine motor skills (difficulty using utensils)
Safety issues so more falls
Can grossly copy you but doesn’t understand what you want
Losing depth perception; monocular vision
Needs guidance to doing something else due to repetitive movements
Does better with rhythmic beats (singing, praying, rocking, dancing)
Can pick up something but not know what it’s purpose is
Understands big magnified facial expressions and tone of voice
Tips to help Rubies
Slow down
Use automatic responses whenever possible
Breakdown tasks into smaller pieces
Demonstrate activities
Help guide and cue for movements
Don’t push or pull
Limit talking but remember tone of voice
Pearl
Hidden in a shell
They are still and quiet
Becoming immobile
Body and brain are failing but may have times of awareness
Protective reflexes are gone
Connections must be made slowly and won’t last long
Start with a caring touch and a smile
Sometimes can recognize familiar touches, voices, faces, aromas, and tastes
You need to go slow and simplify tasks
Have to let them go
Tips to help Pearls
Observe how and where to approach person
Use voice and touch to let person know you’re there
Try to keep one hand on person’s shoulder or hand while the other hand is doing something
Remember how important touch is
Offer sips of a drink or food
Don’t talk like the person is not in the room
Hand-Under-Hand Technique
Helping technique
Promotes a physical touch connection that is friendly and comforting
Provides sensory feedback and communication
Uses the automatic connection between the eye and hand to form a closed circuit between the person and you
Used to greet someone
Guide someone in desired movements
Essential with the Amber, Ruby, and Pearl Gem stages
Offer handshake -> shift hand so that yours is under the person’s hand with thumbs locked ->lay your other hand over theirs in a “sandwich”
Encourages eye contact and attention
Positive Physical Approach Techniques
Knock on door
Stop about 6 feet from the person
Smile, make eye contact
Call the person by preferred name
Extend your hand to shake the person’s hand (move forward slowly)
Move toward the right side on the person while offering your hand
Shake the person’s hand
Shift your hand so that your hand is under the person’s hand
Give your name and greeting
Get to the person’s level
Now tell the person what you want