Deafness: Identity and Experience

Deafness as a Spectrum

  • Deafness is a spectrum, not a single definition.
  • The speaker identifies as late-deafened, deaf in one ear and hearing in the other.
  • Some people consider the speaker deaf, while others consider them hearing.
  • The speaker was born deaf and has a hereditary condition, as their father is deaf in one ear.
  • The speaker is the youngest of five siblings; the three youngest are deaf-blind.

Identity and Intersectionality

  • The speaker identifies as both deaf and disabled, also being a little person.
  • Deafness is a significant part of the speaker's identity, but not the only one.
  • The speaker identifies as a person of color (biracial, half black and half white) and gay.
  • The speaker has Usher syndrome, which causes hearing and vision loss.

Communication and Education

  • The speaker grew up oral and is often considered hard of hearing.
  • The speaker identifies as deaf, not hearing impaired.
  • The speaker views deafness positively due to the culture, language, and history associated with it.
  • The speaker is involved with the DeafBlind community, tactile ASL, and Pro Tacto.
  • The speaker is most comfortable speaking English.
  • People with additional disabilities need to consider access and their needs.
  • The speaker used note takers in education because they didn't know sign language until age 14.
  • The speaker used Cued Speech and was mainstreamed throughout high school.
  • The speaker attended both a public school in the morning and a deaf school in the afternoon.
  • The instructors at the deaf school used ASL, which the speaker found more inclusive.
  • The speaker was in both Deaf and hearing classes.

Assistive Devices and Preferences

  • The speaker wore a bilateral hearing aid across their chest, which was unpleasant.
  • The speaker received a cochlear implant at age 15 and underwent intensive speech therapy.
  • In high school, the speaker would sit to the far right to favor hearing on their left side.
  • Captioning and interpreting together are considered the most effective for the speaker.
  • The speaker prefers a long-term designated interpreter who knows them and their work well.
  • As a black person, the speaker wants their interpreter's voice to match them.

Cultural and Social Considerations

  • The speaker's culture should not be overlooked.
  • Deaf people are not all the same; they have diverse backgrounds and experiences.
  • Listeners should approach deaf individuals with an open mind and open heart.

Accessibility Preferences

  • For large group discussions with dynamic conversation, the speaker uses interpreters.