Aging Final

Week One

Theories of Aging (Chapter 2)
  • Biological theories: aging differs

    • Stochastic theory: agign happens because of random things

      • Cross-linking theory: DNA mutates over time and impedes function

      • Free-radicals theory: againg is because of oxidative metabolism and free radicals

      • Lipofusion theory: similar to free radicals; oxidation of unsaturated lipids; accumulation interferes with diffusion adn transpirt

      • Wear and tear: use leads to breakdown

      • Evolutionary: mutations and natural selection

      • Biogerontology: bacteria, fungi, etc cause aging; aging and disease processes

    • Nonstochastic theory: aging is predetermined, not random

      • programmed/apoptosis: programmed cell death

      • Genetic theories: biological clock

      • Autoimmune reactions: decreased immune system function with age and it begins to attack itself

      • neuroendocrine /chemical: aging is bc of changes in the brain and hormones

      • Radiation: radiation causes mutations that promote aging

      • Nutrition: diet effects aging

      • Environmental: environmental factors effect health

  • Sociological

    • Disengagement theory: people draw back as they age

    • Activity theory: use it or lose it, stay active

    • Continuity theory: you age according to your personality

    • Subculture theory: old people are their own age group

    • Age stratification theory: it’s good for age groups to interact

    • Modernization: the value of old people decreases as they age bc they become outdated, resulting in social exclusion

  • Psychological theories

    • Developmental: Erik Eriksons idea of ego integrity vs despair; good psychological aging is because of good developmental task completion


    • Geotranscendence: seeing the world in a broader perspective

  • Nursing theories

    • Functional consequences theory: we can promote wellness by addressing them holistically, connecting mind, body, and spirit

    • Theory of thriving: everything that impacts people throughout life must be linked to create a holistic view of aging

    • Theory of Successful Aging: considers physical, mental, spiritual well-being, and self-appraisal

  • Functionalist theory: old people should disengage from previous roles and take on more age appropriate roles for their physical and mental decline

  • No single theory can adequately explain the aging process

  • Factors that contribute to a long and healthy life: diet, activity, play, laughter, faith, empowerment, stress management


Erickson’s theory of aging as it relates to older adults
The importance of cohort differences and aging, particularly in regard to the Baby Boomer cohort
Describe demographic, social, and economic trends in the aging population
  • People across the globe are aging and many live in low-mid income countries (most are)

  • Economically developing countries across the globe tend to be young

  • Older adults are asset-rich and money-poor

  • There will be many more older adults to care for soon which will be a huge nursing burden/responsibility

Definitions of Medicare, Medicaid and Social Security
  • Social Security

    • Act in 1935

    • Wages go into system and you get to withdraw them later

    • Provides a substantial amount of income for older adults

    • Many rely on it for more than half of income, but it doesnt bring in much money

    • Mainly for old people, also for those with disabilities

  • Medicare

    • For people 65 and up

    • You pay into it through life

    • Also for people with disabilities or chronic disease

    • Only for acute care

    • Entitlement program: because you paid and met the standard, you are entitled to it

    • Can pay into upper parts

    • 2 week rehab would probably be the longest

    • Requires more RN contact

    • Part A: physician and hospital services, common

    • B: basically all other medical stuff, most buy into it, ‘ansullar services’

    • C: private insurance that supplements A and B, not as common

    • D is prescriptions, common

    • Federal program

    • Only lasts for up to 100 days after hospital discharge

    • Hard for old ppl who need long term care, help w ADLs, and more

  • Medicaid

    • Income based program for all ages

    • Very dependent on state laws

    • Primarily for family and kids, can be difficult if independent

    • Primary reimbursement source for nursing homes

    • Federal program?

    • Steps in when old people are poor to give long-term care

  • Its unusual for people to have long term care insurance

  • Most people who enter a nursing home stay for less than 14 days

  • Long term care is paid for out of pocket until there is no more money or assets, then medicaid

  • Assisted livings are paid for by the individual. Some states have a medicaid waiver program that may reimburse part

  • Long term home health is usually private pay

  • Liklihood of entering a care home increase with age, but most do not live in one

  • Federal government is the primary payer for older adult health services in the US

  • w/in the next 10 years, ¼ of older adults will identify as ethnic minorities



Common chronic conditions in the older adult population
  • Lifespan is 122 years max

  • Aging is very individual

  • Chronological age: years a person has lived since birth

  • Chronological age is not always reflective of functional ability

  • Functional age: physical, psychological, and social function

  • Perceived age: how people estimate a person’s age based on appearance

  • Age identity: how people feel or perceive their own age

  • Men live shorter bc wars, tough jobs, risky things

  • Women used to live longer and still tend to bc they arent in as physically tough stuff and less substance abuse

  • Most older adults dont live in nursing homes

  • Half of women over 65 are widowed bc men live shorter and women marry older men

