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An organized system for collecting, maintaining, and analyzing information about individuals who share a disease, condition, procedure, or event.
Registry
A registry focused on patients with a particular disease or diagnosis.
Disease registry
A database that collects information about cancer cases, treatment, and outcomes for surveillance and research.
Cancer registry
A registry that tracks congenital anomalies or birth defects for surveillance, research, and prevention.
Birth defects registry
A database that collects standardized information about trauma patients, injuries, treatment, and outcomes.
Trauma registry
A disease registry used to track patients with diabetes and support population health and quality improvement.
Diabetes registry
The standardized criteria used to determine whether a patient or event qualifies for inclusion in a registry.
Case definition
The process of identifying patients or cases that meet the criteria for inclusion in a registry.
Case finding
Ongoing collection of information after initial registry entry to monitor status, treatment, recurrence, survival, or outcomes.
Follow-up
The submission or presentation of registry data to required agencies, organizations, or stakeholders.
Registry reporting
An index of patients organized by diagnosis or disease to support retrieval and analysis.
Disease index
An index of patients organized by procedure or operation to support retrieval and analysis.
Procedure index
A source containing data originally collected for another purpose, such as indexes, registries, claims, or databases.
Secondary data source
Administrative data generated through the billing and reimbursement process and often reused for analysis.
Claims data
An organized collection of patient-level clinical information used for care, research, quality, or analysis.
Clinical database
A source that consistently provides accurate, dependable, and trustworthy information.
Reliable data source
A centralized repository that integrates data from multiple sources for reporting, analytics, and decision support.
Data warehouse
The electronic movement of health information among authorized organizations or systems.
Health information exchange (HIE)
Coordinated, consistent care across providers and settings supported by access to relevant patient information.
Continuity of care
Technology that provides clinicians with patient-specific information, alerts, reminders, or knowledge to support decisions.
Clinical decision support system (CDSS)