Lectures
What is included in prelingusitic communication?
Prelingusitc Comm: occurs before the use of words
EXAMPLES:
Eye Gaze
Shared Positive Affect
Sounds
Communicative non-word vocalizations
Gestures
Key Features of ASD
Social Communication & Interaction
Social-emotional reciprocity
Nonverbal communicative behaviors
Understanding/ developing/ maintaining relationship.
Restrictive Repetitive Behaviors (RRBs)
Stereotyped or repetitive movements, use of objects, or speech
Insistence on sameness
Highly Restricted interests abnormal in intensity or focus
Hyper-or Hypoacitvtiy to sensory stimuli
What behaviors are classified as social communication and which ones are restricted to repetitive behaviors
Social Communication impairments
Reduced Joint Attention
Reduced social communication (differences in frequency and rate of social communication)
Deficits in eye contact
Unshared affect/enjoyment
Reduced gestures
Repetitive behaviors/play
Fixation on objects
Repetitive vocalization
Repetitive movements of the body
Lack of pretend play; highly constructive play
'Sticky' attention
Communicative Functions: Intentions/ Intentional Communications
Behavior regulation: indicating to adults that they want water by holding out the cup.
Social interaction: waving hi and bye; initiating a social game; requesting comfort (e.g., playing with the cup)
Joint attention: communicating to share interest on an object or event (e.g., showing adult that they have cup in their hand for the adult to notice – not really holding it out for adult to fill in it
Developmental Variability and diagnostic Stability
The distinction between ASD and non- ASD D/LD can be blurred in toddlers.
Developmental Variability
Confounding conditions with some symptoms overlap
Differential diagnosis of ASD requires symptomatology beyond what can be accounted for by communication disorder
Diagnostic stability improves with age
ASD and D/LD not often differentialized until a child is close to 3
In children with ASD, without language delay, diagnosis below age 3 is rare
In the face of uncertainty, we can talk about the need for clinical monitoring and follow-up
T or F
It is common to have a diagnosis below the age of 3.
False, it is rare
T or F
Diagnostic Stability increases with age.
True
T or F
The average age of diagnosis for ASD is 3.
False, average age is 4
T or F
The distinction between ASD and non- ASD D/LD can be blurred in toddlers.
True
T or F
Screening equals diagnosis
False, it does NOT equal diagnosis
Screening Vs Diagnosis: SCREENING
Screening does not equal diagnosis
Requires minimal training
employs measures that are relatively easy to administer and score
indicated a risk for a disorder on a cutoff score
Screening Vs Diagnosis: DIAGNOSIS
Requires advanced clinical training and specialized experience
Involves integration of information and evaluation of behavioral symptoms in the context of developmental history, family factors, and cognitive level
T or F
SLP’s can diagnose Autism.
False; SLPs aren’t allowed to diagnose for autism, we can only provide screeners
Why “early” identifcation?
For the child
Early years are an important time for active brain development and organization
Brain development is influences by both genetics and experience
Leads to specialized intervention
For the family
Alleviate uncertainty
Provide access to resources, information, and support
Provide strategies for promoting development
For science
Understanding cause
Understanding developmental trajectories
Early Identification
What can be done to catch ASD as early as possible?
Developmental screening: a brief assessment designed to identify children who should receive more comprehensive evaluation
Broad developmental screeners vs. Autism specific screeners
Broad: autism is only 1 piece of the developmental puzzle
not specific to autism
Autism specific screeners: these are looking more at social communication and signs of autism.
T or F
Autism affects development and development affects autism.
True
What are Broad Developmental screeners that only doctors can do
Parents Evaluation of Developmental Status (PEDS) (Glascoe)
Birth-8 years of age
Ages and Stages Questionnaire (Squires and Bricker)
CSBS-DP Infant Toddler Checklist (Wetherby and Prizant)
Normed for 6-24 months
What is an early identification autism specific screener?
M-CHAT-R/F
M-CHAT
Modified Checklist for Autism in Toddlers (M-CHAT)
16-30 months
Modified parent report screening measure
High false positive rate – refer to M-CHAT-R/F
M-CHAT-R/F
Modified Checklist for Autism in Toddlers, Revised with Follow-Up (M-CHAT-R/F)
16-30 months; parent report (with possible interview)
Strongly recommended; Autism-specific screening tool
Goal: maximize sensitivity (detect as many cases of ASD as possible)
Revised tool which reduces the false positive rate and detects more ASD cases than the original M-CHAT when used during routine pediatric check-ups
Continues to have high false positive rate, so developed follow-up questions
Even so, many children who screen positive on M-CHAT-R will not be dx with ASD (but are at high risk for other DD)
If child screens positive based on parent completion of form, conduct follow-up interview
M-CHAT-R/F Scoring
Low-Risk
Total score 0-2
If they are under 24 months, repeat after age 2
no further action is required
Medium Risk
Total Score: 3-7
Administer the Follow-Up (second stage of M-CHAT-R/F) to get additional information about at-risk responses. If M-CHAT-R/F score remains at 2 or higher, the child has screened positive. Action required: refer child for diagnostic evaluation and eligibility evaluation for early intervention. If score on Follow-Up is 0-1, child has screened negative. No further action required unless surveillance indicates risk for ASD. Child should be rescreened at future well-child visits.