  • Most men are married

  • Most older adults live with spouse or family members

  • 2x more women than men live alone later in life

  • Potential for living alone increases with age

  • Older women are more at risk for poverty because their husband dies, so loss of income and his union, pension, and/or social security money

  • Acute: short and will be fixed

  • Chronic: treatable but incurable, increased risk as you age, increase healthcare system burden

  • Comborbidity: multiple chronic illnesses, risk increases a ton w age, likely to become functionally disabled, need more complex care

  • Most older adults have at least 1 chronic illness

  • 10 leading chronic conditions 

    • 1. Hypertension

    • 2. High cholesterol

    • 3. Arthritis

    • 4. Ischemic heart disease

    • 5. Diabetes

    • 6. Chronic kidney disease

    • 7. Heart failure

    • 8. Depression

    • 9. Alzheimer’s and dementia

    • 10. COPD

  • Leading causes of death for 65+ are related to those (I dont think we need to mem)

    • Diseases of the heart

    • Malignant neoplasms (cancer)

    • Chronic lower respiratory diseases

    • Cerebrovascular diseases

    • Alzheimer’s disease

    • Diabetes mellitus

    • Accidents

    • Flu and pneumonia

    • Nephritis, nephrotic syndrome, nephrosis

    • Parkinsons disease

  • Baby boomers

    • Next wave of older adults

    • Hippies in the 60s

    • Born 1946-1964, entering senior years between 2011-2030

    • Didnt have lots of kids

    • Better educated than before, higher income bc men and women worked, more casual dress code, more tech use, less leisure time, more likely to feel stressed at the end of the day, exercise more, lots of social changes

  • ¼ adults will spend time in a nursing home, but less then 5% will live there

  • Most long-term residents spend their personal assets withing 1 year of admission

  • Population over 85 will double by 2040



Management of Common Medical Conditions Observed During Middle and Late Stage Dementia

  • The more advanced the stage of dementia, the greater the number of cormorbid conditions likely to be present

  • Worsening of comorbid conditions and diseases, such as pain, infection, incontinence, and eating dysfunctions can occur with dementia

  • Incontinence is often the primary cause of putting dementia people into institutional care

  • There is no clear criteria for early, middle, or late stage dementia

  • Dementia is a terminal, chronic disease

  • Progression rate varies by individual

  • Medication management

    • It can be difficult to manage medications, there is increased self error, liver and kidney changes make it hard to clear out meds or cause more side effects, and many comorbidities make managing meds hard

    • Sometimes the risk of taking a medication outweighs its benefits

  • Specific areas of concern are comorbidities, pain, infection, incontinence, eating dysfunction, and more

  • Comorbidities

    • High rate in dementia ppl

    • Multiple of them compromise health status

    • Most common are cardiovascular disease, diabetes, hypertension, parkinsons disease, and other neurological disorders

  • Pain

    • Nearly ⅔ have pain (common)

    • Can be difficult to treat pain bc they may not be able to express pain levels well

    • The changes to the brain that cause dementia can cause pain perception to increase or decrease. The pain is not from the dementia, but from the brain changes that cause dementia

    • Major challenge is to assess pain. Observe behavior changes, such as movements, interactions, appetite, facial expression, etc

    • There are ways to treat pain without medication, such as removing the stimulus, changing position, distractions, etc

  • Infections

    • Pneumonia frequently kills people with dementia

    • Age decreases inmmune system, transitions increase risk of infection, and sometimes there is malnourishment

    • Specifically for dementia, people become immobile and then their lungs dont work as well

    • Many times people in care facilities are required to have the pneumonia vaccine

  • Incontinence

    • Not a normal part of aging

    • Needs assessment and treatment to determine a cause, usually some disease

    • Catheters increase risk of infection and decrease human dignity

    • Can be addressed by scheduled toileting plans, bladder training, frequent clothes changing and skin care

    • Associate with higher levels of mortality

    • Bowel incontinence is a similar situation

    • People may not bring up these issues as early for fear of stigma or institutionalization

  • Eating dysfunction

    • The ability to eat, drink, and get the nutrition you need is altered by comorbidities, settings, and more

    • End stage dementia can cause weight loss

    • Older adults should eat in a chair, not bed, to reduce risk of aspiration, choking, and to get them moving. It is not normal to eat in bed. Better to eat in a dining room with others to also reduce risk of social isolation

    • Eventually, tube feed may be opted for bc it is unsafe to put food in the patient’s mouth or they are not eating

  • When someone has dementia, remember that some things could be a sensory impairment. Not being able to hear you may not be the dementia, they may just need hearing aids



The effects of agism on older adults and examples of everyday agism
  • Agism can have many negative effects on individuals and harm both physical and mental health

  • There are many different forms of agism



Types of care that make up the long-term care continuum: sites of care (nursing home, assisted living, home care, etc) and the differences between care sites on the continuum
  • Most nursing home residents are white women

  • There is no national system for long term care insurance

  • Most care of chronically ill older adults is in the home and by family and moves to an institution when the home is no longer sufficient

