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Major Goal for Pediatric Nursing
Improve the quality of health care for children and their families
So talking about pediatric nursing specifically, the major difference is that often times you are treating the family more than you're treating the patient because they are too young and even if they are older the parent is in control of the child's health care so just make sure that you are kind of involving both parties equally
Health Promotion in Children
6 Categories Of Behavior:
Tobacco Use
Behavior that results in Injury & Violence
Alcohol & Substance Use
Dietary & Hygienic Practices that cause Disease
Sedentary Lifestyle
one of the big things that they've been focusing on for a while is the sedentary lifestyle which is leading to kids that are overweight and obese because our kids are spending more time on screens and phones and things like that and not getting outside and playing and running around
Sexual Behavior that causes Unintended Pregnancy & Disease.
the overarching goals are to basically increase their quality and length of healthy life and also to eliminate any health disparities that exist
Nutrition
Nutrition is an ESSENTIAL component for healthy growth and development.
specifically brain development
Human milk is the preferred form of nutrition for all infants.
and human milk as we've said before “breast is best” however fed is really best If the mom's not comfortable breastfeeding or isn't producing breast milk you know it's absolutely okay to feed the child formula
the reason why they say that breast does best is because it gives things like micronutrients immunologic properties and several different enzymes that enhanced digestion and absorption of various nutrients
Family Centered Care
Family-Centered Care (FCC)
Recognizes the family as the ONE CONSTANT in a child’s life.
family is the one constant in a child's life, it's the one thing that kind of doesn't change for them and so because of that we want to make sure that we include the family and we enable them and Empower them to be part of their child's care
2 Basic Concepts of FCC:
Enabling
Empowerment
Key Elements of Family Centered Care
**Systems must support these & Needs of ALL family members should be met
family is the one constant in a child's life, it's the one thing that kind of doesn't change for them and so because of that we want to make sure that we include the family and we enable them and Empower them to be part of their child's care
we also need to keep in mind that the definition of family is whatever that individual considers family to be
you do have to be careful with that though because even though you know someone’s like family to them they're not family and so you have to take into account things like HIPAA and that sort of thing
What are the two basic concepts in family centered care?
2 Basic Concepts in FCC:
Enabling families by:
Creating opportunities for ALL family members to display their current abilities & competencies
that could be something as small as changing a diaper especially if you have a baby that was born really premature that can be very scary and so allow them the opportunity to do that and praise them for how they we're able to complete that task
Acquiring new ones that are necessary to meet the need of the child & family
Empowerment
as far as empowering them basically you want to help them get a sense of control because when their child is admitted to the hospital for whatever reason they really feel like they've lost control and someone else that being like the medical team the nursing staff they are the ones now in control of their child so making sure that you Foster their strengths their abilities their actions and really encourage them is extremely important
Interaction of professionals with families in such a way that families maintain or acquire a sense of Control over their lives & make positive changes that result from helping behaviors that foster their:
Strengths
Abilities
Actions
Atraumatic Care
The provision of therapeutic care that eliminates or minimizes the psychologic & physical distress experienced by:
Children
Their Families
Goal:
First-Do NO Harm
Minimize Separation from the Family
Promote Sense of Control
Prevent/minimize Bodily Injury & Pain
Pain prevention?