High-Risk
total Score 8-20
It is acceptable to bypass the Follow-Up and refer immediately for diagnostic evaluation and eligibility evaluation for early intervention.
What do we need to do to improve screening?
Evaluate high sensitivity (true positives) and low specificity of existing screening tools, and continue developing efficacious screening measures
high false positive rate
A measure is sensitive if it is picking up the children with ASD. But a measure may be picking too many kids (low specificity).
Identify biological and/or behavioral markers to develop indices of risk for the development of autism in infants.
Develop feasible, sensitive autism screening method for young infants
How early is “early” for diagnosis?
ASD still most often first diagnosed over age 3
Studies have consistently found: Diagnostic stability is good in children over 2 (better in children over 3 years)
Can ASD be diagnosed younger than 2 years?
ASD can sometimes be reliably diagnosed as young as 2 years (younger in some children)
children who have early symptom onset
Assessment and diagnosis by experienced clinicians
Clinician experience critical, but not always enough
Home observation (in addition to comprehensive dx evaluation in clinic) increases clinician confidence in dx
Overall, research supports the growing practice of making early clinical diagnoses when:
Diagnostic presentations are clear (can defer if not)
Clinician is experienced in diagnosing ASD in young children
When home and clinical observations are included in the assessment process
Challenges in Diagnosing ASD under 3
Increased behavioral variability and subtlety of symptoms in very young children
Mild symptoms or absence of symptoms at ~18 months do not “rule out” a later ASD diagnosis
Overlapping symptoms with other developmental delays/disorders
Diagnosis of ASD: SYMPTOMS
Diagnosis comprised of symptoms (communication and behavioral) as defined by the DSM-5
Symptom expression is variable across individuals, time, and settings
Both positive (abnormal) and negative (absence of normal) behaviors are required to make diagnosis
Thus, developmental level can have a significant effect on diagnostic judgments
Diagnosis of ASD: MEASURES
No single measure is considered “the” one for diagnosing
Various tools may be used
But there is a “gold standard”
Diagnosis of ASD: PERSONS
No single person/professional is considered “the” one for diagnosing
Often a psychologist, psychiatrist, physician (developmental pediatrician), but others (e.g., SLP) with adequate training may also diagnose
T or F
The gold standard diagnosis of ASD is only one assessment.
False; it is a combination of different assessments
Diagnosis of ASD: The Gold Standard
Developmental/Cognitive Assessment
Adaptive Behavior Measure
Clinical Interview/ Developmental History
Autism Diagnostic Interview-Revised (ADI-R)
Direct Observation
Autism Diagnostic Observation Schedule (ADOS-2)
Communication and Symbolic Behavior Scales (CSBS) Behavior Sample (for young Children)
The Gold Standard: Developmental / Cognitive Assessment
Knowing what to expect on social skills (behavioral/communication) -- distinguishing from other disorders such as ID
Social communication and social interaction skills, as well as Restricted, repetitive patterns of behavior, interests, or activities
The Gold Standard: Adaptive Behavior Measure
"Symptoms cause clinically significant impairment in social, occupational, or other important areas of current functioning..."
The Gold Standard: Clinical Interview/ developmental history
Need to know if there were symptoms present from early on
May not see certain behaviors in the time of assessment --> parent report/developmental history is important to know what the individual does/has done beyond the clinician's time with them
Parent interview needed for history of early development, report on peer interactions, and report on repetitive behaviors
Autism Diagnostic Interview-Revised (ADI-R)
Semi-structured, clinician administered interview for caregivers
Used to obtain developmental history
Originally developed as a research instrument, but clinically useful (although length makes clinical use difficult)
Intended for children and adults with a mental age above 2.0 years
Significant training needed for use
Reports on pervasiveness of behaviors (in different settings)
Coded by trained raters
The gold Standard: direct Observation
Autism Diagnostic Observation Schedule (ADOS-2)
Provides “natural” social environment with examiner
Uses hierarchy of “presses” to rate responses
Tasks/modules (5 modules) differ according to language level (toys, interview questions)
Must be coded by trained/reliable raters
Based on OBSERVABLE behaviors
As with ADI-R, requires considerable training and achieving reliability
Communication and Symbolic Behavior Scales (CSBS) Behavior Sample (for young Children)
The CSBS includes a sequence of 6 communication and play sampling opportunities while the child is interacting with the caregiver and clinician
What is included in the assessment process in the gold standard
Vital information for parents...
