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AAIDD approach to ID?
IQ 2 standard deviations below the mean 70 or below
Adaptive behavior deficits - 2 standard deviations below mean
before age 18
assessed by levels of needed support
DSM Approach To ID
IQ 70 OR BELOW
Adaptive Behavior deficits in at AT LEAST 2 AREAS
onset before age 18
CATEGORIZED IN LEVELS OF MILD, MODERATE, SEVERE, PROFOUND
85% of all cases are mild form
What are the 4 AAIDD Categories of Risk / Etiology to iD
(1) Biomedical
(2) Social
(3) Behavioral
(4) Education
Flynn Effect
finding IQ scores in populations have increased / improved over time
Levels of needed support according to the AAIDD
Positive Behavioral Support: aiming to increase skills alter environmental contingencies
AAIDD: PRENATAL Biomedical Risk to ID
chromosomal disorders / single gene disorders
syndroms
metabolic disorders
cerebral dysgenesis
maternal illnesses
parental age
AAIDD: PERINATAL Biomedical Risk to ID
prematurity
birth injury
neonatal disorders
AAIDD: POSTNATAL Biomedical Risk to ID
Traumatic brain injury
malnutrition
seizures disorders
degenerative disorders
AAIDD: PRENATAL SOCIAL RISK/ETIOLOGY TO ID
Poverty / lack of access to prenatal care
Maternal malnutrition
Domestic Violence
AAIDD: PERINATAL SOCIAL ETIOLOGY TO ID
Lack of access to birth care
AAIDD: POSTNATAL Social Etiology to ID
Impaired child-caregiver interaction
lack of adequate stimulation
family poverty
chronic illness in the family
AAIDD: PRENATAL Behavioral Etiology to ID
Parental drug / alcohol / smoking use
Parental Immaturity
AAIDD: PERINATAL Behavioral Etiology to ID
Parental rejection of caretaking
Parental abandonment of child
AAIDD: POSTNATAL Behavioral Etiology to ID
Child abuse and neglect / DV
Inadequate safety measures
social deprivation
difficult child behaviors
AAIDD: PRENATAL Educational Etiology to ID
Parental cognitive disability without supports
lack of preparation for parenthood
AAIDD: PERINATAL Educational Etiology to ID
Lack of medical referral for intervention services at discharge
AAIDD: POSTNATAL Educational risk to ID
Impaired parenting
delayed diagnosis
inadequate early intervention
inadequate family support / special educational services
Intelligence
is viewed as consisting of a general ability called g and many specific abilities
[ex. motor / verbal abilities]
What is central in defining ID?
Measures of intelligence / assessments of adaptive behavior is central to defining intellectual disorders
Measured Intelligence involves….
involves the knowledge possessed by a person, the ability to learn or think, OR the capacity to adapt to new situations.
Intelligence is measured to…
to how well a person performs on processing tasks! both general & specific abilities
Mental Age (MA)
the age corresponding to the chronological age (CA).
Average Child: MA = CA
IQ (ratio)
Intelligence Quotient; the ratio of an individual’s mental age to chronological age multiplied by 100
IQ = MA/CA x 100
IQ (deviation)
a standard score shows how much a persons performance is different from the average score for their age group.
it tells us if they did better or worse than most people their age
IQ score can..
can be used to try to predict a persons performance in class / work / other life tasks
can tell us about a variety of social behaviors (social adjustment)
relatively stable scores but not cast in stone! caution is necessary
What is central to the concept of Intellectual Disability?
the failure to adapt socially to ones environment has been central to the concept of [ID].
What are the adaptive behaviors that children/adolescents with ID adopt?
conceptual, social, practical
Conceptual
memory, language, reading and writing, reasoning, problem solving, time, number concepts
Social
awareness of others’ thoughts and feelings, interpersonal skills, social responsibility, self-esteem, gullibility, rule following, avoidance of being victimized, social problem solving, friendship abilities
Practical
activities and personal care of daily living (bathing / cooking / dressing), use of money, safety, health care, travel, routines, use of phone, occupational skills.
What is the relationship between the conceptual domain and intellectual functioning?
the conceptual domain is closely linked to intellectual abilities, focusing on memory, reasoning, and problem solving.
What is in the range of a positive correlation?
in the range of 0.3 to 0.6 between scores on adaptive behavior tests and Intelligence tests.
How does measured intelligence affect everyday functioning?
as measured intelligence decreases, individuals are more likely to struggle with everyday tasks and functioning
How do developmental skills change from early life to adolescence?
early life: focuses on sensorimotor, communication, self-help, and social skills.
adolescence: reasoning and social judgment become more important.
What should be considered when judging adaptation?
consider community expectations and the sociocultural context where the person lives
ex. a child may have social deficits in a school setting and still meet the expectations of the neighborhood.
Why is adaptive behavior important for individuals with ID?
adaptive behavior helps identify the resources needed to support individuals with Intellectual Disabilities
What are the levels / severity of ID?
mild
moderate
severe
profound
What is the Conceptual Domain Description with Mild severity of ID?
no obvious early conceptual differences
difficulties in learning core school subjects / managing time & money
difficulties in executive function skills (planning, setting priorities)
What is the Conceptual Domain Description with Moderate level of ID?
delays in language and pre-academic skills
unlikely to progress beyond elementary level mastery of academic skills
support required for tasks of daily life (managing money) and work
What is the Conceptual Domain Description with Severe level of ID?
limited conceptual skills
little understanding of written language or concepts involving numbers / quantity / time / money
requires extensive supports for problem solving
What is the Conceptual Domain Description with Profound level of ID?
conceptual skills limited to understanding objects and physical world
some skills may be acquired (matching or sorting) may be acquired
co-occurring sensory and physical impairments likely present
likely neurological impairments
What is the Social Domain Description with Mild level of ID?
