Summary of "Hearts for Hearing" Blog Post

Diagnosis and Initial Reactions

In the late summer of 2000, the author's fourth child, referred to as 4 of 8, exhibited delayed language development. Initial reassurances from the pediatrician were later replaced by concerns as 4 of 8's language remained unintelligible, leading to frustration. A booth hearing test revealed bilateral high-frequency sensorineural hearing loss.

Further Testing and Emotional Impact

Subsequent tests, including ABR (Auditory Brain Response) and OAE (Oto Acoustic Emissions), confirmed moderate to severe hearing loss. The diagnosis process was emotionally challenging, with the author grappling with new terminology and the implications for their child. Financial burdens arose due to the high cost of hearing aids, which were often not covered by insurance.

Early Interventions and Misconceptions

4 of 8 was fitted with hearing aids, but initial expectations of immediate improvement were unmet. The child experienced frustration with the devices, and speech therapy progress stalled. The author initially believed hearing impairment meant complete deafness across all sound levels but learned that most hearing-impaired individuals have some usable hearing.

Seeking Alternative Therapies

Frustration led the author to research alternative approaches, discovering Auditory Verbal Therapy. This led to a collaboration with Hearts for Hearing and therapist Wendy DeMoss. The initial session highlighted the need to adjust expectations and address developmental milestones, such as pacifier use and toilet training.

Adjustments and Progress

The initial hearing aids were deemed inappropriate, necessitating new devices and soft material ear molds. An FM system was also purchased. Consistent therapy sessions, both with Wendy and at home, were implemented. Over time, 4 of 8 made progress in language development, though challenges remained. Despite moving, therapy continued via Skype, demonstrating commitment to ongoing support.