  • Nursing home

    • Need an RN there to do a full assessment on each patient and determine a POC for each

    • Need RN there 24 hours a day

    • Tend to be the most institutionalized

    • Regulated by government

    • Often have problems with providing good care

  • Assisted Living

    • Less regulated

    • Less skilled staff

    • Dont need as many staff

    • provide personal care for individuals with “chronic and stable” conditions. A licensed assisted living service provider is available to provide supportive services to those who reside in the facility. Most assisted living services are funded privately, but there are special state subsidy programs in place

  • Homemaker/companion services

    • provide non-medical assistance with housekeeping or companionship. Such services may be crucial for an older adult or disabled person to successfully maintain independent living. Services are funded privately or through Medicaid

  • Residential Care Home

    • provides personal care, meals, and recreation programs for individuals who need some supportive oversight. Residential care is funded privately or through supplemental state income sources

  • Hospice

    • palliative care services such as nursing, social services, personal care and pastoral care to the terminal, their families and significant others. Licensed hospice providers may care for patients in facility-based settings or at home. Medicare, Medicaid and commercial health insurance plans fund hospice care

  • Intermediate Care Facility

    • Nursing care and social and recreational services for individuals who need daily supervision. Intermediate care is funded through Medicaid or private pay sources

  • Continuing Care Retirement Community

    • provides the full continuum of services on one campus – from

    • independent living to skilled nursing care. Residents fund their participation in a CCRC privately through a combination of entrance payments and monthly fees

  • Skilled Nursing Facility

    • Need RN 8 hours a day there

    • Skilled nursing care, rehabilitation services, social services and recreational services for both short-term and long-term stays for individuals who require daily care. Skilled nursing care may be funded through Medicaid, Medicare, commercial insurance or private pay sources

  • Home health

    • offer supportive services and skilled nursing care in the home. Supportive services may include assistance with bathing, walking, and other activities of daily living; skilled nursing care may include services such as administration of medications, injections, and wound care. Physical and occupational therapy are also available to some home care clients. Home health care services are funded privately or through Medicaid, Medicare or commercial health insurance

  • Senior Housing

    • offers older adults smaller, more manageable living quarters and built-in opportunities for socializing. Programs may include services such as meals, transportation, and housekeeping. Senior housing may be funded privately, through rental payments or purchases or it may be subsidized through state or federal agencies.

  • PCA Services

    • hired privately to assist an older adult or disabled individual with activities of daily living so that they may continue to live in an independent living environment. There is also limited state funding for individuals who qualify

  • Adult Day Centers

    • community-based providers that offer daily care and social services. Participants are able to take advantage of day center services and return home in the evening. Day center may provide meals, recreation, transportation, bathing, medication administration, and nursing oversight. They are funded privately, through state subsidy programs, long-term care insurance and others



General understanding of the nature of nursing home care in the US
  • Can be institutionalized

  • Lots of fear around it

  • Need improvement

  • Still have neglect 

The role of the AAA (Area Agencies on Aging)
  • help older adults and people with disabilities live with optimal health, well-being, independence and dignity in their homes and communities.

  • They assess, educate, serve, maximize funding, and develop programs to help older adults be sage within their communities and age in place

  • Want to make communities better for older adults



Physical changes that occur as part of the aging process
  • Metabolism decreases

    • Body uses less energy, dont need to eat as much, tend to gain weight, body slows down, less cells, less muscle mass, need to do more exercise for same results

  • More likely to get dehydrated

    • Less intracellular fluid, so less overall body fluid

  • Gray and thin hair

  • Thick hair in ears and nose

  • Ectropion of eyelids

  • Elongated ears

  • Darkening and wrinkling of skin around eyes

  • Facial hair growth in women

  • Deepening of hollows of axillae, ICS, and supraclavicular spaces

  • Narrower gait in women, wider in men

  • Decreased height

  • Diminished muscle mass and skinfold thickness

  • Resp sys

    • Decreased reflexes so coughs arent as effective

    • Rib cage is more brittle and cant expand as much

    • Less secretions so more infections

    • Less alveoli and less elastic too

    • All cumulative effects of lifestyle and SES

  • Cardiovascular

    • Increased risk of hypertension bc BP increases to compensate for increased peripheral resistance and decreased cardiac output

    • Vessels get stiff, so body cant respond appropriately, may get SOB and have circulation dysfunction

    • Decreased muscle mass so heart may be less effective (decreased cardiac output)

  • GI

    • Fewer cells

    • Fewer secretions

    • Decreased motility so increased constipation risk

    • Higher risk for malnutrition, constipation, and dehydration

    • Increased risk for adverse effects w meds bc the liver isnt as efficient at clearing stuff out

    • Increased risk of aspiration, indigestion, and constipation

    • Slower peristalsis

    • Less saliva

    • Reduced intestinal blood flow

  • Urinary

    • Incontinence is not a normal part of aging, but age does increase risk of development. Can be an adverse drug effect