we try to keep their room their safe space
and so if there's something that we're going to do that's going to cause them to be in pain or uncomfortable pediatric hospitals have treatment rooms it's expected that you take the child down to the treatment room if you're doing something like starting an IV putting in a foley catheter straight catheter, really even if you're getting like a blood sugar you know it should be done in the treatment room I can tell you from experience that that is not always done as it should be but it is the expectation
Role of Pediatric Nurses
Pediatric Nurses MUST relate to:
Children & Their Families
with children it's their parents that are in control of their treatment so that's the biggest difference or shift that you're going to see
Therapeutic Relationships
Essential foundation for Quality nursing care
Possess caring, well-defined boundaries separate the nurse from the child and family
it is important that you separate yourself to some degree from the child and the family because if your working in an area where you have children that are admitted for long periods of time you do start to get attached to that family and that child
Advocate
Child
Family
of course we know that we're advocating not only for the child but the family as well and it's really our job to help them make sure that they are making informed decisions but our partner in that is really social services or social work because they will really help them as far as you know knowing what health services are available and things of that nature
Nurse assists them in making informed choices:
Aware of all available health services
Informed of treatments & procedures
Involved in the child’s care
Encouraged to change or support existing health care practices
it's important that you consider family structure when you're taking care of these children because you can't assume that there's a mom and a dad you know it may be a single parent family it may be a same sex family
it's important when you are entering the room and there is an adult at the bedside that you introduce yourself and you immediately clarify who the individual is at the bedside and that is important for a number of reasons
Communication with Parents
Establish a Setting
Introduce yourself—as the RN
Ensure Privacy & Confidentiality (HIPAA)
Confidentiality of teenagers too
if they are under the age of eighteen their parents are still technically in charge of their medical care and therefore are able to know their medical information with the exception of certain diagnoses on pregnancy things of that nature
so it's important to let the teenager know you know I do have to discuss this with your parents or if your parents ask I can't keep this from them or so on and so forth
Encourage Talking
but it's very very important especially with the Adolescent population that you encourage them to talk because a lot of times talking to them is going to help get to the bottom of what is going on with them
sometimes of course cultural awareness is a huge thing
Direct the Focus
Listening & Cultural Awareness
Silence, Empathy, & Providing Anticipatory Guidance
Avoid Communication Block
Open Ended Questions & Expressions of Feelings
A lot of what you're doing is communicating with the parents
You still need to include the child in the conversation if they are old enough to be part of the conversation and I'm talking like just even toddlers like acknowledging them talking to them you know making them feel like they're not being ignored
What should the nurse take into consideration when interviewing a parent?
if the nurse is going to interview the parent for any reason it's important to make sure that we give the child something to do while that interview is occurring
so in this instance you know the child has the toys that they're playing with and Mom is discussing you know whatever it is with the nurse
Communication with Families Through an Interpreter
Know your institutional policies!
we have to understand that family cannot interpret medical information
now if you want to ask a question like you know are you thirsty do you want water or something like that then yes they can interpret that but when it comes to medical information you absolutely have to have a certified interpreter
Principles of Communication with Children
Guidelines for Communication With Children
Make communication Developmentally Appropriate
doesn't always mean based on their age they may be 8 years old but have the developmental capacity of a 4-year-old so we need to make sure that we're talking to them as we would talk to a four year old
Get on child’s eye level
that removes kind of like the scary bit of you kind of looking over them and doing things to them
Approach child gently/quietly
Always be truthful
you want to make sure that you are always truthful to them because if you're not they will shut down communication pretty much immediately especially when you start getting like to school age and Beyond so if they are asking if it's going to hurt and you're doing something that's going to hurt like drawing blood or starting an IV or whatever you need to tell them like yes it's going to hurt but it will only be for a second you know and then it will be over and we won't have to do that again or whatever
Give child choices as appropriate
when it's possible give them choices you need to give them choices that aren't like yes and no
so like you don't want to say you know do you want to get washed up because they're going to say no, so you would say hey we're going to get washed up would you like to take the washcloth and wash your arms or would you like me to use the washcloth and wash your arms you know so still getting choices but the bath is going to happen
Involve Child in Communication
kids that are five and under are very egocentric so they only see things in relation to themselves so it's very important that you include them
Principles of Communication with Children (cont’d)
Avoid Analogies & Metaphors
kids take things very literally
Give Instructions Clearly & in a Positive Manner
you have to be very clear with your instructions and no matter what it is that you're instructing them on you have to make it seem like it's a positive thing it's a happy thing that sort of thing
Avoid long sentences, medical jargon; think about “scary words”
we want to avoid like words that would be considered scary words like Cuts, stick, tubes even blood pressure because it has the word blood in it you know most of the time we say you know we're going to give your arm a hug or give your arm a squeeze or you know whatever it may be
Give older child opportunity to talk without parents present
Be Culturally Aware
Communication
When dealing with the young child or infant most communication will be with the parents
Communication with the child and infant will come in the form of PLAY
PLAY IS THE UNIVERSIAL FORM OF COMMUNICATION
Older children, communication will come in the form of direct questions
We want to make sure that we allow them to play whenever possible and understand that they will oftentimes communicate something to you that they wouldn't otherwise communicate when they're playing
What is the universal form of communication?
