1. Self-Management of Chronic Illness

• Definition of Chronic Illness

  • Any condition lasting at least one year

  • Impacts Activities of Daily Living (ADLs) and Quality of Life (QOL)

  • Requires ongoing self-engagement by affected individuals

  • Necessitates regular interactions with healthcare teams

• Attributes of Effective Self-Management

  • Ability to monitor clinical status and symptoms

  • Prevention of health crises or flares

  • Avoidance of triggers

  • Problem-solving and symptom management

  • Execution of an action plan as necessary

  • Management of medication and treatment

  • Coping with the emotional and functional impacts of the illness

  • Dietary management and complication prevention

2. Chronic Illness Trajectory

• Trajectory Model Phases

  • Health

  • Acute Onset

  • Stable phase

  • Downward trajectory

  • Crisis moments and return to stability

  • Final phase of dying

3. Co-Morbidities in Chronic Illness

• Prevalence and Impact

  • Approximately 40% of the population has complex needs, accounting for 90% of U.S. healthcare spending

  • Importance of recognizing co-morbidities in chronic illness management

4. Trauma-Informed Care (TIC)

• Guiding Principles

  • Safety, Choice, Collaboration, Trustworthiness, and Empowerment

  • Emphasis on understanding trauma's widespread effects and ensuring patient safety

• Statistics on Individuals Experiencing Trauma

  • Higher likelihood of alcoholism, suicide, drug abuse, and mental health issues

• Adverse Childhood Experiences (ACEs)

  • Long-term health impacts associated with ACEs, including obesity, diabetes, depression, and more

• Prevention Strategies for ACEs

  • Safe, stable relationships and voluntary home visiting programs

5. Access to Healthcare and Supportive Services

• Concept of Access

  • Timely use of health services for optimal health outcomes

• Telemedicine

  • Utilization in Oregon and barriers faced in accessing telehealth services

6. Family-Centered Issues in Care Planning

• Impact on Family Dynamics

  • Caregivers often neglect their own needs, leading to strain

  • Siblings of chronically ill children may feel isolated and deprived of attention

• Responsibilities of Caregivers

  • Managing compliance with care plans and coordinating healthcare

  • Face financial pressures and stress affecting their well-being

• Role of Nursing Interventions

  • Supporting families in managing strain and ensuring cohesiveness in caregiving

7. Additional Considerations

• Self-Efficacy and Management

  • Importance of fostering self-efficacy and peer support

• Caregiver Role Strain

  • Strategies for preventing caregiver burnout and supporting family needs

Resources

• Various videos and resources provided for deeper insights into self-management, telehealth, trauma-informed care, and family-centered issues in chronic illness care.