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Dying
Process — Prior to death. Vary in duration. Experience is different.
Death
End of life. Event. Irreversible cessation of all function of the brain (brain death) or irreversible cessation of circulation of blood (circulatory death).
Bereavement
the state of having been deprived of someone of value through death. Experience of the people who remain living.
Grief
Range of responses or reactions to loss. Internal. Emotional state/reaction.
Mourning
Displays affected by cultural and public norms. Expression of grief. Public display.
Age distribution of death has changed across history - Data
1907 26% of deaths were among young children (0-4) vs 0.6% in 2023.
Median Age at death in Australia (M and F) AIHW, 2023
80 for males
85 for females
The age has increased over time, however, the difference between M and F has not changed.
Speaking broadly, what is the leading underlying cause of death in Australia? (AIHW, 2023)
Chronic health diseases.
Death understanding: The stages
Sequential between age 5-10
Irreversibility
Universality/Applicability
Inevitability
Non-functionality
Causality
Irreversibility
Cannot come back to life. Death is permanent. — Age: 5-6 years
Universality or Applicability
Death only happens to living things (plants, animals, humans) — Age: 7-9 years.
Inevitability
All living things will die eventually. — Age: 7-9 years.
Non-functionality
Bodily functions cease to exist/work/function (e.g.,speech, thinking, hearing)
(?confounded by religion) — Age: 7-9 years.
Causality
Internal (illnesses) and external (car crash) factors that can cause death — Age: By 10 years.
Fear of Death
By age 7 and throughout adolescence, death is the most common fear on the Fear Survey Schedule for Children (FSSC-R; Ollendick, 1983)
Terror Management Theory (TMT) (BECKER, 1973)
Motivation to live VERSUS Inevitability of death
= Existential Terror
Psychological Mechanisms that protect against Existential Terror
1. Belief in cultural worldviews
gain literal (e.g., afterlife) or symbolic (legacy) immortality by ascribing to beliefs
2. Self-esteem
Sense of personal value that is created by living up to the cultural standards created by that worldview
3. Close interpersonal relationships
Feeling securely attached to others provides a sense of symbolic continuity
Provide validation of one’s worldviews and self-esteem needed to maintain confidence in them
Kubler-Ross Stages of psychological reaction to dying
1. Denial and isolation
2. Anger
3. Bargaining
4. Depression
5. Acceptance
Kubler-Ross Stages of psychological reaction to dying — CRITIQUE
(Never intended to imply) Prescriptive linear stages with goal of acceptance
(Never intended to imply) Ubiquity
Different illness courses
A good death — ZAMAN ET AL., (2021) LANCET HEALTHY LONGEVITY
1. relief from physical pain and other physical symptoms;
2. effective communication and relationship with health-care providers;
3. the performance of cultural, religious, or other spiritual rituals;
4. relief from emotional distress or other forms of psychological suffering;
5. autonomy with regards to treatment-related decision-making;
6. dying in the preferred place;
7. life not being prolonged unnecessarily;
8. awareness of the deep significance of what is happening;
9. emotional support from family and friends;
10.not being a burden on anyone; and
11.the right to terminate one’s life
Patterns of Grief — SZUHANY, 2021
Stable low grief symptoms - 26-45% (← Most people)
Stable high levels of grief – 7-10% (← Might require additional support)
Risk factors for Prolonged Grief
7-10%
Older age
Female
Lower SES
History of depression, bipolar disorder or childhood adversity
Early depression symptoms post-loss
Caregivers, especially if they were caring for a partner or had experienced depression before the loss.
Sudden or traumatic death circumstances
Maladaptive thoughts (e.g., blame)
Avoidance behaviours
Inability to manage painful emotions
Lack of social support that interferes with adaptation to loss
Current theories of Bereavement
― Dual processing Model
― Meaning reconstruction
― Attachment
― Continuing Bonds
― Mental representation theory
Dual Processing Model — STROEBE & SCHUT (1999)
Coping Model.

Reconstruction of meaning — NEIMEYER (2001, 2019)
Death can lead to disruption in one’s life narrative and core beliefs about the world
Coping with grief involves creating new meaning
Sense-making
Benefit-finding
Identity reconstruction
Attachment theory — BOWLBY
Secure attachment – react emotionally to loss, but not overwhelmed by grief. Generally cope well unless there is traumatic circumstances or betrayal.
Dismissive attachment – inhibited grief, less overt emotional reaction, supress/avoid memories
Preoccupied – chronic grief, high emotionality and expressiveness in grief, inability to talk or cope constructively
Disorganised – difficulty talking coherently, poor adaptation, ?trauma response
Continuing Bonds — KLASS, SILVERMAN & NICKELMAN (1996)
Challenged the belief that ties to a decreased person need to be relinquished for adaptive bereavement
Establish and maintain continuing bonds with the deceased person
Moving from a concrete attachment to a symbolic attachment
“Life ends but not a relationship”
Mental representation theory — BOERNER & HECKHAUSEN (2003)
Framework for mental representations of the deceased
Stored in explicit memory and can be retrieved by a bereaved person for comfort or discomfort (e.g., my mother was never helpful, so I will make sure I do things differently).
Explicit and implicit representations affect the extent and kind of bond to the deceased.
Adaptive coping involves connection and disengagement.
Growing around grief — TONKIN, 1996
Grief doesn’t disappear from our lives, but becomes incorporated into it, changing and moving as our life changes.