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What were the origins of ID/DD beliefs?
-demon possession
-sins and misdeeds of ancestors
-warnings or signs from the Gods
-influence of the solar system
Critical disability movement of 1990
-activist wanted congress to pass the Americans with disabilities act
-the movement was organized by grassroots disability rights organization (ADAPT)
AAIDD defnition of con’t
characterized by significant limitations both in intellectual functioning and in adaptive behavior as expressed in conceptual, social, and practical adaptive skills
APA DSM-V definition of con’t
impairments of general mental abilities that impact adaptive functioning in 3 domains (conceptual, social, practical)
developmental disability
91st US congress and passage of the developmental disabilities services and facilitates construction amendments of 1970
Deinstitutionization movement
-seen in the developmental disabilities assistant and bill of rights act amendments in 2000
-DD are severs, lifelong disabilities that attribute to mental and physical impairments manifested before age 22. they result in substantial limitations in 3 or more of these categories:
independent living
economic self-sufficiency
learning
mobility
receptive and expressive language
self-care
self-direction
3 lens to view ID/DD
legal: England’s poor law
Biomedical: regulation, licensing, and due process
social and human rights: critical disability theory
critical disability theory
views disability as a political and social construct shaped by power structures, rather than just a medical problem residing in someones body
nature
-toxic threats can impact prenatal, neonatal, and postnatal
-maternal factors (obesity, diabetes, age, stress), preterm deliver, birth weight, vitamin deficiencies
nurture
-environmental factors are impactful prenatal development to 3 years
-factors include events, toxic substances, social relationships, socioeconomic status, child care
teratology
study of congenital anomalies and their causes
factors that impact teratogens
fetal stage
dosage
fetal genotype
maternal genotype
PUBS
umbilical cord blood sampling, the most risky
epigenetic
change in gene activity that are not due to the actual genes
biochemical process
genetic imprinting in which genes can turn on/off
assessments
investigating and documenting the knowledge, skills, capabilities, attitudes, and beliefs of an individual
ID/DD assessments focus on:
-health and social history
-behavioral characteristics
-day-to-day environment
-interactions
5 general features of assessments
focus on a problem
gather information
analyze strengths, weaknesses, needs
identify factors that can be beneficial
establish agreed upon plan
assessment battery
groups of tools and measures to assess a range of behaviors, skills, attitudes, and intelligence
downsides to formal assessments
location, hours, cost, eligibility (IQ 70-85)
multidisciplinary assessments
combines assessments to create a well rounded reprt
diagnosis
the conclusion from an assessment and is a formal statement identifying a condition that impacts personal characteristics, intellect, development, and behavior
2 types of diagnoses
classification and primary
Diagnosis aligns with this organized and standard criteria
-american psychiatric association (APA)
-diagnostic and statistical manual of mental disorders (DSM)
-international classification of diseases (ICD)
challenges with diagnosing
-location
-timeline
-individual characteristics
-policies
-regulations
-clinical opinion
diagnosis discretion
-whether or not to assign a formal diagnosis by a professional or not
-decisions are made on an individual basis on these factors (accessibility, self-perception, stigma, co-occuring conditions)
interventions
methods aimed at taking intentional action to support individuals and improve their lives and well-being
assessing an intervention
-focused
-clear objectives
-acceptable methods
-continual evaluation
-smooth termination process
-available follow up
types of interventions
-activity focused
-age related
-communication
-education and training
-health and medicine
-lifestyle and personal support
-personal skills development
services/ supports
any available resources and institutions that have a central goal of helping others
self-Advocacy
social movement lens and as a set of necessary skills
Century and the Passive of the Americans with Disabilities Act (ADA) in 1990
enabled individuals with disabilities to exercise civil rights
grassroots organization (ARC) 1974
-group of individuals with ID/DD attended professional conference
-challenged that professionals outside the community were making decisions for the community
-nothing about us without us
Federal Education for all handicapped children act of 1975
evolved into IDEA, every state must have free public education, cannot be restrictive in nature
Legal Guardianships
-parent/ trusted adult are the decision makers for the individual
-3x # of guardianships in the US since 1995
supported decision making (SDM)
give control back to the individual with ID/DD
skills of self-advocacy
-knowledge of self
-knowledge of rights
-communication of self and rights
-leadership
physiological impactful factors on mental health
-support systems
-social skills
-coping skills
organic impactful factors on mental health
-genetic influences
-brain trauma
-trauma
-disease
-etiological differences
environmental impactful factor on mental health
-home environment
-access to activities
diagnostic challenges
-recognition
-communication
-lack of knowledge
-medication masking
diagnostic overshadowing
misattribution of new or existing symptoms to the primary condition when they represent and are associates with the presence of an additional co-occuring condition
ABA
method of modifying behaviors
4 key tenants to ABA
-antecedents
-behaviors
-consequences
-motivating operations
behavioral interventions support
-communication skills
-social skills
-daily living skills
-academic skills
impact of interventions
-behavior enhancement
-behavior reduction
-educational
-eco-behavioral