Neurocomm: Counseling & education

Topic 8

what percentage of PWD are cared for in their home by family members

80%

what percentage of caregivers are women

60

how many canadaians are expected to have AD or a related disease by 2030

1 million

What is the goal of counsilling

to help families cope w difficult changes + facilitate interactions btwn individuals

How do you achivee the counselling goal?

• Normalizing difficult experiences

• Decreasing social isolation

• Providing emotional & educational approach

in councelling, what do you NOT aim to provide

factual information

What are the 5 pinciples of counselling

• Attending + listening

• Neutral tone of voice

• Non-blaming language

• Respect

• Empathy

what are the issues for caregiver (think FLASHD MC)

• Medications

• Driving

• Handling difficult behaviour

• Safety and home environment

• Activities of daily living (ADLs)

• Legal issues

• Finances

  • Often people with PPA are still at workforce age = possible financial difficulties

• Communication

  • What we work in!!

what are the 4 interdependant and overlapping themes for caregiving from spouse perspective?

• Acknowledging disconnect in the spousal relationship

• Living the decline

• Readjusting sense of self

• Getting on with living

accoring to ccaregivers, in nvPPA, what tends to decline first

speech/language → social cognition

accoring to ccaregivers, in svPPA, what tends to decline first

social cognition ≈ language

accoring to ccaregivers, in lvPPA, what tends to decline first

social cognition → language

what is in SLP domain for counselling

• Emotional components of communication difficulties

• Reaction to speech/language Dx

• Transitions and loss of communication abilities

what is NOT in the SLP domain for counselling

• Depression

• Suicidal ideations

• Family dynamics

• Marital problems

• Elder abuse (need to report)

• Legal conflicts

• Financial problems

when being culturally sensitive what are the things you take into consideration?

• cultural diversity in toronto

• variety of communication styles

• unique response to illness

what are the 5 stages of grieving (DABDA)

denial

anger

bargaining

depression

acceptance

Descibe the denial stage

At the very onset/beginning, any push away.

describe the anger stage?

“How/why could this happen to me?!” “This is not fair!” “He led a healthy lifestyle!” “He had a good education, he reads, he cares for himself, why him?”

decribe the bargaining stage

“What can I do to change it?” “Will things change if I do x?”

describe the depression stage

“What’s the point?” “Why bother?” “I cannot change anything.”

describe the acceptance stage

“I can’t change what happened but I can learn to manage it. It will be okay.”

do these stages happen sequentially or varies between patients

varies between patients

What do support groups do for dementia clients (SHAID)

• Share feelings + experiences in a supportive, non-judgemental environment

• Discuss their relative’s condition + communication impairments/strategies

  • + practice strategies!

• Inform group members abt community resources/current research

• Help to use problem-solving strategies to resolve concerns

• Assist families in coping with the challenges of changing roles, progression, acceptance, etc.

what is the FTD paradox

• tudy done with people with behavioural variant FTD (characterized by abnormal behaviour and poor executive fxn leading to socially inappropriate behavior, yet good language, reasonable memory)