Play
Infants: Developmentally Appropriate Communication
Nonverbal
Crying as communication
Types of cries
Hunger
Pain
Body restraint
Loneliness
and they have different types of cries now we as their caregivers may not recognize these but most of the time a parent can tell
so you at this age can say anything to the infant as long as you are using the right tone of voice which is like a cheery voice
they do respond to voices so if you raise your voice or you have kind of like a deep tone to your voice it may scare them and make them cry so just keep that in mind
Early Childhood: Developmentally Appropriate Communication
Focus on CHILD in your communication—Egocentric
so make sure to include them when you're talking
Explain what, how, and why
Use words they will recognize
Be consistent: don’t smile when doing painful things
They assign Human Attributes to inanimate objects-ANIMISM
Fear objects may jump or bite
make sure that you don't call them like kids or babies because they feel like they're you know they're big and so they can perceive that as kind of like an insult
Animism
Seen in Early Childhood
They assign Human Attributes to inanimate objects-ANIMISM
Fear objects may jump or bite
so it's important that you allow them to ask questions about devices & you allow them to touch it you know feel it those sorts of things so that they are less afraid of it
School-Age Years: Developmentally Appropriate Communication
School-Age Years
Explanations & reasons for everything
make sure that they are clear about what is going on
Interested in the functional aspect of procedures, objects & activities
Have a heightened concern of Body Integrity
they really have a heightened concern with body Integrity which means they're sensitive to anything that might constitute a threat or a suggestion of injury to their body
Adolescent: Developmentally Appropriate Communication
Be honest with them
Aware of Privacy Needs (HIPPA)
Again their parents are still their Guardians and they are privy to their medical information
Think about developmental regression
even though they're adolescence they might have some developmental regression when they are sick or admitted to the hospital such as things like you know wanting their mom when you know prior to getting admitted to the hospital you know they were seeking Independence
Importance of PEERS
and then of course peers are extremely important to them they worry while they're in the hospital that they're friends are going to forget about them it's really important that you reassure them
Communicating With Adolescents
Play in Communication
Universal Language of Children
Effective Communication Technique
Peek-a-boo with an older infant of developing trust
Children’s “work”
Play
As THERAPEUTIC intervention
As stress reliever for child & family
As pain reliever, distracter
As barometer of illness
if you have a child that is not wanting to play it can be a barometer of them being ill
infants learn through all of their senses so allowing them to play with various things is really going to help them grow and gain new skills
Communication Through the Use of Traditional Objects
Communicate through objects such as:
Dolls
Puppets
Stuffed Animals
that object can go with them to the operating room to the point that they are anesthetized and then at that point they will take that object away just because they need to create a sterile field
that just helps the child feel safe and it also helps them transition
General Approaches Towards Examining a Child
Head-to-toe sequence for assessing adult clients
Sequence for pediatric assessments generally altered to accommodate child’s developmental needs
for a pediatric assessment we really have to alter it depending on the age of the child and their developmental level so you might have to go back a couple times to get a full assessment of a child because it may require for you to build kind of a little level of trust with them before they let you do all the pieces of the assessment that you need to do
if you go in and they are quiet and they are sleeping I would try to start with things like listening to the lungs or listening to the heart because if they wake up and they're crying and things like that you're not going to be able to hear those
in addition if you have a kid that you know wakes up and they're super upset if you're trying to get vital signs you're going to notice that blood pressure is elevated heart rate is elevated so you're probably going to need to wait on those things until they calm down and again that might require another trip back into the room so just keep that in mind
Preparation for Diagnostic and Therapeutic Procedures
Psychological prep
Establish Trust & Provide Support
Parental Presence & Support
This is difficult for parents too
you just don't want to give them that sense of false hope
Provide an Explanation
Age appropriate
Consider Developmental Age
Playing with Medical Devices
Playing with medical (therapeutic play) provides children with the opportunity to play out fears and concerns with supervision by a nurse or child life specialist.
