Psych 20300 citi training

Humphreys' Tearoom Trade Study (1970)

Research that observed men in public restrooms without their knowledge, violating informed consent.

Facebook "T3" Study (2006-2009)

Scraped student profiles without their consent; the data was detailed enough to identify individuals.

Stanford Prison Experiment (1971)

Research where students assigned as guards psychologically abused prisoners, with difficulty allowing subjects to withdraw.

Irish Village Ethnography

Even with pseudonyms, community members felt depicted unflatteringly, leading to reputational risks.

Boston College IRA Archive

Oral history interviews promised to be secret were subpoenaed by the government, showing legal risks.

Informed Consent

A process that includes providing understandable information about the study, ensuring understanding, and obtaining voluntary agreement.

Broad Consent

Prospective consent for unspecified future research using identifiable private information or biospecimens.

Legally Authorized Representative (LAR)

An individual authorized to consent on behalf of a prospective subject for participation in research.

Vulnerable Populations

Groups at risk of coercion or undue influence, requiring additional safeguards in research.

Minimal Risk

Risks related to the study that are no greater than those ordinarily encountered in daily life.

Privacy vs. Confidentiality

Privacy pertains to individuals’ right to control access to their personal information, while confidentiality pertains to the obligation to protect disclosed information.

Certificates of Confidentiality (CoC)

Protect research data from compelled legal disclosures.

FERPA

Family Education Rights and Privacy Act, protecting the privacy of student educational records.

HIPAA

Health Insurance Portability and Accountability Act, protecting private health information.

Assent vs. Consent

Assent is a child's agreement to participate, while consent is typically from a parent or guardian.

Engaged Institutions in Research

Those institutions that recruit subjects, secure consent, or share identifiable data, which require U.S. regulatory oversight.

Online Research Considerations

Includes understanding privacy expectations, documenting consent, and ensuring confidentiality of online data.

De-Identified Data

Data that has had all direct identifiers removed, not subject to HIPAA restrictions.