    • Decreased kidney function, so cant clear fluids and meds as fast

    • Decreased bladder capacity

    • Weaker bladder muscles

    • Decreased size of renal mass

    • Decreased tubular function

  • Reproductive

    • Female

      • More alkaline vagina

      • Flattening of labia

      • Loss of vulvar subcutaneous fat and hair

      • Estrogen depeletion

    • Male

      • Possible reduction of sperm count

      • Prostate enlargement

      • Decreased orgasm and ejaculation intensity

    • Older adults remain sexual beings

  • Musculoskeletal system

    • Decreased muscle mass, strength, and movement

    • Increased risk of fractures

  • Nervous system

    • Decreased brain weight

    • Reduced blood flow to brain

    • Changes in sleep pattern

    • Slower response and reaction time

    • Decreased conduction velocity

  • Vision

    • Presbyopia- inability to focus on close objects clearly

    • Decreased in dim areas or at night

    • Decreased peripheral vision

    • Smaller pupil and less reactive to light

    • Depth perception distorted

    • Cataracts

  • Touch

    • Reduced sensation

  • Hearing

    • Presbycusis- progressive hearing loss

    • Distortion of high pitched sounds

    • More earwax

    • Less equilibrium

    • Chances to tympanic membrane

  • Taste and smell

    • Less for both

    • Tate dependent on smell

    • Less saliva, poor oral hygiene, meds and conditions can alter taste

  • Endocrine

    • Thyroid gland activity decreases

    • Decreases in certain hormones

    • Not as good insulin abilities

    • Cant metabolize sugar as well

  • Integumentary

    • Thin, gray hair

    • Brittle, fragile fingernails

    • Less elastic skin, more dry and fragile

    • Decreased subcut fat

    • Decline in immune response

    • More prone to infections

  • Immune

    • Less effective/efficient

    • High risk of infection

  • Thermoregulation

    • Lower body temp

    • Reduced ability to respond to hot/cold

    • Higher risk for heat stroke

  • Mind

    • Do not lose intelligence

    • Personality tends to remain consistent

    • May have slower mental processing

    • Age-related forgetfullness

    • Learning ability not changed

    • Easily distracted by irrelevant info/stimuli

    • Cant multitask

Aspects that are important to create age friendly spaces and communities
  • Things to consider for age friendly spaces are outdoor spaces and buildings, transportation, housing, social participation, respect and social inclusion, civic participation and employment, communication and information, and community support and health services

  • There should be adequate lighting, level and stable surfaces, safety features, easy things to grab, secure locks, etc



Methods for to prevent falls among older adults
  • Regular exercise to improve strength and balance

  • Ensure proper lighting in living spaces

  • Remove hazards such as loose rugs or clutter

  • Use assistive devices like grab bars and handrails

  • Regular vision check-ups

  • Medication review to minimize side effects

  • Adequate intake of vitamin D for bone health

  • Home modifications for safety, like non-slip mats in the bathroom



Risks older adults face during acute care hospitalizations

Care Transition Video by Dr. King

  • Increased risk for medical issues and several other things when transitioning between care places

  • Many risk factors with hospitalizations

    • HAI bc of old age, bacteria, medical procedures, and immobile

    • Loss of function and it can be very hard to get that function back. We should promote independence

    • Strong meds that their body may not be able to handle as well (body may have decreased function with age and they have a disease too, more side effects, harder to filter out meds)

    • Increased risk of delirium

      • Sleep disruptions → confusion → delirium

      • Disruption in normal routine

      • Make sure patients have assistive devices (glasses, hearing aids) to decrease risk

    • Unfamiliar environment = fall risk

    • Put fluids within reach to prevent dehydration

    • Begin discharge planning right away and promote independence



Diversity and caring for persons with dementia

Chapter 3

  • Aging populations are becoming more ethnically and racially diverse

  • Hispanics view states of health and illness as the actions of God

    • May use curanderos, sobadoras, espiritualistas, brujos, and senoras

  • Black Americans experience a lower standard of living, less access to healthcare, lots of hypertension; higher death rates from diseases like heart disease, stroke, cancer, asthma, influenza, pneumonia, diabetes, HIV, AIDS, and homicides; more obesity and smoking; recommend lifestyle changes and regular health screening

  • Asian Americans often use non-western/conventional medicinal approaches

  • Native Americans: traditional nursing assessment may be offensive and too probing; may be resistant to accepting services from agencies and professionals; higher rates of heart disease, cancer, stroke, cirrhosis, and chronic lower respiratory disease; low cancer survival rate\

  • Muslims may not take meds during fasting times; if dependent, turn to face Mecca in the west to northwest

  • Dont stereotype based on race, ethnicity, sexual orientation, or other factors



Diversity in Dementia Care

  • An attitude of cultural humility plus cultural competence is helpful when working with diverse older persons

  • There is little concrete evidence to assist providers with care for ethnoracially diverse groups

