Author: Aurora Levins MoralesContext: Based on a keynote talk at the National Coalition for Latinxs with Disabilities, Berkeley, California, June 2017.Significance: This talk is pivotal in discussing the multifaceted intersection of personal health, identity, and the pervasive effects of systemic oppression that impact marginalized communities. It unfolds the complex ways in which societal structures affect the health and lived experiences of individuals, particularly within the Latinx community.
Mother: Rosario Morales, who was a proud feminist radical with indigenous Puerto Rican roots, faced significant challenges linked to mental health issues. Her experiences highlight the ongoing dialogue about mental wellness within marginalized cultures.
Father: Richard Levins, a Ukrainian-heritage Jewish scientist with strong socialist beliefs, struggled with chronic health conditions, demonstrating the impact of socio-political views on personal health narratives.
Aurora Levins Morales herself lives with epilepsy, experiences chronic illness resulting from pesticide exposure, and endures the lasting effects of brain injuries. She speaks candidly about how her experiences with extreme sexual abuse have compounded her health issues, showcasing the critically intertwined nature of trauma, health, and identity.
Aurora reveals the historical narrative that connects her family's experiences, including her mother’s death from blood cancer attributed to harmful pesticide exposure, which further illustrates the impacts of colonialism on health outcomes.
The talk addresses the concept of “Puerto Rican syndrome,” criticizing its misunderstanding in U.S. psychiatry, which often disregards cultural contexts of pain and mental distress. Aurora highlights traditional cultural healing practices that Western medicine frequently overlooks, arguing for a more inclusive understanding of mental health.
She discusses how societal frameworks condition bodies to conform to economic systems that prioritize profit over individual needs, leading to systemic neglect of marginalized communities. This exploitation is framed as both a social and economic injustice, emphasizing the repercussions of ignoring marginalized identities.
Aurora articulates that Latinx identity emerges from a rich blend of various heritages, yet it exists under constant threat from dominant societal narratives that often erase or misrepresent these identities. The influence of colonial legacies on health perceptions illuminates the necessity of understanding identity not just as a personal story but as a collective historical battle.
Emphasizing the importance of personal narratives, she illustrates how storytelling serves as a means of reclaiming lost identity and fostering agency. Collective storytelling is presented as a vital tool for promoting social understanding and improving community health outcomes.
Aurora encourages individuals to share their personal experiences as a form of resistance against systemic erasure, urging them to confront and reject narratives imposed by dominant cultures that do not reflect their truths.
In highlighting the differences between U.S. healthcare and the Cuban rehabilitation model, Aurora provides insight into how community care and solidarity can lead to better health outcomes. She shares personal anecdotes that emphasize the necessity of nurturing environments in the healing process, showcasing alternatives to currently dominant healthcare practices.
Aurora advocates for a society that recognizes and accommodates the diverse needs of body-minds. She discusses the imperative for systemic changes in societal definitions of disability and worth, promoting a more inclusive and just framework for healthcare and social support.
The talk culminates in a passionate call for the urgent need to build communities that prioritize shared values of justice and inclusion. She advocates for the inclusion of disabled voices in leadership positions within social justice movements.
Aurora argues that achieving true justice necessitates a decisive shift away from profit-driven narratives towards practices that are inclusive, equitable, and centered on human dignity.