Philosophy 2000 120 Biomedical Ethics - Disability and Disability Studies Lecture Notes

Lecture Overview

  • Topic: Disability and Disability Studies.
  • This is the second-to-last lecture for the course (Philosophy 2000 120 - Biomedical Ethics).
  • Acknowledgment of feeling unqualified to speak on the topic, highlighting reliance on disabled speakers in the past.
  • Provided additional resources (video) featuring experiences from individuals with disabilities.

Fundamental Concepts Regarding Disability

Norms

  • Norms play a crucial role in our perception and categorizations of disability.
  • Definition of Norms:
      - A standard for human action, behavior, characteristics, or functions.
  • The study of ethics encompasses norms:
      - Establishment, justification, implementation, evaluation of norms.
      - Aim: Living in a society where actions align with the good—what is beneficial for individuals and society.
  • Each ethical theory debates what constitutes the good or appropriate norms but shares the goal of normative guidance.

Discrimination and Marginalization

  • Cultural norms can establish what is considered normal or acceptable, often leading to discrimination.
  • Marginalization:
      - Definition: Literally means “in the margins.”
      - Marginalized individuals are regarded as non-essential parts of society—often unnoticed and secondary in concern.
      - Concept depicted by physical representation of visible disabilities, such as individuals in wheelchairs.

Historical Context: Americans with Disabilities Act (ADA)

  • Highlighted that prior to the ADA in 1990, individuals with disabilities lacked civil rights and accessibility.
  • The ADA mandated building access considerations for individuals utilizing wheelchairs, marking a historic shift in norms regarding disability.

The Role of Biology in Defining Norms

Biological Norms

  • Societal norms regarding disability often stem from biological perceptions.
      - Those with physical disabilities are viewed as not meeting standard biological anatomy.
      - Mental disabilities are characterized as brain function discrepancies according to biological norms.
  • Examples:
      - A broken arm is deemed abnormal because it does not meet biological function standards.
      - Individuals with disabilities are labeled as broken or abnormal if not conforming to biological standards.

Critique of Biological Norms

  • Ed Munson challenges the reliability of biological criteria in assessing abnormalities:
      - Historical comparison to race as a poorly defined and scientifically flawed category.
      - Argument: Greater biological variation exists within racial groups than between them.
  • Extending this critique to disability norms, he suggests that variation in characteristics among those deemed ‘normal’ is often wider than those between normal and abnormal categorizations.

Questioning Social Constructs

  • Consideration of how universally accepted norms are established:
      - What reasons underpin categorizations that define normality?
      - Historical perspective on disabilities and societal views on care and functionality.
  • The necessity of care is universal, suggesting reliance on community and societal structures for all, including individuals viewed as disabled.

Social Constructs and Their Implications

Social Construction of Disability

  • Recognition that current societal definitions of disability and norms rely heavily on social constructs rather than strict biological determinations.
  • Definitions of normality and abnormality are historically and culturally contingent, subject to change over time:
      - Reflective of societal progress, as evident in legislation like the ADA.
      - Norms have evolved, often due to implicit constructs born from societal awareness and advocacy.

Impacts of Norms on Society

  • Recognition that these social constructs lead to discrimination against disabled individuals, often relegating them to margins.
  • Advocacy and activism in disability studies aim to:
      - Redraw the lines defining normal and abnormal.
      - Address issues of accessibility and inclusion in society's evolution.
  • The ultimate goal is to advocate for less discrimination through modifying social constructs.

Conclusion

  • Emphasis on the importance of questioning established norms to create a more inclusive society.
  • Invite students to reach out via email for questions or discussions regarding the lecture and topics covered.