    • Ethnoracially- national heritage and ethnic identity are blended

  • Ethnogeriatric imperative is the idea that diversity in the population in general and elderly population is rapidly increasing

  • Rates of dementia differ by race and ethnicity

  • Risk factors of dementia include age, vascular system, and more

  • Minorities have an increased risk for certain conditions which also increases their risk for dementia

  • Much dementia care and what we know about it is for white people, it is not ethnically equal

  • Minorities seek help later on for a variety of reasons

  • Dementia is more prevalent in women because they live longer and the primary risk factor is age

  • Race- a person’s physical characteristics, such as bone structure, skin, hair, or eye color

  • Ethnicity- cultural factors, nationality, and ancestry

  • Indicence- measures how fast disease occurs and proportion of population developing new cases

    • Influenced by many things, such as medical and SES circumstances

    • Aka how many people are diagnosed w it in a certain time frame

  • Prevalence- measures proportion of population with disease

    • Aka how many people have it

  • Sex- biological status

  • Gender- attitudes, feelings, and behaviors culturally associated with biological sex

  • Gender identity- one’s sense of self as male, female, or trans

  • Sexual orientation- the sex of who ur attracted to

  • Things that influence rates of dementia: genetics, medical conditions, hypertension, cardiovascular diseases, diabetes

    • Hypertension and cardiovascular diseases are much more common in afri ameri pops. Higher risk of cardiovascular disease, stroke, high cholesterol, and hypertension

  • Ethnicity can influence dementia through onset, comorbidities, family history, APOE gene status, and cognitive changes over time

  • Lifestyle, health factors, and education level may have substantial influence on risk of dementia

  • Sex

    • More women have Alz and dementia bc women live longer, men have a high death rate from cardiovascular diseases, life experience, and genetic factors

  • Black/African American 

    • Genetics increase risk

    • More diabetes increase risk

    • Social and cultural factors increase risk

    • More vascular dementia

    • Risk of Parkinson’s is lower

    • More missed diagnosis of Alz bc of diagnostic tools, underreporting, later stage diagnosis, and lack of rep in clinical trials leading to delays in treatment

    • Higher rates of medical conditions associated w dementia like hypertension, diabetes, and HIV

    • Care partners for those w/ dementia are less likely to be spouses

    • Higher rates of unhealthy behaviors in care partners than white counterparts

  • Hispanic/Latino

    • Fastest growing elderly pop

    • Longer life expectancies

    • Onset of dementia at a younger age

    • Dementia more related to preventable causes than in whites

    • SES factors increase risk

    • Many live below poverty line, dont seek medical care bc of financial/language barriers, and rely on family for assistance

    • Vascular and other medical risk factors increase risk

    • Obesity, type 2 diabetes, hypercholesterolemia, and hypertension increase risk

    • Need cultural sensitivity in diagnosis and treatment

    • Tailor care by address elder pt by last name, communicate indirectly through son or oldest child, limited or indirect eye contact, reserve close contact until familiarity is established, teach care partner adaptive coping skills

  • Asian American

    • Chinese

      • Many chinese americans and 1 in 10 are 65 or older

      • Many misconceptions about dementia

      • Memory problems are believed to be normal aging, therefore delayed diagnosis

      • Linguistic and cultural barriers make it hard to test and interpret results

      • Beliefs may interfere w/ willingness to seek diagnosis and treatment

      • Caring for elders is a social and moral responsibility

    • Filipino

      • Many risk factors

    • Vietnamese

      • Many are Buddhist or Christian/Catholic

      • Symptoms are believed to be a normal part of aging

      • Diagnosis brings shame to the entire family

      • Seen as a mental illness

      • Causes self-isolation of person and family

      • Use cultural norms when diagnosing and treating

    • Korean

      • Prevalence unknown

      • Is a cultural stigma and shame

      • Unaware of treatments and resources

      • Cultural barriers to care

      • Family is primary caregiving source

    • Japanese

      • Not lots of info, generally shamed

  • American Indian/Alaska Native

    • Prevalence and incidence differs by tribe

    • “Invisible” ethnically diverse group

    • No strong genetic risk

    • High diabetes rate

    • Dementia is seen as a spiritual or psychological problem

    • Caregiving within the family

    • Institutionalization at an earlier age bc lack of young people to provide care

  • Native Hawaiian/Other Pacific Islander

    • Often grouped with Asian Americans

    • SES factors include low income, high poverty rate, short life expectancy, high rates of obesity

    • Stay within family and church to manage dementia

  • LGBT

    • Lack of high quality health care access

    • Lack of disclosure results in incomplete assessments

    • Higher rates of depression, suicidal thoughts and attempts, substance use and abuse, and discrimination and stigma

    • May be denied health care

    • Increased risk for getting HIV/AIDS, esp trans

  • Rural 

    • Lack of care facilities and transportation, high cost of care

    • Underreporting, underdiagnosis, and undertreatment

  • Intellectual Disabilities

    • Down syndrome = higher risk

    • Barriers to diagnosis and care management

Diversity and caring for persons at the end of life

Diversity in End-of-Life Care

  • Palliative care- a team-based approach to care for people with serious illness that is appropriate at any age/stage of illness. It can be provided along with curative treatment.