Develops social / communication skills but can be more concrete or immature than expected for age
difficulties in perceiving social cues & regulating emotions
may be at risk for being manipulated by others (gullible)
What is the Social Domain Description with Moderate level of ID?
Usually develops communication skills but may be much less complex than that of peers
may establish friendships & romantic relationships but limited by communication / social deficits
adapts to supervised community living with supports
What is the Social Domain Description with Severe level of ID?
spoken language limited in vocabulary & grammar
may understand simple speech and gestures ; communication aids help
communication focused on present moment and everyday events
relationships with family members and familiar others provides pleasure and assistance
the Social Domain Description with Profound level of ID?
Very limited understanding & use of communication in speech or gesture
desire & emotions largely expressed through nonverbal communication
enjoys relationships with well-known family members, caretakers, & familiar others
What is the Practical domain with Mild Level of ID?
May function age-appropriately in personal care but need guidance & assistance in daily living tasks
may live successfully in the community with supports
What is the Practical domain with Moderate level of ID?
can care of age- appropriate personal needs with extended period of teaching & time
participation in adult household tasks can be achieved with supports
can benefit from occupational training & support to perform unskilled or semiskilled work
What is the Practical domain with Severe level of ID?
Requires support for all activities of daily living (meals, dressing bathing, elimination)
requires supervision & assistance at all times
most cases, can adapt to community living with family or in group homes
maladaptive behavior, including self injury may be present in significant minority
What is the Practical domain with Profound level of ID?
dependent on others for all aspects of daily physical care, health, safety
may do simple supervised tasks
requires structure & constant supervision for optimal development
maladaptive behavior, including self injury can be present
Most youth with ID: mild
no unusual physical traits
blend into general population
factors especially associated with most severe levels of ID?
Abnormalities of physical appearance / function
medical conditions such as: cerebral palsy, epilepsy, cardiac problems, kidney disease.
Atypical appearance range from?
ranges from minor to obvious
includes: seizures, motor difficulties, impaired vision, deafness
social functioning
relates to a persons social skills / social understanding
the way they interact with those around them
behavioral skills include : eye contact / facial expression / social greeting / reciprocal interaction / expressing wants & needs
What social challenges do youth with mild and moderate ID face?
understanding social cues
navigating social situations
seeing others perspectives
what may cause some social problems in children with intellectual disorders?
intellectual impairments
language deficits
physical / medical issues
What social challenge do youth with ID face?
greater social isolation
the developmental dimension….
emphasizes that functioning in each domain varies at each developmental level.
ex. a child may lag behind in peers in language / motor / academic / emotional / and social skills at one point in development, but this can change with time & support !
psychological dimension of functioning…
includes psychosocial and emotional functioning of the individual
Intellectual disability display varying degrees of
challenging behaviors such as verbal / physical aggression, tantrums, self-injury, other disruptive behaviors
behavioral phenotypes
specific disorder predisposes individuals to certain behaviors
most common single disorder of ID?
Down syndrome; a condition described in 1866 by John Langdon Down
What are some physical, behavioral, cognitive attributes associated with syndromes of ID?
down syndrome
fragile X
williams
prader-willi
Down syndrome: Physical
upward slant & folds at corner of eyes
flat facial features
fissured tongue
broad hands / feet
poor muscle tone
short stature
Fragile X: Physical
long face / large ears / soft skin
high arched palate
double jointed thumbs
oversized testicles in boys ; features less likely in girls
Williams: Physical
“elfnlike” face ( small lower jaw, prominent cheeks)
growth deficiency ; aged appearance in late adolescence or early adulthood
Prader-Willi: Physical
almond shaped eyes / downturned mouth / short stature
small hands / feet
poor muscle tone
underdeveloped gonads
obesity
Down syndrome: behavioral/cognitive features
wide IQ variation; mild to moderate IQ
wide array of behavior problems: noncompliance, stubbornness, argumentativeness, inattention, social withdrawal, depression in adolescence
relative strength in social communication
Fragile X: behavioral/cognitive features
moderate to severe; variable level of IQ
variable behavioral difficulties: inattention, hyperactivity, poor eye contact, shyness, anxiety, autism related features
Williams: behavioral/cognitive features
moderate intellectual disability
delayed in language acquisition but relative strength in language
indiscriminate & overly friendly social interaction
poor social judgment / anxiety/ perseverative thinking
Prader-Willi: behavioral/cognitive features
mild IQ
excessive eating & food-seeking/ hoarding
excessive daytime sleepiness
delayed motor milestones & speech difficulties
obsessions & compulsions
stubbornness / tantrums / aggression / disobedience / anxiety / impulsivity
Parents of children with ID…
worry about child, realize that expectations will never be fulfilled, and can lead to experiencing a stressful / frustrating diagnostic process
unusual amount of attention must be given to the intellectual / psychological / physical needs of kids.
parents face decisions, unique or uncommon in typical families concerning
mothers of children with ID are….
more likely to experience stress, anxiety, depression, other negative reactions
siblings can be….
challenged by the need to accommodate the child with ID & the impact having a child with disability has on family functioning
What is correlated with child’s behavioral problems?
with parental reports of stress, depression, anxiety, and mothers are more affected than fathers
transformation
significant positive changes set into motion by a traumatic / challenging event
Potential rewards?
parents learning to speak out, becoming stronger, seeing life from a new perspective, & having greater compassion
Positive consequences of experience?
increased empathy, patience, acceptance of differences, ability to help others, appreciation for health & family.