LESSON 13: CLINICAL DATA REPOSITORY

Clinical Data Repository

Integrates physician-entered data with data from different existing information systems including laboratory, radiology, admission, and pharmacy, among others.

Clinical Data Repository

It is a location where both clinical data and other data of interest, such as external data sources and financial data, are assimilated (Carter, 2001).

Electronic

Written

Clinical Data Repository, in ____________ or ____________ format, represent an aggregated database of clinical information

Searchable

Exportable

With CDR, data are readily _______________ and _____________,often because the information is gathered from standard clinical care procedures

Patient Demographics

Patient's Primary Care Provider

Medication List, Allergies

Hospital Inpatient Visits

Emergency Department Encounters

Outpatient Practice Visits

Immunizations

Diagnoses

Procedures

Lab Results

Social History

Vitals

Give the 13 common kinds of available information in the CDR.

Clinical Data Repository

A structured and systematically gathered "storehouse" of patient-specific data, which is usually mirrored from a clinical application, or supplemented with data from other clinical systems (Bergeron, 2013)

Integration

Clinical data repositories have different levels of ______________, usually dependent on locations, indices, catalogues, semantic translations or equivalences, syntactic structures, and links to external information.

Functionality

The level of integration of a CDR influences its ______________ by setting constraints on how easily someone can make queries for any of its contents.

Study

Electronic health record

Registry

Warehouse

Collection

Federation

Give the 6 different types of CDR.

Study

A database that collects observations for a specific clinical research

Electronic health record

A database of observations made as a result of direct health care

Registry

Observations collected and organized for the purpose of studying or guiding particular outcomes on a defined population (Associated studies are either multiple or long-term and evolving over time)

Warehouse

A repository that adds levels of integration and quality to the primary (research or clinical) data of a single institution, to support flexible queries for multiple uses (Is broader in application than a registry)

Collection

A library of heterogeneous data sets from more organizations than a warehouse or more sources than a registry-Organized to help users find a particular data set, but not to query for data combined across data sets

Federation

A repository distributed across multiple locations, where each location retains control over access to its own data, and is responsible for making the data comparable with the data of other locations

Time

Location

Diagnosis

The structure of clinical data repositories allows data to be extracted along dimensions such as ___________ (by year, month, week, or day), ______________, or ____________ among many others.

This data can often be accessed in smaller units within the same dimension.

Cross-continuum

CDRs offer a _______________ view of information, since they allow information to be gathered and viewed from sources other than an acute setting.

Ambulatory-focused

This type of ________________ information combines with the acute information to give clinicians a new level of insight into the wellness of their patients.

Data visualization

The art of representing data in a pictorial or graphical format

Visualization

Increasingly becoming an important tool in decision-making.

Scenario analysis

The graphical representation feature of most clinical data repositories enable ________________, which helps users use different kinds of filters in order to change the level of information that may be seen.