Allowing kids to have that therapeutic play where they're playing with medical devices that you know at some point are going to be utilized on them like a blood pressure cuff or a stethoscope or whatever it may be will definitely help with their fears and their concerns
often times your child life specialist can help facilitate this
Play Activities for Specific Procedures
How to encourage fluids
Cough & deep breath
So there are things that we are going to need kids to do that you're not going to be able to do in the same manner that you would do with adults
so for instance post-surgically if you need an adult to take you know a deep breath and cough you would give them an incentives spirometer and explain that to them and that they need to do 10 breaths every hour and so on and so forth
with kids, even your school age kids are not going to understand how to use an incentive spirometer so you are going to have to make a game out of it
Definition of Family
No universal definition
What an individual considers it to be.
Just understand that if a person considers them family even though they're not necessarily family we treat them like family while being cognizant of our adherence to HIPAA
Traditional Nuclear Family
a traditional nuclear family
which is where you have a mother and a father they're married and then they have their biological children
Nuclear Family
nuclear family
which means there are two parents and their children but they're not necessarily married the children may be biological children they might be stepchildren they might be half siblings they might be adopted so that's the nuclear family
Blended Family or Household
a blended family or household is where you have step parents and step children
Extended Family
Extended family
you see this more frequently in certain cultures where they have grandparents Aunts Uncles cousins Etc that all live in one household Under One Roof and sometimes the grandparents kind of assume the parental role other times the actual parents assume the parental rule it just kind of depends on who's working outside of the household
Family Structure Continued
we also have single parent families which are seeing more and more of
same sex families
where there's two mothers two fathers we're seeing more of those
we're also seeing the roles change as we're seeing more stay at home dads we're seeing a lot more families we're both parents are working and that changes the dynamic of the family as well
and we're starting to change in our culture what we see as acceptable
you never want to assume who is in the family you always want to ask you know what is your relationship to the child you don't want to assume because there's a female at the bedside that that's the child's mother or vice versa if you have a male at the bedside
Family Roles & Relationships
Family strength and unique functioning styles
The nurse can use strength and styles to meet the patient’s needs
we want to use their strengths, so for instance if you know that they're a religious family maybe they have a church family that you might suggest that they lean on to help you know perhaps with meals or if they have other smaller children that they need assistance with while they're visiting, those sorts of things
Parental roles
Family size and configuration
We have family sizes that are smaller today than when our parents and Grandparents were young
so just considering that family size and configurations different than it used to be,
when you have small families parenting tends to be more intensive children tend to be compared often with their peers or their friend groups and you have a child who generally identifies more strongly with their parents and is likely to ask for advice from them
so with large families essentially they're able to the kids tend to be able to adjust to changes more easily just because in a larger family there's a lot of coming and goings and lots of changes occurring having cooperation within the family is essential they do have reduced one to one contact with their parents so siblings a lot of times tend to turn to each other instead of to their parents
Changing roles in the family
Parenting and divorce
Impact of divorce on children
Telling the child
it's very important that the parents prepare the child for the divorce
it's great if initially the parents can have that conversation together with the child it will really help them understand it more and be able to cope with it better essentially
so if you have a child that's going through a divorce in their family essentially their age their gender are going to kind of depend on how they react to it and then the outcome
so is it a friendly divorce or is it a divorce or the parents are battling back and forth
you may notice that these kids have trouble sleeping they might have a drop in their grades if it's a school age child
Custody and parenting partnerships
custody is really provided to the parent that's the best able to provide for the child's welfare
sometimes that means that each parent is equally able to provide for the child's welfare and therefore custody may be 50/50,
custody might be awarded to one parent with visitation to the other
it can be divided multiple different ways where maybe one child will live with one parent and other children live with the other parents
usually they try to keep the kids together but that may not always be the case
they can have joint custody
if they have physical joint custody parents alternate the physical care of the child
if they have joint legal custody the child lives with one parent but both are Guardians
it's important that we know about custody arrangements so we can always make sure that the correct parents is signing consent for certain procedures or surgeries
Family Assessment
Family Assessment is a component of the history taking process
It is a collection of data about the family and the relationships of the family members
Also assess for the following:
Type of home (number of bedrooms)
Sleeping arrangements
Education and occupation of family members
Cultural & religious traditions
are there any cultural and religious Traditions that will impact how we care for the child
Communication between members
are they on good terms are they on non-speaking terms
because that might mean they don't speak that we have to give the same story twice whereas if you know there's good communication between the members of the family
Recognizes the family as the ONE CONSTANT in a
child’s life.