Characteristics of effective programming for young children with ASD
Info on child’s strengths and challenges
Helping families locate services
Publicly funded services (early intervention or school-based services)
Parent training
Parent support groups
What is not included in the assessment process in the gold standard
Should not include a statement on child’s long-term prognosis
No way of knowing how an individual child will respond to intervention
Recommendations for Diagnosis of Possible ASD in Infants and Toddlers
Diagnostic process led by expert clinician
Information should be obtained by multiple sources (e.g., parent report, structured observation, standardized assessment of development, judgment of experience clinician along with multidisciplinary team)
Treatment recommendations tied to specific symptoms/delays
Provide parents with clear expectations about next steps (e.g., treatment options, monitoring, reevaluation)
In the face of diagnostic uncertainty, the most critical issue is timely access to appropriate intervention services for the child and supports for the family
Role of SLP in Diagnosis. only 1 question (select all that apply); just know the gist of it
Interdisciplinary collaboration in assessing and diagnosing ASD is important due to the complexity of the disorder, the varied aspects of functioning affected, and the need to distinguish ASD from other disorders or medical conditions. (Hyman, et al., 2020)
Ideally, the SLP is a key member of an interdisciplinary team with expertise in diagnosing ASD.
When there is no appropriate team available, an SLP—who has been trained in the clinical criteria for ASD and who is experienced in diagnosing developmental disorders—may be qualified to diagnose these disorders as an independent professional. (NOTE: this depends on your state)
The SLP who has been trained in the clinical criteria for ASD, as well as in the use of reliable and valid diagnostic and assessment tools for individuals with ASD, and who is experienced in diagnosis of developmental disorders, may be qualified to diagnose these disorders as an independent professional.
Make referrals to other professionals as necessary.
providing information to individuals and groups known to be at risk for ASD, to their family members, and to individuals working with those at risk
educating other professionals on the needs of persons with ASD and the role of SLPs in diagnosing and managing ASD
screening individuals who present with language and communication difficulties and determining the need for further assessment and/or referral for other services
conducting a culturally and linguistically relevant comprehensive assessment of language and communication, including social communication skills
assessing the need and requirements for using augmentative and alternative communication (AAC) devices as a mode of communication
assessing and treating feeding issues, if present (e.g., patterns of food acceptance or rejection based on food texture; consumption of a limited variety of foods)
diagnosing the presence or absence of ASD (typically as part of a diagnostic team or in other interdisciplinary collaborations)
referring to other professionals to rule out other conditions, determine etiology, and facilitate access to comprehensive services
making decisions about the management of ASD
participating as a member of the school planning team (e.g., a team whose members include teachers, special educators, counselors, psychologists) to determine appropriate educational services
Talking with families… (Screening /Assessment)
When you have a concern
Offer screening to all families
Do not assume reticence is “denial”
Proceed on parents’ terms
Do not wait for diagnosis to address social communication needs
Avoid jargon
When a parent/caregiver expresses concern
Parents often raise the first concern - take the concern seriously and provide prompt answers
Facilitate screening
Avoid suggesting ASD before diagnosis
Role of SLP in Assessment
Screening individuals who present with language and communication difficulties and determining the need for further assessment and/or referral for other services
Conducting a culturally and linguistically relevant comprehensive assessment of language and communication, including social communication skills
Assessing the need and requirements for using augmentative and alternative communication (AAC) devices as a mode of communication
Assessing and treating feeding issues, if present (e.g., patterns of food acceptance or rejection based on food texture; consumption of a limited variety of foods)
Diagnosing the presence or absence of ASD (typically as part of a diagnostic team or in other interdisciplinary collaborations) -- communication is a significant part of ASD diagnostic criteria
Participating as a member of the school planning team (e.g., a team whose members include teachers, special educators, counselors, psychologists) to determine appropriate educational services
SLP's typically assess the speech, language, social communication/pragmatic, feeding skills of individuals with ASD
Play & ASD
Play is…
Voluntary
Pleasurable
Intrinsically motivating
Requires active engagement
Flexible
Non-literal
Types of Play
Solitary: Does not require sharing space, materials, or interaction
Parallel: Along others, may or may not involve observing
Cooperative: Share a common activity and work toward a common goal
Unstructured: Group activity that has no predictability
Pretend: Pretending an object is something else
Social : Involves social interaction in a group
T or F
Those with ASD prefer solitary play
True
Play, Language & Congition in ASD
Symbolic/Pretend Play
Core deficit
Central in diagnosis/intervention with ASD
Play, Language, and Cognition
Developmental sequence of play parallels language and cognitive development
Cognitive development = language development; means
Play is associated with language development/language outcomes
Play helps children recognize that objects have functions (other than those originally intended), which helps them learn to solve problems, imagine, and create.