  • End-of-life care- focuses on palliative care for terminally ill individuals who may have only very limited time to live and have elected to no longer pursue curative treatment. It is often tied to hospice care, which is defined in the United States as encompassing the final six months of life.

  • Culture influences care preferences, attitudes toward health care, death, and dying, as well as advance care planning

  • Limited English proficiency, health literacy, and cultural differences can complicate communication between patients and healthcare providers

  • Families often want to be involved in their loved one’s care and pain management. For some marginalized groups, chosen friends may be preferred for support.

  • Psychologists and mental health providers with palliative care expertise can improve communication and provide emotional support for patients and families

The LGBTQ+ aging experience

LGBT aging sheet

  • More likley to be single and live alone, less likely to have children, more likely to face poverty, homelessness, and to have poor physical and mental health

  • Tend to rely on families of choice, facing unique obstacles in both giving and receiving care.

  • LGBT elders are less likely to reach out to senior centers and vital services, often delaying necessary medical care due to fear of discrimination.

  • Often dont receive appropriate care

  • Many experience victimization, such as threats, harassment, or physical assault. Many discriminated against in employment and/or housing

  • LGBT older people experience higher rates of poor physical health and mental distress compared to heterosexual older adults.

  • HIV disproportionately impacts the LGBT community

  • Vulnerable to social isolation, associated with poor physical health and the same impact as smoking 15 cigarettes a day

  • Many smoke, drink excessively, have had suicidal thoughts, and have attempted suicide 



The role of the family caregiver

Taking Care of Those Caring for Persons Living With Dementia

  • Reasons to care about caregivers’ well-being include neglect, stress-related disease, fraility, and because it can prevent PLwD from going into a facility

  • Caregivers are more likely to report health as fair or poor

  • Caregivers have tons of sleep disturbances

    • As you get older, you are less likely to tolerate sleep deprivation as well

  • Caregivers may not be able to provide the proper level of care, resulting in unintentional neglect

  • Caregivers may end up dying first

  • Risks for caregivers include developing chronic health conditions and other things that result in declining health

  • Family caregivers are the primary source of care

  • We should look for indications of stress, raise the subject more than you would normally, acknowledge the stress of caregiving, be prepared to refer the caregiver for help

  • Help caregivers understand dementia, know what to expect, and what resources are available

    • Also talk about sleep, agitated behaviors of dementia people, eating issues, fears about abuse/anger, comfort level with medication management, social problems, psych problems, legal issues, feelings of competence and grief

  • Make sure caregivers dont neglect their own health

  • The person who normally did more household stuff and caring is less likely to label themself as the caregiver (often the wife in this position)

  • Dementia causes the longest goodbye

  • Encourage respite

    • Let the caregiver take a vacation and have someone else step in for that time so that the caregiver doesnt get burnt out

  • Caring for older adults with diseases/dementia is a marathon, not a sprint

  • Stress can result in a new disease

  • Existing disease may go unattended

  • Caregivers health must be maintained

  • Screening tools should be used

  • Respite is critical

  • Caregivers tend to not take care of themselves



General understanding of mild cognitive impairment and dementia: diagnosis, treatment, symptoms, necessary care

Mild Cognitive Impairment

  • Dementia

    • “A significant deterioration in 2 or more areas of cognitive function that is severe enough to interfere with a person’s ability to perform everyday activities”

    • Key indicator of dementia is it effects their function in everyday life and it is hard for them to be independent. They lose the ability to do ADLs and perform these tasks

    • not a specific disease; it's an umbrella term that encompasses a range of symptoms associated with a decline in memory or other thinking skills severe enough to reduce a person's ability to perform everyday activities.

    • Alzheimer's disease is the most common cause of dementia, accounting for 60-80% of cases.

    • Dementia is not a normal part of aging

    • Symptoms of dementia can vary but often include memory loss, difficulty communicating, inability to learn or remember new information, and difficulty planning and organizing.

    • Most forms sof dementia come on slowly and may be preceded by mild cognitive impairment that does not include functional losses

    • Dementia has 3 stages: early, middle, and late

    • Not all memory issues are indicative of Alz or other dementia

    • Dementia encompasses a range of neurodegenerative brain disorders; persons living with dementia (PLwD) have severe enough mental decline so as to interfere with daily life. 

    • Chronic, persisten, progressive

    • Incidence is increasing because of the increase of old people

  • Delirium- sudden onset and curable when trigger is removed (UTI, anesthetia)

  • Early Onset Dementia- symptoms usually start age 30-65 (usually 50), also in adults with down syndrome.