**Systems must support these & Needs of ALL family members should be met
don't forget about the siblings you want to make sure that you're paying attention to all members of the family and they all need to be included in decisions to change the care of the child
so for instance if we're going the palliative care hospice route you don't want to just consult palliative Care or hospice without talking to the parents first so that they can be a part of that of that care
What are the 2 key elements of family centered care?
2 Basic Concepts of FCC:
Enabling
Empowerment
Key Elements of Family Centered Care
Children with Chronic or Complex Diseases
Scope of the problem
Increasing viability of preterm infants
we've made a lot of effort over the years caring for children that are born early specifically those children that are born before 30 weeks but those children still have lifelong chronic illnesses
Portability of life-sustaining technology
we do have more life-sustaining technology that's portable so for example we have portable vents we have portable oxygen we have portable IV pumps we have a lot of things that you know the parents can just hook up to their child and take out with them
Life-extending treatments
we have a lot of increase in life extending treatment so for instance we have better antibiotics we have chemotherapies that are more specific to the type of cancer that the child may have those sorts of things
Rise in the numbers of children with complex and chronic diseases
we don't necessarily have an increase in that, but we have an increase in chronically ill children that are able to survive because of the life-sustaining technologies that we have that we didn't use to have
The Family of a Child with Chronic or Complex Conditions
Effects of the child’s chronic illness or disability
for the family of a child with chronic or complex conditions it's important that we're always looking at what impact that child's illness has on the family
Parents
Parental roles
One remains at home to mange
Other parent may feel left out
Role Conflict
Burden of care
is it impacting the parental roles are they having caregivers strain
Financial burden
they may have to have one parent that stays at home to manage child care and therefore they have Financial burdens
Hereditary nature of disease
they may fear having anymore children
Fear of child dying
the RN can help to avoid conflict by making sure that teaching addresses the specific stressors of that family especially for those that have an identified impact on the parental relationship or marriage diagnosis and that child actually going home are the most critical times for parents because they may feel very overwhelmed and we need to make sure that we're providing appropriate education to them
Siblings of a Child with Chronic or Complex Conditions
Siblings
May have a distorted view of the truth
their parents may not be completely be honest with them as far as how ill their siblings are
they only over hear parts of conversation so they're usually going to think the worst or they may be completely oblivious as to how their sibling is
Supporting Siblings of Children with Special Needs
Promote Healthy Sibling Relationships
Help Siblings Cope
Involve Siblings
the siblings may need play therapy as well
jealousy and resentment or not uncommon just because they feel like that sick sibling is getting all of the attention
and it's important that we encourage the parents to make sure that they're showing emotions to the siblings especially if the siblings are older and helping care for the child of special needs
Coping with Ongoing Stress and Periodic Crises
Concurrent stresses within the family
so any family that has a chronically ill child is going to have an increase in stress within the family
it may be periodic crises so maybe when the the child gets admitted for an acute exacerbation of whatever they're diagnosis is
Additional stressors
some additional stressors perhaps they're homeless, maybe the parent has an alcohol or drug problem
Coping mechanisms
Behaviors aimed at reducing tension
when we're watching for coping we really want to watch for avoidance behaviors
so for instance they have a mandatory education that they need to complete before they can take the child home and they just don't show up for those educational sessions they're refusing treatment for the child they're angry or hostile towards staff those are all avoidance behaviors that we need to address and we may need to get Social Services or social work involved
Parental empowerment
Recognizing, promoting, and enhancing competence