Children’s ability to solve problems, imagine, and create helps in problem solving and creative thinking and their ability to master abstract concepts
ASD: Challenges in Play
May prefer to play alone, sensitive to intrusions
Children with ASD exhibit less functional and symbolic play with fewer actions
Constructive play stronger than imaginative play
Difficulty following themes introduced by others
Motivation in play may be dictated by repetitive actions/activities that do not require symbolic connections
Specific inflexible routines may be followed in play
Play themes kay focus on topics of specific or narrow interest
Lack of flexibility leading to stereotypic repetitive play behaviors
Assessment of Play
Westby Play Scales
In 1980, Carol Westby created an assessment/scale that shows you what play skills children should have at certain ages as well as the language skills that should parallel them..
Cultural considerations in play assessment
Can focus on play or play can be embedded into it
Prelinguistic Communication Characteristics include….
Delay in/no use of communicative gestures
Reduced/no communicative intentions (joint attention, initiated social interaction)
Minimal/lack of coordination of communicative means (coordinating eye gaze towards someone, pointing)
Inconsistent eye contact
Minimal/no prelinguistic vocalizations
Reduced age-appropriate play (e.g., infant social play)
Language Characteristics in ASD
Expressive/Receptive Language
Language Delay (not specific or universal in ASD)
Comprehension (may be depressed relative to production)
Tendency to use language for requests rather than commenting and generating novel messages
Differences in learning the meaning of words
Differences in the Use of Language
May attain language skills but less able to use language to communicate
Echolalia
Assessment of Speech and Language
Culturally and linguistically appropriate assessment of communication skills
Standardized (formal) assessments (when appropriate)
GFTA-3
2-60+ age
intelligibility (Language sample)
CELF-5
have more biases into it
not the best at capturing linguistic abilities
BESA (Bilingual English Spanish Assessment): Bilingual assessment
OWLS
expressive, receptive , reading, and writing
most expensive
children to adulthood
PLS
Preschool
Rosetti Infant-Toddler
Criterios Referenced
3 and under ; early identification
Non-Standardized (informal) assessments
Language Sample
Narrative Retel Tasks
NWRT
SLAM Cards
Dynamic Assessments
AAC Evalution if needed
Fluency evaluation if needed
Feeding/swallowing evaluation if needed
T or F
A good assessment tool is either standardized or non-standardized.
False, a good tool has both standardized or non standardized.
Conversation and Pragmatic Communication in ASD
Difficulty turn-taking, topic, perspective-taking
Routinized interactions
Perseverative topics
Self-directed conversation
Difficulty with reciprocal interaction
Difficulty with flexible discourse
Difficulty with shared conversation
Social-Emotional Development in ASD: Infancy
Infancy
Lack of reciprocal eye contact
Infrequent or absent social smile
May receive less pleasure from physical contact or be less likely to reach for or seek physical comfort from parents
Attachments may develop more slowly
Lack of response to name
Reduced interest/attention to human faces
Social-Emotional Development in ASD: Early Childhood
Early Childhood
Preference for objects over social interaction
Prefer solitary activities
Limited range of facial and body expressions
Difficulty with perspective taking
Less seeking to share enjoyment
Cooperative play uncommon
T or F
Looking at the ASHA social communication benchmarks is one way we can improve assessment.
True
Assessment of CLD Individuals with ASD
Bilinguals with autism spectrum disorder (ASD) have difficulties in both languages compared to typically developing bilingual peers
No differences between bilinguals with developmental disabilities and monolinguals with developmental disabilities on measures of language performance
Bilingual children with ASD perform similarly to monolingual children with ASD on measures of vocabulary, receptive language, expressive language, and communication
Consistent evidence that bilingualism does not exacerbate symptoms of a (developmental) disorder nor limit treatment outcomes
Single-language recommendation (i.e., English-only) -- negative and long-lasting effects
Promoting evidence-based practice (EBP) and practicing cross-cultural competency to best support children and families
Per CDC data, over the years, more non-Hispanic white children are identified with ASD than non-Hispanic black or Hispanic children.
Some children with ASD may not be receiving the services they need to reach their full potential
Previous studies have shown that potential barriers to identification of children with ASD, especially among Hispanic children, include
Stigma
Lack of access to healthcare services due to non-citizenship or low-income
Non-English primary language
Assessment of CLD Individuals with ASD: Why we have disparties
Disparities in identification and diagnosis
Interactions with healthcare providers
Overdiagnosis/Underdiagnosis/Misdiagnosis
Disparities in research participation
Scare body of literature with CLD clientele with and without ASD
Disparities in prevalence rates, age of identification, and comorbidity of children with ASD across racial, ethnic, and socioeconomic status groups
Disparities in service provision for ASD
Parental beliefs, awareness, & experiences
Further discussion in assessment and treatment units