  • Older adults often have comorbidities that complicate their care in may increase their risk of dementia

  • Types of Dementia:

    • Alzheimer's Disease:

      • Most common form of dementia

      • Caused by buildups of proteins that cause plaques and tangles that is somewhat predictive of Alz

      • Biomarkers are limited to research purposes only

      • Progressive neurodegeneration with increasing impairments

      • Symptoms typically begin with mild memory loss

      • Commonly mixed with vascular

      • Risk factors: age, cardiovascular and metabolic syndrome factors, head trauma, radiation from cancer treatments, family history (not predictive, but increased risk)

    • Vascular Dementia:

      • Caused by reduced/disruption of blood flow to the brain, often due to stroke or small vessel disease. “Hardening of the arteries”

      • Rates are decreasing

      • Risk factors: age, cardiovascular diseases, diabetes type stuff, brain damage, chronic kidney disease, stroke or heart attack, obesity, smoking, lack of exercise, lack of social support, poor diet

      • Symptoms: similar to Alz, cognitive, emotional, hallucinations, physical difficulties

        • Symptoms can vary widely, depending on the part of the brain affected

      • Similar lifespan to Alz- 3-5 years after symptoms begin

    • Lewy Body Dementia (LBD):

      • Characterized by abnormal protein deposits in the brain (Lewy body protein build ups)

      • Frequently under or misdiagnosed bc its tricky

      • Defining features include motor Parkinsonism and cognitive impairments

      • Symptoms can mimic psychosis just as much as it mimics Alz

      • Symptoms include visual hallucinations, fluctuating alertness, and problems with movement.

      • Risk factors: male, over age 60, genetic predisposition

      • Parkinson’s Disease Dementia- affects neurotransmitters and causes cognitive changes

    • Frontotemporal Dementia (FTD):

      • Group of disorders caused by progressive nerve cell loss in the brain's frontal lobes; protein accumulation in the frontal cortex

      • Often diagnosed in younger ages (less than 60)

      • Risk: increased with family history

      • Symptoms: changes in personality, behavior, and language; lack of impulse control, disinhibition, apathy, stereotypic behaviors, 

  • Diagnosis and Treatment

    • Diagnosis of dementia requires impairment in 2+ core cognitive functions (memory, lang skills, visual perception, ability to focus/pay attention, ability to reason and solve problems

    • Often diagnosed by primary care provider, geriatrician, neuropsychologist, or neurologist

    • There's no single test for dementia. Diagnosis often involves medical history, physical examination, lab tests, and assessment of changes in thinking, day-to-day function, and behavior.

    • While there is no cure for most types of dementia, medications can temporarily improve symptoms or slow down their progression.

    • Non-drug approaches such as exercise, a healthy diet, and cognitive training can also be beneficial.

  • Communication Tips:

    • Speak clearly and calmly, maintaining eye contact.

    • Use simple words and short sentences.

    • Avoid quizzing or correcting the person.

    • Show empathy and understanding

  • Caregiver Support:

    • Caring for someone with dementia can be challenging and stressful.

    • Seek support from family, friends, and local resources.

    • Take breaks and make time for self-care.

  • Safety Precautions:

    • Ensure the home environment is safe and secure.

    • Reduce hazards such as clutter, loose rugs, and poor lighting.

    • Consider using alarms or locks on doors and windows to prevent wandering.

  • Planning for the Future:

    • It's essential to discuss legal, financial, and care planning early in the disease process.

    • Advance directives, power of attorney, and living wills can help ensure the person's wishes are carried out in the future.

  • The Alzheimer’s Association provides a range of resources, including support groups, educational programs, and a 24/7 Helpline.

  • Cognitive function- how a person becomes aware of, perceives, or comprehends ideas. While it does naturally decline, it does normally decline to the point of an inability to function unless there is a disease

  • Executive function- a set of mental or cognitive skills believed to be controlled by the frontal lobe, anterior cingulate, prefrontal cortex, basal ganglia, and thalamus

    • Organization: things like attention, managing time, planning and organizing, making a pot of coffee, etc

    • Regulation: emotions and behavior

  • Short-term/working memory- less than 1 minute, more likely to leave

  • Long-term/lifetime memory- includes sensual

  • Instrumental ADL- things like chores, cooking, using a phone, doing paperwork, etc. Requires intact executive function

  • Persons who have MCI (Mild Cognitive Impairment) have notable problems with memory or other core brain functions, but impairments are not sufficient to interfere with daily life 

    • Not all MCI progresses to dementia

    • Depression can mimic MCI and lead to it

  • Many factors are considered in a differential diagnosis between natural aging, MCI, and dementia 

  • Normal Aging

    • Key indicator is the ability to remain independent

    • body and brain gradually slow down, but intelligence remains stable 

    • Changes in all 5 senses: visuoperceptual difficulties, auditory problems, speech and lang impairments, change in taste and smell

    • Some minimal changes to memory and perception are normal

  • Behavior and Psychological Symptoms

    • Can be the most disturbing

    • Avoid using restraints to manage

    • Can cause major personality and habit changes

Components of the role of the geriatric nurse

The Specialty of Gerontological Nursing

  • Core elements of gerontological nursing practice

    • Use evidence-based practice (base what we do on what research shows, continue to learn and grow)

