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challenges associated with conducting research among those who are dying?
who wants to spend their final days/weeks/months in research?
this is why consent is important
mental capabilities
hallucinations, delusions, ec
communication may be limited
MAID in Canada - what are the two exceptions
Alzheimer’s and Huntington’s disease
if an individual suffers from depression, they cannot pursue MAID !!
death in infancy and childhood
5/1000 newborns do not live until 1st birthday in Canada
for children, accidents are most common cause of death
SIDS
sudden infant death syndrome
parents often feel guilty
leading to many mental health issues - grief, depression, etc.
Developing the meaning of death - kids
kids do not develop the meaning of death until 5
for a long time, they view it as temporary, sleep, etc
not afraid of it, rather more curious when someone passes away
at 9 years old, vast majority of kids realize the universality of death
death in adolescents
understand the finality and irreversibility of death
tend to think it won’t happen to them
death in young adulthood + leading cause of death in young adulthood
feel as they they are just ready to start living their lives and to accomplish their life goals
suicide and accidents
death in middle adulthood + most common causes of death in middle adulthood
life threatening diseases are the most common cause of death
tendency to shift from the number of years lived to the number of years remaining ‘
common causes: cancer and heart disease
death in late adulthood
less anxiety associated with death and dying
perhaps due to prevalence of death among older adults
some older adults actively seek out death
terminal decline
impending death is accompanied by rapid declines in cognitive functioning
occurs a couple weeks before death
components included in the death system
people
e.g. seniors
places or contexts
e.g. car accidents
objects
e.g. weapons
times
e.g. remembrance day
symbols
e.g. skulls
Kastenbaum - culture
issue warnings and predictions
preventing death
caring for the dying
disposing of the dead
social consolidation after death
making sense of death
killing
cultural differences in exposure to death
most societies have philosophical or religious beliefs about death
rituals that deal with death
some embrace it while other are terrified to die
in most societies, death is NOT viewed as the end of existence
functional death
the absence of heartbeat and breathing
brain death
all signals of brain activity have ceased
arguments that we should use whole brain activity as a sign of death → NOT just the brainstem
no activation in the cortex, no higher order thinking → is this a quality we want to preserve?
issues in determining death
decades ago, determining death was more simple
biological functions: breathing, blood pressure, etc
today, brain death is used
monitoring neural electrical activity
advance care planning
process of patients considering and communicating their preferences for how they want to be cared for as they approach death
the vast majority of individuals do not document their wishes. they believe they will survive until the average life expectancy.
living will
legal document that designated what an individual wants or dosnt’t want in terms of medical treatments if they cannot express their wishes
euthanasia
painlessly ending the life of an individual who is suffering from a disease that is incurable or severe disabilities
important dissection between active and passive euthanasia.
active euthanasia
administering medicine to assist in death
passive
taking away life support measures
eg. taking away the equipment needed to survive
Dr Kevorkinan
assisted in ending the lives of MANY terminally ill patients
convicted of 2nd degree murder and served 8 years in prison
known as the suiciide machine/doctor of death
occurred before MAID
hospice
program committed to making the end of life
free from pain, anxiety, depression, etc
differs from hospitals
palliative care
reducing pain and suffering in patients
strongly emphasized in hospice care
children 6-9 years…
death exists, but happens to some people
children 9+ years
death is universal and final
Robert Kastenbaum
even young children experiences are strongly concerned with separation and loss
strive to understand death
best mental health outcome: communicating with children about death and dying
suicide (3)
completed
attempted - may or may not end in death
ideation
approx 3% of pop attempts suicide - 13% report having suicidal thoughts
women are more likely to attempt sucide, men are more likely to complete suicide
kubler ross stages of dying
denial
anger
bargaining
depression
acceptance
issues with kubler ross
existence of 5 stage sequence has not been demonstrated
neglects the specific circumstances of the individual facing death