parental empowerment will likely come as they start to master their child's care so they're able to manage that family life the plan for the future, the financial burdens Etc
Assisting Family Members in Managing Feelings
Shock and denial
Especially at diagnosis
it's really important that as they adjust they have an open admission that that condition actually exists, they may be in denial of it to begin with
they may need information repeated they can't believe that this is real so they may ask the same question over and over again because in their mind they're really hoping for a different answer
important to just give them consistent answers
Adjustment
our goal for nursing is really to assess their ability to adapt to whatever this disease process is causing, to change their family so the effects of the crisis, especially offering emotional support and guidance early on.
Reintegration and acknowledgment
Establishing a support system
some realistic expectations about how family life will be now so it's kind of that anticipatory guidance
Nursing Care of the Family and Child
Assessment
their ability to cope, their parental knowledge levels, they're coping mechanisms
it's important that you observe the responses to this disorder their ability to function adaptive behaviors exploring understanding of their illness and providing support for that child that is affected
Providing support at time of diagnosis
Supporting family’s coping methods
Parents
Parent-to-parent support
Advocating for empowerment
Maybe they can be on a committee on that focuses on the disease process that their children have
The affected child
Siblings
and then of course the siblings making sure that you're always including them because they may feel left out
so really encouraging the parents to express their feelings
they might have an online communication board that they're apart of
being in videos that help support other parents with the same children with the same diagnosis
The Child with a Chronic or Complex Condition
It is normal for children with chronic or complex conditions to have periods of sadness and anger that's kind of part of their adjustment to chronic illness so they may go through those things intermittently
Promoting Normal Development in a Child with a Chronic or Complex Condition
The thing that we really want to promote is normal development
Early childhood
Basic trust, separation from parents, beginning independence
so in early childhood if they're diagnosed with the disease process the parents tend to be very overprotective they have to understand the child's need for autonomy and socialization outside of just the parental unit
School age
school age: ask them questions don't just let their parents speak for them
it's important that they return to school as soon as possible so that they have that kind of industry versus you know inferiority and that they have activity
it's important that they keep up on their homework when they're in the hospital if they can because it will decrease the stress that they feel when they return to school after their hospitalization
Preschool
preschoolers: they sometimes feel guilty, they feel like they cause the illness so it's important that we let them know that it's not their fault
Adolescence
Developing independence/autonomy
with adolescence we can help them by identifying what their needs are and allowing them to be an active participant in their care
it's normal for them to participate sometimes in Risk taking Behavior
so let's say they got a new diagnosis of diabetes and now they're not taking their insulin it may be to the point where we need to watch them give themselves insulin or take their oral hyperglycemics so just making sure that they're following the plan of care and it's always important that we allow them to express their opinions on various matters
Children’s Understanding and Reactions to Death
Infants/Toddlers
Preschool
Magical thinker
Thoughts are all powerful
they're very interested in like what funerals are and what a burial is they tend to feel guilty or responsible for the death of that sibling
Adolescents
Most difficulty dealing with death
adolescents they have the most difficulty dealing with their own death because they understand what death is and if they're acutely ill with a chronic illness they understand that death may be something that comes to them sooner than if they were not ill
essentially you really don't know how a child's going to respond
then really it depends on the child if attendance at the funeral of a sibling is you know feasible or not it depends on the child not just the age
it's really going to depend on the child and how they've coped with the diagnosis and the death of the sibling