    • Guided by standards for professional nursing practice (legal stuff too, know your scopes of practice, delegate appropriately) 

    • Include competencies specific to gerontological nursing (its a specialty with certain certifications)

    • Be guided by nursing priniciples

  • RN roles

    • Healer: holistic approach; prevent, overcome, restore

    • Caregiver: actively participate; promote self-care

    • Educator: share knowledge, address problems

    • Advocate: unique to gerontological RN

    • Innovator: make changes

The Provider’s Role in Shared Decision-Making with Caregivers, Families, and PLwD

  • Client autonomy comes first

  • Identify the main question, identify what the PLwD wants, identify everyones goals (family and care team), and establish realistic expectations

  • Understand what the shared goal is

  • Advance care planning should end in the creating of an advance care directive

  • Decisions about medical care should result in a health care proxy








  • The 4 M’s of an age-friendly health system

    • Mentation- cognition, cognitive impairments, slowing it, delirium

    • Medication- polypharmacy

    • Mobility- lose quality of life when immobile, increased risk of falls and infection

    • Matters- making sure the older adult is making decisions regarding what matters to them the most

Other

Legal Aspects of Gerontological Nursing

  • Implied consent would be if you are actively dying

  • Durable POA has some limitations. They cant force their mom to take a medication that she is refusing

  • Consent- granting of permission to have an action taken or procedure performed

  • Durable power of attorney- allows competent individuals to appoint someone to make decision on their behalf in the event that they become incompetent

  • Duty- a relationship between individuals in which one is responsible or has been contracted to provide service for another

  • HIPAA- Health Insurance Portability and Accountability Act of 1996, assures confidentiality of health information and consumers access to their health records

  • Injury- physical or mental harm to another or violation of a person’s rights resulting from a negligent act

  • Malpractice- deviation from standard of care

  • Negligence- failure to conform to the standard of care 

  • Standard of care- the norm for what a reasonable individual in a similar circumstance would do

  • A nurse must provide the patient with all of the information in a way that they can understand in order to make an informed decision

  • Assent- they may not fully agree, but they accet the treatment anyways

  • Guardian of property- this limited guardianship allows guardian to take care of financial matters but not make decisions regarding medical treatment

  • Guardian of person- decisions pertaining to consent or refusal for care and treatments can be made by persons granted this type of guardian ship

  • Plenary guardianship- all types of decisions pertaining to person and property can be made by guardians

  • Limited power of attorney- decisions are limited to certain matters and power of attorney becomes invalid if the individual becomes incompetent

  • Durable power of attorney- provides a mechanism for continuing or initiating power of attorney in the event the individual becomes incompetent

  • Need a physician order for restraints; they are rarely used and the last option

  • DNR is part of advanced directives

  • Capacity- the ability of someone to participate in their care decisions\

  • Make sure that all patients have advancd directives in place. It is a written document of who you want to make decisions and what decisions you want. DNR is part of this. It must be respected and followed. Need to make informed decisions for this. The care team should know these orders.



Ethics

  • Autonomy- individual freedom, preferences, and rights

  • Beneficence- do good for patients

  • Confidentiality- respect privacy

  • Ethics- a system of moral principles that guide behavior

  • Fidelity- to respect our words and duty to patients

  • Justice- to be fair and treat people equally

  • Nonmaleficence- to prevent harm to patients

  • Veracity- truthfulness

  • Utilitarianism- good acts are the ones where the most people will benefit and gain happiness

  • Egosim- its only good if it benefits yourself

  • Relativism- right and wrong are relative to the situation

  • Absolutism- specific truths that guide actions



Ethics and Capacity Issues

  • Have a high level of suspicion for elder abuse or neglect

  • Dont underestimate dementia peoples ability to express opinions about their care

  • Older people have the right to take informed risks

  • Providers have a role in determining a person’s decision-making capacity

  • Plan for the future asap so the PLwD can assist in decision making while still capable

  • Can be very difficult to get long term stuff paid for

  • Guardianship- enacted by a court when there is no family or there is family dysfunction, so there is no POA

    • Not common

  • Capacity is a functional assessment of understanding, appreciation, expressing a choice, and rationalization

  • 4 primary ethical considerations:

    • Beneficence- does the benefit outweigh the risk

    • Nonmaleficence- first, do no harm

    • Respect for autonomy- pt gets to make their own decision

    • Privacy and confidentiality

  • Sexual functions or relations may change throughout life, but older adults remain sexual beings

  • Most common form of elder abuse is financial exploitation

  • majority of abusers are family members who are often the caregiver

  • People have a right to live in a way that is consistent with their culture, even if we dont feel it is the most appropriate (part of autonomy)

  • Sometimes people are unaware of what constitutes as abuse

  • Stick to your facts and what you see

  • Dont let your bias cloud your vision