Lecture 24: Treatment of genetic diseases

Learning outcomes:

  1. Understand the general approaches to the treatment of genetic diseases

    • Genetic diseases can be treated at any level from the mutant gene to the clinical phenotype.

      • Corrected mutated gene

      • Replace defective product

      • Improve defective protein’s function

      • Minimize consequences of defective protein’s absence

    • The strategy depends on the nature of the pathogenic allele and its clinical consequences

    • Challenges of treating genetic disease

      • Gene not identified of pathogenesis not well understood.

      • Prediagnostic fetal damage: Some variants act early in development or cause irreversible pathological changes before they are diagnosed.

      • Severe phenotypes are less amenable to intervention.

      • Specific variants may pose challenges

      • Some tissues are easier to target than others

      • Must minimize negative impacts resulting with treatment

      • Long-term assessment is critical

  2. Understand the principle cofactor supplementation to improve the function of mutant enzymes as applied to variant PKU

    • The biochemical abnormalities of a number of inherited metabolic diseases may respond, sometimes dramatically, to the administration of large amounts of the vitamin cofactor of the enzyme impaired by the pathogenic variant.

      • Vitamin responsive inborn errors are among the most successfully treated of all genetic diseases.

  3. Understand the general principle of ERT as applied to Gaucher Disease type I

    • Enzyme replacement therapy (ERT) is now established therapy for many lysosomal storage diseases.

    • Type 1 Gaucher disease was the first lysosomal storage disorder for which ERT was shown to be effective.

      • It is the most prevalent lysosomal storage disorder.

      • Autosomal recessive

      • Results from mutation in GBA1 gene causing β-glucocerebrosidase.

      • Loss of this hydrolase activity leads to accumulation of its substrate in the lysosome, which leads to anemia, gross enlargement of the liver and spleen, fatigue, and bone issues.

    • Extracellular administration of the intracellular enzyme caused dramatic benefits.

      • Effective at reducing Gaucher disease symptoms

      • Resolution of anemia and normalization of platelet counts

      • Weekly intravenous infusions increased hemoglobin levels

  4. Understand the general principle of antisense oligonucleotide (ASO) therapy as applied to Duchenne Muscular Dystrophy

    • DMD is an X-linked recessive disorder

      • Mutation in gene encoding dystrophin

      • Complete frameshift mutation—everything downstream is disrupted

      • Dystrophin is important for skeletal muscles

      • Complete loss of function of dystrophin leads to loss of muscle tissue

      • Progressive muscle degeneration and weakness until death

    • Becker Muscular dystrophy (BMD)

      • Less severe phenotype

      • Reduced quantifies of dystrophin

      • Reading frame is not disrupted, only a region of the gene sequence is deleted

    • For DMD, if you could somehow get the reading frame back to normal, you could treat it.

    • Exon skipping refers to the use of molecular interventions to exclude an exon from a pre-mRNA that encodes a reading frame-disrupting variant, thereby reducing expression of the mutant gene.

      • If the number of nucleotides in the excluded exon is a multiple of 3, no frame shift will occur and, if the resulting polypeptide with the deleted amino acid retains sufficient function, a therapeutic result will benefit.

      • The most widely studied method of inducing exon skipping is through the use of ASOs, which are synthetic 15-35 nucleotide single stranded molecules that can hybridize to specific corresponding sequences in a pre-mRNA.

    • The goal of exon skipping in DMD is to convert a DMD pathogenic variant to an in-frame counterpart that generations a function dystrophin, just as the deletions that allow the production of a partially functioning dystrophin are associated with the milder phenotype of BMD.

      • Many DMD deletions span exon 50. Deletion of exon 50 created an out-of-frame transcript with a stop in exon 51.

      • But, deletion of exon 51 would restore the dystrophin reading frame enough to have a phenotype similar to BMD.

  5. Understand the general principle of gene therapy, including the requirements and limitations

    • Gene therapy is the introduction of a biologically active gene into a cell to achieve a therapeutic benefit.

      • Useful for loss of function disorders

    • Requirements:

      • Molecular defect and mechanism fully known

      • Functional copy of the gene available

      • Appropriate vector (adenovirus, retrovirus, etc.)

      • Tight regulation of transferred gene

      • Appropriate target cell

      • Strong evidence of efficacy and safety

      • Regulator approval

    • Risks

      • Reaction to the vector

      • Insertional mutagenesis causing cancer

      • Insertional mutagenesis causing inactivation of essential gene

  6. Be able to describe recent approaches for treating sickle cell disease by gene editing using CRISPR-Cas9

    • CRISPR-Cas9 uses engineered endonucleases containing a DNA-binding domain that will recognize a specific sequence in the genome, such as the sequence in which a missense variant is embedded.

    • Subsequently, a nuclease domain creates a DSB, and cellular mechanisms for homology-directed repair (HDR) then repair the break, introducing the wild-type nucleotide to replace the mutant one.

    • Sickle Cell disease is an autosomal recessive disorder caused by mutations in HBB, the gene encoding β-globin

      • Very common in African Americans

      • Symptoms include chronic hemolytic anemia, organ damage, pain, loss of vision, and shortened life span.

      • Fetal hemoglobin has 2 α subunits and two γ subunits

      • Adult hemoglobin has 2 α subunits and two β subunits

      • In sickle cell, there are mutations in the β subunits, so the fetal form is functional, but when it switches from fetal to adult, that’s where the issue is.

      • BCL11A is a zinc-finger transcription factor that represses γ-globin when switching from fetal to adult.

      • Deletion of an enhancer in BCL11A with CRISPR can stop the transition from γ to β, therefore keeping the functional γ globin.

Type I Gaucher Disease

Becker Muscular Dystrophy (BMD)

Enzyme replacement therapy (ERT)

Antisense oligonucleotides (ASOs)

Exon-skipping therapy

Gene therapy

Gene therapy vector

Gene therapy target cell

BCL11A

Fetal hemoglobin

Adult hemoglobin