Chapter 1-6: Ethics, Resident Rights, and End of Life Care

Resident Rights and Legal Protections

  • Legal Rights of Residents:

    • Residents living in long-term care facilities maintain the exact same legal rights as all citizens of the United States.

    • In addition to standard constitutional rights, residents possess legally protected residents' rights specifically established by law.

  • Omnibus Budget Reconciliation Act (OBRA):

    • Federal legislation, known as OBRA, outlines specific federal laws identifying precisely how a resident must be treated while residing in a long-term care facility.

    • OBRA establishes an extensive, detailed list of rights and treatment standards governing resident care.

  • Code of Ethics for Health Care Workers:

    • Provides a formal code of ethics defining how health care personnel should and should not behave, act, and deliver care.

    • Must be prominently posted in all long-term care facilities.

    • Must be provided directly to every resident or their legal representative upon admission to the facility (always provided on admission).

  • Long-Term Care Ombudsman Program:

    • An ombudsman serves as a dedicated advocate assigned to support and promote the best interests of residents living in long-term care facilities.

    • Every resident in a North Carolina long-term care facility has access to an ombudsman assigned specifically to their district.

    • District assignments for North Carolina long-term care ombudsmen are managed by the North Carolina Department of Health and Human Services.

    • District assignment information can be accessed on the official website at www.ncdhhs.gov/aging (updated 01/12/2024).

The Role of Ethics in Health Care

  • Definition and Purpose of Health Care Ethics:

    • Ethics is defined as the knowledge of what is right and wrong.

    • Ethics guides the sense of duty, professional conduct, and judgment of all health care providers.

    • Adhering to ethical principles enables health care workers to deliver high-quality, safe care.

    • Ethics governs all actions taken by health care providers and is vital to the safety and well-being of all facility residents.

  • Professional Work Ethic and Punctuality:

    • Work ethic reflects an individual's operational standards, duty, and professional commitment.

    • Key elements of a solid work ethic include arriving early, showing respect toward coworkers, and committing to direct patient and resident care.

    • Core operating motto regarding punctuality: "To be on time is to be late, but to be early is to be on time."

Clinical Standards and the Plan of Care

  • Clinical Judgment and Information Confidentiality:

    • Health care workers must exercise good judgment in all clinical scenarios.

    • Resident information must be kept strictly confidential.

    • Information regarding a resident may only be shared with other members of that resident's immediate health care team.

  • Documentation Guidelines:

    • All medical documentation must be accurate and completed in a timely manner.

    • Staff must document objective facts only.

    • Personal opinions, assumptions, and subjective judgments must be omitted entirely from clinical records.

  • Adherence to Individualized Care Plans:

    • Every resident has a specific, individualized plan of care (commonly referred to as a care plan).

    • Health care providers must be fully knowledgeable about the contents of a resident's care plan.

    • Care plans must be strictly followed for all resident care interventions.

  • Personal Integrity:

    • Health care providers must maintain complete honesty and trustworthiness in all professional interactions.

Standards of Care, Empathy, and Professional Conduct

  • Abuse Reporting and Incident Tracking:

    • Health care workers are mandated to report any abuse or suspected abuse immediately.

    • All observations, changes in condition, and facility incidents must be reported in a timely manner.

    • Caregivers must fully understand and uphold resident rights at all times.

  • Empathy and High-Quality Care Standards:

    • Empathy is defined as putting oneself in another person's shoes and feeling what they feel.

    • All residents must be treated equally and with equal respect.

    • Caregivers must provide the same level of high-quality care that they would deliver to a loved one or expect to receive for themselves.

  • Professional Boundaries, Privacy, and Conduct:

    • Resident privacy must be safeguarded during all care procedures.

    • All personnel must maintain professionalism and completely avoid stereotyping.

    • Staff must stay out of personal matters that do not concern them and avoid workplace gossip.

    • Health care workers must conduct themselves as professional, mature adults at all times.

Ethical Behavior, Accountability, and Cultural Diversity

  • Property Safeguards and Personal Values:

    • Caregivers must actively safeguard resident property against loss or damage.

    • Resident values and beliefs must be respected at all times, even if they differ from those of the caregiver.

  • Accountability in Ethical Practice:

    • Ethical behavior is defined as always taking complete accountability for one's actions.

    • Nurses and nurse aides must practice ethical behavior always, without exception.

  • Cultural, Social, and Religious Diversity:

    • Concepts of ethical behavior vary across different cultures, social backgrounds, personal beliefs, and religions.

    • Because every individual thinks and operates differently, health care workers must recognize and respect individual differences.

Ethical Considerations in End-of-Life Care

  • Ethical Principles and Personal Beliefs:

    • Decisions regarding end-of-life care are guided by an individual resident's ethical principles, cultural background, upbringing, and religious beliefs.

    • End-of-life choices determine how a resident wishes to be treated, cared for, and made comfortable at the time of death.

  • Resident Autonomy and Nurse Aide Responsibilities:

    • Nurse aides must respect the resident's legal right to make autonomous end-of-life decisions, even if those decisions conflict with the aide's personal ethics.

    • Residents possess the full legal right to refuse any medical treatment.

    • Residents possess the full legal right to request every available medical treatment, comfort measure, and medication.

  • Personal Planning and Communication:

    • End-of-life preferences should be considered early in life because the future is unpredictable ("none of us are promised tomorrow").

    • Individuals should clearly communicate their personal end-of-life care wishes to family members and loved ones in advance.

Module Resources

  • Educational Handouts:

    • Supplementary handouts detailing further information are provided at the end of the learning module.