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Name specific examples from each of Parr et al.’s thematic categories:
Infrastructural
Interpersonal
Personal
infrastructural: limited access to employment, inadequate income, services (health, housing, education, leisure), resources
interpersonal: limited association to groups in society (community, family, friends), relationships, healthcare professionals, being ignored or ridiculed
personal: isolation, self-identity, low self-esteem, depression, loss of control/independence, anger
global equals what NOT what?
impairment in expressive and receptive language
NOT meaning severe
In summary, 386 stroke-centered hospitals (__%) provide little to no information about aphasia while 32 (_%) stroke-centered hospitals provide decent/good information about aphasia.
92%; 8%
infrastructure is affected even at strome-cetnered hospitals
Speech Language Pathologists (SLPs) and People with Aphasia (PWA) need to team up with the stroke-centered hospital’s Stroke Coordinators (SC) to help ____________ to aphasia awareness and _______ the hospitals, healthcare providers, and the wider public about this thing called aphasia, that few people have ever heard of!
break down the barriers; educate
assessments
Boston Assessment of Severe Aphasia (BASA)
Communicative Effective Index (CETI)- rating scale
For global and severe aphasia, focus on evaluating __________________ and ________________ for ____ communication approach
communication strategies and environmental support; total
(look at the whole picture)
do not rule out what in assessment??
impairment-based assessment and intervention (use A-FROM)
but still make sure to focus on the full picture
CAPE framework
connecting PWA to others
AAC
partner training for important people in environment
education and resources
May be accomplished via aphasia groups, through formal visitation programs, online, monthly support groups, etc
Connecting people with aphasia to others, especially other people living with aphasia.
on a continuum from low tech to high tech--using whatever is most appropriate and functional for that particular person/situation to allow communication and life participation in his/her environment(s
AAC
teaching supportive communication techniques; for example, in an inpatient medical setting, it would be important to train CNAs, nurses, physicians, etc. in addition to family members and friends
Partner training for all important people in the environment
ensuring that these resources are created to be aphasia friendly) as well as providing appropriate national and community resources to family members, friends, and others in the larger community
education and resources
2 parts of principles of supported communication
acknowledge competence
demonstrate competence
acknowledge competence
how do you do that?
natural adult talk appropriate to context (no elderspeak)
sensitivity to partner (take responsibility if unclear)
demonstrate competence
how do you do that?
ensure that PWA understands
ensure that PWA has a means of responding
verification of PWA response not automatically assumed
main points about education
relevant information for family members
caregiver training
resources
Family members want __________ about aphasia at ___ stages (from _____ through _____)
relevant education; all (acute through chronic)
Results suggest that information is not forthcoming or appropriate, and families feel …
uncomfortable asking for information (they don’t know what they don’t know)
in education, what is paramount?
caregiver training
Provide resources about who to contact for ______ and _____ such as…
information and support
National Aphasia Association, ASHA, local associations or groups (UT Health)
Frequent in all types of aphasia, but especially challenging in ____ and _____ aphasias
Global and Wernicke’s; perseveration
what types of aphasia are they aware vs unaware
aware: broca’s- frustrated
unaware: wernicke’s and global
relationship of WAB scores and perseveration
negative!
the higher the perseveration the lower the WAB score is
types of perseveration
Stuck-in-set/ ideational perseveration (conceptual)
Continuous perseveration (only one production of a sound)
Recurrent perseveration (keeps coming up but not continuously)
ideational perseveration example
perseverating on an idea that you want them to do
the inability to shift from one thought or idea to another
Theories based on one of two key components for perseveration (how to get rid of them)
Strength of activation
Rate of decay
strength of activation (AI model)
strength of activation for the target is not enough (inadequate) as it should be and one competitor item is strong
The target needs to be stronger than the one that keeps popping it
train them to ignore the one that keeps popping up
rate of decay
it’s supposed to decay, but in perseveration, it doesn’t decay, it stays in the threshold of activation
reducing perseverations (if decay is the problem)
Establish a new set of tasks intentionally (ex. change from numbers to letters)
Use time-out and distraction (add a distracting comment or short break)
Gently increase awareness of perseverations (be careful, often times just ignore perseverations)
Conceal previous responses (for written perseverations)
TAP
interventions for more severe aphasia
script training
melodic intonation therapy (MIT)
gesture therapy